Center for Dialysis Innovation
The overall objective of the Ambulatory Kidney to Improve Vitality (AKTIV) project is the development, testing, and clinical trial demonstrating the feasibility of a novel approach to personalized dialysis. This approach has the potential to improve functioning and well-being and reduce both morbidity and mortality, compared to current approaches. As human-centered design has become recognized as an important aspect of product development, this study will represent the beginning of attempts to integrate patient perspectives throughout the development of our new AKTIV technology.
Patient-Centered Outcomes in Infants and Young Children with Cleft Lip and Palate (NIDCR)
The objective of this project is to develop and test a parent-reported observational outcome measure for infants and young children with cleft lip and palate to be used in clinical trials and eventually clinical care.
Patient Centered Outcomes Research Partnership (PCORP)
Funded by the Agency for Health Care Research and Quality, PCORP is a stakeholder-driven educational and experiential training program to prepare scientists, clinicians, organizational staff, and public health experts for conducting CER and PCOR. Our program goals include: develop in-person & online training; recruit and train clinicians, staff, and researchers from partners; assist trainees in developing collaborative CER/PCOR pilot studies; develop mentored training experience with scholars; assist with program evaluation; and develop effective collaborations with our partners.
Reducing Sugared Fruit Drinks in Alaska Native Children (NIDCR)
This study will target the sugared fruit drinks that cause dental problems in children through a community-based program based on proven approaches that have not yet been implemented in Alaska Native communities.
Stent Effectiveness in Treatment for Kidney Stones (NIDDK)
This project will implement a prevention study using short message service reminders to improve fluid intake, develop tools to assess the burden of ureteral stents and predict poor outcomes, and collect biospecimens to identify mechanisms of severe stent-related pain.
Assessing Patient-Reported Experience of Care for Home Dialysis (Satellite Healthcare)
The purpose of this study is to develop an outcomes instrument to compare patient-reported experience of care across three common dialysis modalities, including home dialysis modalities.
Home Healthcare in Young and Middle-Aged Adults
In home-based healthcare research, there has been a lot of work in older adults, but much less is known about home health needs and utilization in young and middle-aged adults, as well as the impact of unmet home health needs on the entire household. We are working to better understand the health policy implications of utilization, barriers to care, and outcomes of home healthcare in this population.
Family-Centered Healthcare and Interventions
Health behavior change interventions in healthcare settings are typically focused on the individual patient seeking care, but often there are barriers within the family to successful and sustainable change, ranging from uncooperative spouses to the competing needs of parenting or caregiving. Here, we are looking at innovations in healthcare delivery models to address health behavior change at the level of the family, with initial projects focusing on obesity and sleep.
Impact of School Policy and Practice on Population Health
Although school and district policies are developed to meet academic and community needs, issues such as school start times, breakfast programs, athletic programs, and homework policies have the potential to impact the health and well-being of students and often their families as well. Current projects in this area include policy impact evaluations, as well as investigator-initiated research.