vEDS Collaborative & Study

vEDS gene mutations to vEDS complications

This is a natural history study to define the contribution of known vEDS gene mutations to vEDS complications and outcomes.

Learn more

Create and sustain a collaborative network

The vEDS Collaborative is dedicated to supporting the vEDS community in driving patient-centered outcomes research (PCOR) to improve the management of vEDS and increase the quality of life for people impacted by vEDS.

Learn more

Statistics

Inside US

Inside US

Outside US

Outside US

Enrolled into the study

Enrolled into the study

Records collection complete

Records collection complete