The VEDS Collaborative is a group of patients, family members, researchers, and clinicians dedicated to developing a patient-centered plan for scientific research to improve the management of vascular Ehlers-Danlos Syndrome and increase the quality of life for all those impacted by the disease.
To create and sustain a collaborative network of diverse stakeholders, individuals, and organizations […]
The VEDS Collaborative is a group of patients, family members, researchers, and clinicians […]
Resources for the known VEDS gene mutations to VEDS complications and outcomes. […]
Patient-Centered Outcomes Research Institute […]