The VEDS Collaborative

The VEDS Collaborative is a group of patients, family members, researchers, and clinicians dedicated to developing a patient-centered plan for scientific research to improve the management of vascular Ehlers-Danlos Syndrome and increase the quality of life for all those impacted by the disease.

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Our Mission

To create and sustain a collaborative network of diverse stakeholders, individuals, and organizations […]

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Our Team

The VEDS Collaborative is a group of patients, family members, researchers, and clinicians […]

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Resources

Resources for the known VEDS gene mutations to VEDS complications and outcomes. […]

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Funding

Patient-Centered Outcomes Research Institute […]

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