The vEDS Collaborative

The vEDS Collaborative is a group of patients, family members, researchers, and clinicians dedicated to developing a patient-centered plan for scientific research to improve the management of vascular Ehlers-Danlos Syndrome and increase the quality of life for all those impacted by the disease.

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Our Mission

Turning Interest Into Action To create and sustain a collaborative network of diverse stakeholders, individuals, and organizations… …to understand patient needs… ..and determine the research methods best suited to study the adverse health implications associated with vEDS. OUR VISION Patient Centered Research in vascular EDS The vEDS Collaborative is dedicated to supporting the vEDS community in driving patient-centered outcomes research (PCOR) […]

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Our team

The vEDS Collaborative is a group of patients, family members, researchers, and clinicians dedicated to developing a patient-centered plan for scientific research to improve the management of vascular Ehlers-Danlos Syndrome and increase the quality of life for all those impacted by the disease.  Principal Investigator […]

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PCORI Funding

Patient-Centered Outcomes Research Institute Patient-Centered Outcomes Research Institute Vascular Ehlers-Danlos Syndrome Patient-Centered Research Conference Creating a Learning Healthcare System in Washington State Vascular Ehlers-Danlos Syndrome (vEDS) Collaborative […]

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