To enroll in the study, visit the linked button below. We then will mail or email you your consent packet. Within two weeks, a University of Washington study coordinator will contact you to discuss this study in depth prior to signing any consent documentation and ensure that all of your questions have been answered. If you are eligible and would like to join the study, we will talk you through signing and sending back the forms included in this packet
We are also collaborating with EDS.org, the Marfan Foundation, and Backpack. If you enroll into any of these registries then