John DeMasi, MD


After John was diagnosed with VEDS in 2011, he co-founded the non-profit organization, Fight vEDS, with his brother Dave. Together, they provided information and support to VEDS patients, supported research, and launched a genetic testing program for those struggling to get diagnosed. John was a dedicated, passionate physician and Advisory Board member of the VEDS Collaborative. He passed suddenly in February 2020, but his legacy and commitment to the community will never be forgotten. His brother, Dave, has continues John’s legacy in his honor.

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