Katie Wright

Roles

Katie (aka Translucent One) was diagnosed with VEDS in 2017 and started a YouTube channel, ‘My Life with VEDS’ shortly after diagnosis to raise awareness of the condition. After many people reaching out to her on this channel, she decided to start a podcast called ’Staying Connected’, which features others sharing their stories with VEDS. She is on the VEDS Collaborative Advisory Board, and participates in the VEDS Collaborative with a passion in not only furthering research for VEDS, but developing a strong support community for those affected. Katie joined The Marfan Foundation and became the director of The VEDS Movement in 2019. 

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