research : disease studies

Consent Forms for Affected Individuals

Below are the consent forms needed from the affected individuals. The consent forms are grouped according to the age of the affected individuals. For each age group, signature requirements may vary. Please make sure you've followed the steps and given instructions. Additional study forms are available as well at the bottom of this page.

The consent forms will require Adobe Acrobat Reader to view. Please visit Adobe for more information.

Age: 0-6 years old, 18 years old and up

• Download all forms
• Consent Form A (parent/guardian signs Consent form for child)
• HIPAA

Age; 7-13 years old

• Download all forms
• Consent Form A (parent/guardian signs Consent form)
• Assent Form A (child and parent sign Assent form)
• HIPAA

Age: 14-17 years old

• Download all forms
• Consent Form A (parent/guardian and child sign Consent form)
• Assent Form A
• HIPAA
  

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Shipping Instructions/Study Referral Form

• Blood Draw and Shipping information (**Must obtain approval from research lab prior to sending samples**)
• Study Referral Form