Diagnosis-Specific

Advocacy groups and experts have developed tools and materials on transition and health that specifically address several diagnoses. If your diagnosis of interest is not included below, check the websites of advocacy groups for the diagnosis. You can find these by looking the diagnosis up on NORD or other similar websites. Transition materials that are not diagnosis-specific can be found in Tools, Websites, and Support Groups.

Autism
Cerebral Palsy
Diabetes
Down Syndrome
Fragile X Syndrome

Autism

• Autism Speaks Transition Toolkit
  www.autismspeaks.org/family-services/tool-kits/transition-tool-kit
  A booklet containing information and resources for adolescents living with autism to use in planning for transition to adult life. Includes sections on Self-Advocacy, the Transition Plan, Community Living, Employment, Post-Secondary Education, Housing, Health, Legal, Internet and Technology, and Getting Organized. Each section has resources. Can be downloaded free of charge from Autism Speaks website after registering on the website. Families of adolescents and young adults with autism between the ages of 14 and 22 may request a complimentary hard copy of the Transition Tool Kit by filling out the Transition Tool Kit order form or calling 888-AUTISM2 (888-288-4762) and speaking with an Autism Response Team Coordinator.
  
  
• Autism, Epilepsy & Seizures
  http://fiddle.readvantage.com/news/attach/DJF-EpilepsyBrochure.pdf
  Brochure on how to recognize the signs of epilepsy, and basic first aid when you do. Includes how to recognize and respond to different types of seizures.

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Cerebral Palsy

• Transition Toolkit
  www.cerebralpalsy.org.au/about-cerebral-palsy/my-life-teenagers/transition-toolkit
  This Toolkit is a series of 20 factsheets designed to cover some of the key considerations of moving into adult life. Developed by the Cerebral Palsy Alliance in Australia.

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Diabetes

See section on Diabetes.

Down Syndrome

• Transition Planning
  www.ndss.org/index.php?option=com_content&view=article&id=129%3Atransition-planning&catid=50%3Atransition-a-adulthood&limitstart=1
  Page from the website of the National Down Syndrome Society. Includes skills checklist, sample IEP goals, future planning manual and transition planning resource kit.

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Fragile X Syndrome

• The National Fragile X Foundation
  www.fragilex.org/html/foundation.htm
  Website offers education and emotional support, promotes public and professional awareness and advances research toward improved treatments and a cure for Fragile X. See in particular: High School and the Transition to Adulthood and Adults and Life Planning
• Fragile X Research Foundation of Canada
  www.fragilexcanada.ca/index.php?home&lng=en
  Website of group dedicated to raising awareness of and funding research for Fragile X Syndrome. See in particular the page on adult life: Adulthood 21+ Years.

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