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iCOO Parents

We are asking parents to complete the Infant Cleft Observer-Reported Outcomes Instrument, or “ICOO” questionnaire for seven days in a row at three different time points.

In 2015 we started interviewing parents and craniofacial specialists to create the content for our parent-report observation questionnaire, the iCOO. The goal of the iCOO is to help us understand how a specific cleft-related treatment (currently, lip surgery) affects the whole health and well-being of the child.

This study is a good fit for:

  • Parents who are 18 and older
  • Parents who have a child under 18 months who has a diagnosis of a cleft lip with or without cleft palate who has not yet had lip repair

Recruiting Sites:


  • Seattle Children's Hospital (Seattle, WA)
    Laura Stueckle || 206-884-1254 || laura.stueckle@seattlechildrens.org
  • University of Illinois (Chicago, IL)
    Claudia Crilly Bellucci || 773-385-5409 || cbelluc@uic.edu
  • Shriners Hospitals for Children Chicago (Chicago, IL)
    Claudia Crilly Bellucci || 773-385-5409 || cbelluc@uic.edu
  • Families receiving care at other locations in the US:
    Laura Stueckle || 206-884-1254 || laura.stueckle@seattlechildrens.org