S. MALIA FULLERTON,
Office: A-204F Health Sciences Building
Publications | Recent Talks | Honors,
Awards, Grants | Courses | Curriculum Vita (PDF)
Stephanie Malia Fullerton, D.Phil, is Associate Professor of Bioethics and Humanities at the University of Washington School of Medicine. She is also Adjunct Associate Professor in the UW Departments of Epidemiology and Genome Sciences, as well as an affiliate investigator with the Public Health Sciences division of the Fred Hutchinson Cancer Research Center. She received a PhD in Human Population Genetics from the University of Oxford and later re-trained in Ethical, Legal, and Social Implications research with a fellowship from the NIH National Human Genome Research Institute.
Dr. Fullerton’s work focuses on the ethical and social implications of genetic and genomic research,biobanking, and clinical genetic testing, including researcher and participant perspectives on data-sharing, secondary use, result return, and clinical implementation. She is affiliated with the UW Center for Genomics and Healthcare Equality (Burke, PI), co-directs the Ethical and Psychosocial Implications Research component of the NEXT Medicine Clinical Sequencing Exploratory Research (CSER) project (Jarvik, PI), and serves as a co-Investigator with the Electronic Medical Records and Genomics (eMERGE) Network project at Group Health Cooperative (Jarvik/Larson, PIs). She is also an active co-Investigator on the Community-Based Evaluation of APOL1 Genetic Testing in African Americans study (Young/Burke, PIs).
- Korngiebel, DM, Fullerton, SM, & Burke, W (2016). Patient safety in genomic medicine: an exploratory study. Genetics in Medicine, Mar 24. doi: 10.1038/gim.2016.16.
- Malen, RC, Knerr, S, Delgado, F, Fullerton, SM, & Thompson, B (2016). Rural Mexican-Americans' perceptions of family health history, genetics, and disease risk: implications for disparities-focused research dissemination. Journal of Community Genetics, 7(1): 91-96.
- Fullerton, SM, Anderson, EE, Cowan, K, Malen, RC, & Brugge, D (2015). Awareness of federal regulatory mechanisms relevant to community-engaged research: survey of health disparities-oriented NIH-funded investigators. Journal of Empirical Research on Human Research Ethics, 10(1):13-21.
- Trinidad, SB, Coffin, TB, Fullerton, SM, Ralston, J, Jarvik, GP, and Larson EB (2015). "Getting off the bus closer to your destination": patients' views about pharmacogenetic testing. The Permanente Journal, 19(3): 21-27.
- Trinidad, SB, Fullerton, SM, & Burke W (2015). Looking for trouble and finding it (Peer Commentary on Lazaro-Munoz et al., Looking for trouble: preventive genomic sequencing in the general population and the role of patient choice). American Journal of Bioethics, 15(7): 15-17.
- Kocarnik, JM, & Fullerton, SM (2014). Returning pleiotropic results from genetic testing to patients and research participants. JAMA, 311(8): 795-6.
- Bennette, CS, Trinidad, SB, Fullerton, SM, Patrick, DL, Amendola, L, Burke, W, Hisama, FM, Jarvik, GP, Regier, DA, & Veenstra, DL (2013). Return of incidental findings in genomic medicine: measuring what patients value. Development of an instrument to measurePReferences for Information from Next-generation Testing (IMPRINT). Genetics in Medicine, 15(11): 873-81.
- Beskow, LM, Fullerton, SM, Namey, EE, Nelson, DK, Davis, AM, & Wilfond, BS (2012). Recommendations for ethical approaches to genotype-driven research recruitment. Human Genetics, 131(9): 1423-31.
- Fullerton, SM, Knerr, S, & Burke W (2012). Finding a place for genomics in health disparities research. Public Health Genomics, 15(3-4): 156-163.
- Yu, JH, Taylor, JS, Edwards, KL, & Fullerton, SM (2012). What are our AIMs? Interdisciplinary perspectives on the use of ancestry estimation in disease research. American Journal of Bioethics Primary Research, 3(4): 87-97.
- "Offering Aggregate and Individual Research Results to Study Participants: Ethical Considerations", PATH Research Ethics Lecture Series, Seattle, April 2016
- "Scientific considerations in approaching inclusivity and representation: Health equity",TransCEER Workshop to Explore the Ethical, Legal and Social Implications (ELSI) of Inclusivity and Representation in Precision Medicine: What Will Success Look Like?, Columbia University, New York City, January 2016
- "Persons in personalized medicine: physician/patient responses to pharmacogenomics testing" Clinical to Community Sequencing: Emerging Ethical, Legal, and Social Issues in Genomics, American Society of Bioethics & Humanities and American Society of Human Genetics Joint Symposium, San Diego, October 2014
- “What place for genomics? Personalized medicine and addressing health disparities”, Distinguished Visiting Professor Lecture, Center for Bioethics and Health Law and the Graduate School of Public Health, University of Pittsburgh, February 2014
- “Got results? Communicating with participants and the public about the fruits of research”, Pacific NW Association of Clinical Research Professionals Annual Fall Education Event, BastyrUniversity, Kenmore, WA, September 2013
- “Leveraging EMRs for genetic research”, Balancing Privacy, Autonomy, and Scientific Progress: Patients’ Rights and the Use of Electronic Medical Records for Non-Treatment Purposes workshop, Case Western Reserve University School of Law, April 2013
- “Participant preferences as policy-relevant evidence: on being glad we asked”, Using and Abusing Evidence in Science and Health Policy Meeting, Banff, Alberta, Canada, June 2012
Awards, Honors and Grants Received
- Ruth L. Kirschstein NRSA Postdoctoral Fellowship, NIH F32-HG002629, "Negotiating Complexity: Common Disease and Diverse Genomes", 2002-2005
- Invited Participant, National Academies Keck Futures Initiative conference on ‘The Genomic Revolution: Implications for Treatment and Control of Infectious Disease’, Irvine, CA, November 2005
- B H 497/597, Ethical Implications of Emerging Technology in Medicine and Healthcare (Winter 2016)