S. MALIA FULLERTON,
Office: A-204F Health Sciences Building
Publications | Recent Talks | Honors,
Awards, Grants | Courses | Curriculum Vita (PDF)
Stephanie Malia Fullerton, D.Phil, is Associate Professor of Bioethics and Humanities at the University of Washington School of Medicine. She is also Adjunct Associate Professor in the UW Departments of Epidemiology and Genome Sciences, as well as an affiliate investigator with the Public Health Sciences division of the Fred Hutchinson Cancer Research Center. She received a PhD in Human Population Genetics from the University of Oxford and later re-trained in Ethical, Legal, and Social Implications research with a fellowship from the NIH National Human Genome Research Institute.
Dr. Fullerton’s work focuses on the ethical and social implications of genetic and genomic research, biobanking, and clinical genetic testing, including researcher and participant perspectives on data-sharing, secondary use, result return, and clinical implementation. She leads an exploratory research project (R21) focused on patient safety in genome medicine, is co-Investigator on the Community-Based Evaluation of APOL1 Genetic Testing in African Americans study (Young/Burke, PIs), and is affiliated with the UW Center for Genomics and Healthcare Equality, a Center of Excellence in ELSI Research (Burke, PI). In addition, she co-directs the Ethical and Psychosocial Implications Research component of the NEXT Medicine Clinical Sequencing Exploratory Research (CSER) project (Jarvik, PI) and serves as a co-Investigator with the Electronic Medical Records and Genomics (eMERGE) Network project at Group Health Cooperative (Jarvik/Larson, PIs).
- Popejoy, AB & Fullerton, SM (2016). Genomics is failing on diversity. Nature, 538(7624): 161-4.
- Korngiebel, DM, Fullerton, SM, & Burke, W (2016). Patient safety in genomic medicine: an exploratory study. Genetics in Medicine, 18(11):1136-1142.
- Malen, RC, Knerr, S, Delgado, F, Fullerton, SM, & Thompson, B (2016). Rural Mexican-Americans' perceptions of family health history, genetics, and disease risk: implications for disparities-focused research dissemination. Journal of Community Genetics, 7(1): 91-96.
- Fullerton, SM, Anderson, EE, Cowan, K, Malen, RC, & Brugge, D (2015). Awareness of federal regulatory mechanisms relevant to community-engaged research: survey of health disparities-oriented NIH-funded investigators. Journal of Empirical Research on Human Research Ethics, 10(1):13-21.
- Trinidad, SB, Coffin, TB, Fullerton, SM, Ralston, J, Jarvik, GP, and Larson EB (2015). "Getting off the bus closer to your destination": patients' views about pharmacogenetic testing. The Permanente Journal, 19(3): 21-27.
- Kocarnik, JM, & Fullerton, SM (2014). Returning pleiotropic results from genetic testing to patients and research participants. JAMA, 311(8): 795-6.
- Garrison, NA, Rohlfs, RV, & Fullerton, SM (2013). Forensic familial searching: scientific and social implications. Nature Reviews Genetics, 14(7): 445.
- Fullerton, SM, Knerr, S, & Burke W (2012). Finding a place for genomics in health disparities research. Public Health Genomics, 15(3-4): 156-163.
- "On the use of race and ethnicity in genetic research", Use of Race/Ethnicity in Genomics and Biomedical Research Workshop, National Institutes of Health, Bethesda, MD, October 2016
- "Big data and the pursuit of precision medicine: challenges for research oversight", Ethics and Regulation in the Digital Age, Northwest Association for Biomedical Research and Quorum Annual Conference, Seattle, July 2016
- "Offering Aggregate and Individual Research Results to Study Participants: Ethical Considerations", PATH Research Ethics Lecture Series, Seattle, April 2016
- "Scientific considerations in approaching inclusivity and representation: Health equity",TransCEER Workshop to Explore the Ethical, Legal and Social Implications (ELSI) of Inclusivity and Representation in Precision Medicine: What Will Success Look Like?, Columbia University, New York City, January 2016
- "Persons in personalized medicine: physician/patient responses to pharmacogenomics testing" Clinical to Community Sequencing: Emerging Ethical, Legal, and Social Issues in Genomics, American Society of Bioethics & Humanities and American Society of Human Genetics Joint Symposium, San Diego, October 2014
- “What place for genomics? Personalized medicine and addressing health disparities”, Distinguished Visiting Professor Lecture, Center for Bioethics and Health Law and the Graduate School of Public Health, University of Pittsburgh, February 2014
Awards, Honors and Grants Received
- Ruth L. Kirschstein NRSA Postdoctoral Fellowship, NIH F32-HG002629, "Negotiating Complexity: Common Disease and Diverse Genomes", 2002-2005
- Invited Participant, National Academies Keck Futures Initiative conference on ‘The Genomic Revolution: Implications for Treatment and Control of Infectious Disease’, Irvine, CA, November 2005
- B H 444/544, Ethical Implications of Emerging Biotechnology (Winter 2017)