Stephanie Malia Fullerton, DPhil

Stephanie Malia Fullerton, DPhil, is Professor in the department of Bioethics and Humanities at the University of Washington School of Medicine.

She is also Adjunct Professor in the UW Departments of Epidemiology, Genome Sciences, and Medicine (Medical Genetics), as well as an affiliate investigator with the Public Health Sciences division of the Fred Hutchinson Cancer Research Center. She received a PhD in Human Population Genetics from the University of Oxford and later re-trained in Ethical, Legal, and Social Implications (ELSI) research with a fellowship from the NIH National Human Genome Research Institute. She currently serves as Director of Research for the department.

Dr. Fullerton’s work focuses on the ethical and social implications of genomic research and its equitable and safe translation for clinical and public health benefit. She co-leads (with Sarah Nelson) ELSI research focused on data governance in the context of emerging cloud-based biomedical data storage and analysis platforms (R21 HG011501). She serves as a co-I with the Polygenic Risk Methods in Diverse Populations (PRIMED) Consortium coordinating center (U01 HG011697), and previously served as the ELSI PI for the Clinical Sequencing Evidence-Generating Research (CSER) coordinating center (U24 HG007307). She has prior experience with qualitative research, particularly in association with the UW Electronic Medical Records and Genomics (eMERGE) Network, now in its fourth phase (U01 HG008657). She has also contributed expertise to the Ethics of Inclusion project (R01 HG010330) as well as to a project focused on community engagement surrounding APOL1 genetic testing in African Americans (R01 HG007879). 

Stephanie Malia Fullerton Headshot

Stephanie Malia Fullerton, DPhil

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