Leaving the bedside to mend the bedside: Revising HHS Consent Guidelines | HMC Ethics May Forum

This talk will discuss a bio-ethicist's paradigm of integrating community voices within policy. We will discuss case examples which reduced clinicians' moral distress and amplified patient values and preferences.

OBJECTIVES:

1. Discuss examples of bioethics successes within policymaking

2. Discuss a paradigm of integrating community voices within policy

3. Introduce a policy analysis method for ethics committee members and bio-ethicists

SPEAKER BIO:

Lori Bruce, D.Bioethics, MBE, MA, HEC-C is the Associate Director at Yale Interdisciplinary Center for Bioethics, Key Researcher at Oxford-NUS Centre for Neuroethics and Society, Founder & Chair of the Community Bioethics Forum at Yale School of Medicine, and Affiliated Faculty at the Solomon Center for Health Law and Policy at Yale Law School. She is the co-director of Connecticut's Ethics Chairpersons Meeting Group comprised of leaders of hospital ethics committees across the state. She has served on pediatric and adult ethics committees at Harvard and Yale for over 15 years, including having co-directed the Adult Ethics Committee at Yale-New Haven Hospital for three years. She is on the Board of Editors at the J. Law, Medicine, and Ethics, and the Associate Editor for Disability, Inclusion, & Technology for the Journal of Human-Technology Relations. Her work includes ethics of psychedelics as well as the ethical dimensions of bodily autonomy in clinical practice, law, and popular culture. Her work is often centered in amplifying the voices and values of community members in health policy including work on infant abandonment and confidential/supported birth. She teaches courses in ethical policymaking which are informed by her legislative successes at the state and federal levels, and she directs Yale’s Summer Institute in Bioethics. Her work has been covered by media outlets including NBC Nightly News, the New York Times, CNN, and Time magazine. Her doctorate in bioethics is from Stritch School of Medicine at Loyola University Chicago. She also has an MS in Bioimaging from Boston University School of Medicine and BS in Information & Decision Systems from Carnegie Mellon University.