RESOURCES FOR FAMILIES


ABOUT THIS SITE
This site has been developed and is exclusively maintained by Samuel H Zinner, MD of the Division of Developmental Medicine and is supported in part through a LEND grant as well as voluntary contribution.  The purpose of this site is to assist individuals and families, healthcare providers, allied health professionals and educators in accessing reliable regional and web-based resources related to child, adolescent and family developmental & behavioral health. Great effort is made to ensure that all of the resources listed in this section are evidence-based and impartial, non-commercial, free-of-charge, culturally effective and unbiased, and professionally-refereed.  However, the University of Washington, Seattle Children's and any affiliates are not responsible for the contents of any of the websites linked to this reference database.  Dr. Zinner recommends that you evaluate web-based health resources and related health websites and this Medical Library Association carefully.

Abuse (alcohol, drug, violence, sexual, other)
Abuse at Home: Harm Reduction Strategies During COVID-19 Pandemic Video Seattle Children's
Alcohol/Drug 24 Hour Help Line
WA State Div of (Substance) Abuse confidential assistance & guidance
Camp Mariposa For kids 3rd-6th grades to provide support to cope with an addicted family member
Crisis Support Link to section on this website
DAWN (S. King County) supports, empowers, shelters survivors of domestic abuse in S. King County; Safety thru educating community to respond and prevent violence
Deaf: Abused Deaf Women's Advocacy Service (ADWAS) 24-hour videophone 206-812-1001 domestic & sexual violence crisis line: Snohomish, King, & Pierce Counties
Deaf Services of the National Domestic Violence Hotline y español 1-800-799-7233/TTY 1-800-787-3224
Directories Link to section on this website for further referral
Division of Behavioral Health & Recovery Contracts w/11 Regional Support Networks for Medicaid-eligible persons
King County Sexual Assault Resource Center 24-hour hotline 888-998-6423 NOT LIMITED to sexual assault. Multiple supports for families, youth & professionals.
Language not English: Peace-in-the-Home 24-hour hotline 1-888-847-7205-6423; Many languages & Culturally-specific support
LifeWire (Bellevue/eastside) 24-hour hotline 1-425-746-1940/800-827-8840 Many services for adults, children, and youth impacted by domestic violence
Love Is Respect (Adolescent hotline) 24-hour hotline 1-866-331-9474/TTY 1-866-331-8453 For teens in abusive relationships US Dep't of Health & Human Services
New Beginnings (King County) 24-hour hotline 206-522-9472 Many programs that help survivors of domestic violence at any point in their journey to freedom
Report Abuse/Child Protective Services 24-hour hotline 1-866-ENDHARM or 1-866-363-4276, thru WA State DSHS
SAMA (Science And Management of Addictions) Resources & treatment options for adolescents w/substance addiction
Strong Hearts Native Helpline 1-844-762-8483 American Indians & Alaskan Natives experiencing domestic violence
YES (Youth Eastside Services) Multiple free & sliding-scale services for youth & families affected by all forms of abuse

Adolescence and Aging - Transition Planning
Aaron's Place (purpose) Established to meet the day-service needs of adults with disabilities
Adolescent Healthcare Transition Project Transition resources for adolescents with special needs
Age-based Transition planning IFBT (WA State Developmental Disabilities Council) Support guidance by age (birth thru adulthood)
Aging & Long-Term Support Administration (ALTSA) DSHS branch for in-home care, residential care, respite and other
Alliance of People with DisAbilities In King Country; Youth transition groups (14-21 year-olds), training & referral
Americans w/Disabilities Act Amendments Act (ADAAA) of 2008 Helps someone establish that s/he has an ADA disability (e.g., ADHD)
Autism Speaks: Transition Toolkit Guide for families to assist transition to adulthood
Bellevue College: OLS (Occupational & Life Skills) Associate degree for adults w/cognitive disabilities
Benefits Finder US government online tool for finding food, jobs, housing & social security
Best Journey to Adulthood Very readable "how to" guide, with 6 themes. From CanChild 
Case Management Division of Developmental Disabilities; Also provides other transition supports
CARES of WA (Ctr for Administering Rehabilitation & Employment Services) Job opportunity & support to Puget Sound people w/disability
CLINICS FOR YOUNG ADULTS WHO EXPERIENCE DEVELOPMENTAL DISABILITIES:
***Adult Development Clinic Puyallup; Teens & adults; Comprehensive eval., ongoing support. & connections to adult medical care
**
*Transition Care Program (TCP) Seattle; U.W. Med. Ctr. Transition Program for young adults w/complex medical needs
Center for Change in Transition Services (CCTS) Secondary transition training, resources, technical assistance
Center for Parent Info. & Resources: Adult Services Connects families in all 50 States to regional transition support (vocational, service agencies, independent living centers)
College for Students w/Disabilities: Guide for Students, Parents, Educators
Prepared by Maryville U.
Conservatorship & Alternatives Handbook Excellent resource (the ARC of TN)
Division of Vocational Rehabilitation WA State Dept of Social & Health Services
DO-IT For teens w/disability who have interests in sciences. Summer pgm; equipment loan; online support.
Employment Services - Northwest Center for King County & Spokane County adults w/disabilities (training, support, placement)
Employment Training Program Univ. of Washington program for adults 18 and older w/disability. Helps find & keep jobs.
GotTransition Healthcare transition from childhood to adulthood; MCBH and National Alliance to Advance Adolescent Health
Guardianship Guide & Decision-making Options When children w/disability turn 18; by ExceptionalLives
Guardianship & Conservatorship Videos National Resource Center for Supported Decision-Making
Guidance & Career Counselors' Toolkit: Advising High School Students w/Disabilities on Post-secondary Options HEATH
Healthcare Transition w/algorithm AAP report (2011) on supporting transition to adult special-needs healthcare
HEATH National Youth Transitions Resource Center Post-secondary education
Higher Education for Students w/Disabilities Rights, resources & accredited schools online; Site funded via sponsored school search tool.
IFBT, describes transition in WA State for ages 14-21, 21-40, and over 40 years
Job-Seeker resources WA State Dept of Social & Health Services
KASA (Kids As Self-Advocates) Family Voices project for & by youth w/disabilities to advise on success.
My Life Plan Person-Centered Planning Guide (birth to adulthood); Online account of 7 "life domains" to share w/providers & agencies (WA State DDC)
Lifespan Transitions Center: OCALI Ohio Ctr for Autism; Transition to adulthood info w/videos, checklists, etc
National Center on Secondary Education and Transition Resources & technical help to youth with disabilities
National Council on Independent Living (NCIL) & WA State directory of centers Advances independent living for people w/disability
National Guard Youth Challenge Trains at-risk youth 16 - 18 years who have dropped out of school
National Technical Assistance Center on Transition Improving post-secondary outcomes for students w/disability
Navigating College: Handbook on Self-Advocacy Directed to adults w/Autism. Not professionally-refereed.
Northwest Center Teens Recreation & summer programs for greater Seattle area adolescents 12 - 21 of all ability
Northwest's Child-Aaron's Place (purpose) Day programs for children & adults w/moderate-to-severe developmental disabilities
Post-secondary Education & American w/Disabilities Act + Section 504 PACER Center guidance
Post-secondary Education - Guides from "matchcollege.com": Disabilities, Visual disability, IEP/504, Homeschooled, Bullying
Post-secondary Education - Students w/Disabilities Office for Civil Rights
Post-secondary Education - Transition of Students w/Disabilities US Dept of Education
PROVAIL Multi-service WA State agency for life opportunities for people with all types of disability
Reasonable Accommodations for People with Psychiatric Disabilities Boston U. guide for school & work
Scholarships & Financial Aid for students w/disabilities Affordable Colleges Online
Seattle Youth Employment Program For 16-24 year-olds; job-readiness skills, explore new careers, summer internships; Seattle mayor's office
Tavon Center Connects young adults w/disabilities to community, nature & vocations thru horticulture
Think College Post-secondary education for people with intellectual disabilities
Transition from School to Supported Employment - Info for Parents UW Dept of Rehab. Med: Employment Training Program
Transition into Adulthood ARC of King County
Transitioning to Adult Healthcare Seattle Children's online guide, with checklist, and connections
Washington State Medical Home - Transitions Guides to support transitions of WA State adolescents
We Connect Now Note: Not professionally-refereed; Unites college students w/disability to education & jobs
Wright's Law Many resources/information
Youthhood For adolescents to help plan life (work, home, school, etc.)

Adoption & Foster Parenting
AdoptUSKids Help for families & agencies in supporting their foster & adopted children
Adoption Exchange Association
Resources for families and child welfare agencies
Adoption Institute/Evan B. Donaldson
National advocacy agency to improve policy and practice
Center for Adoption Medicine University of Washington site for medical and developmental issues
Child Welfare Information Gateway One-stop adoption support by US Dep't HHS
Children's Home Society Multi-service WA State organization for family support & therapy services (free or low-cost)
Foster Parenting & Kinship Care WA State DCYF resources for foster, relative and pre-adopt caregivers
Guide for foster caregivers on trauma, treatment & psychotropic medication Child Welfare Info. Gateway, US Dep't HHS
Harborview Foster Care Clinic Medical & psychological care to promote health & development
Healthy Foster Care America American Academy of Pediatrics Policy Statements & guidelines
Mockingbird Society Self-advocacy skills for youth in foster care
National Adoption Center Public awareness, recruitment, info and referral
National Foster Parent Association Services, training & support at state and local levels
National Resource Ctr for Special Needs Adoption ("Spaulding for Children") Foster/Adoption agency for kids in Child Welfare system
N. American Council on Adoptable Children U.S./Canada; Finds permanent families for kids in foster care &/or w/special needs
Treehouse King County advocacy for foster kids, providing essential & academic supports.

Advocacy & Legal, etc.
Columbia Legal Services Non-profit law firm representing legal & human rights of WA State low-income people
Dignity in Schools Resources to prevent students from being "pushed out" of school for discipline concerns
Disability Rights Washington WA Protection & Advocacy System, protects WA residents w/disability
Education Advocacy Manual (Team Child) A program to help WA State youth in trouble
Finding a lawyer in Washington State Guidance and links, prepared by LegalVoice
Informing Families, Building Trust WA State Developmental Disabilities Council; Videos; Note: Includes blogs
KASA (Kids as Self Advocates) Networking & self-advocacy organization for youth w/disability (thru Family Voices)
Legal Planning for adults w/disability: Video Financial, Guardianship, Estate Planning (2 Seattle lawyers)
National Immigration Law Center Defends & advances the rights of immigrants with low income
Northwest Immigrant Rights Project Defends & advances the rights of immigrants thru direct legal services, systemic advocacy, education
Northwest Justice Project Free legal services to WA state people w/low-income
Obtaining Therapy insurance Tips from AAP on writing letters for insurance coverage
Office of the Education Ombudsman WA State gov't resource to support parents' awareness & advocacy for educational rights
PACER Center (Parent Advocacy Coalition for Educational Rights) Parent info for youth w/disability 0 - 21 years
PAVE (Partnerships for Action - Voices for Empowerment) WA State parent-directed services to help families of youth w/disability
Parent Training & Information Center Info on early intervention, therapy, local policies, transportation, etc.
People First of WA NOTE: Not professionally refereed; Self-advocacy group by/ for people w/developmental & other disability
Social Programs That Work Coalition for Evidence-Based Policy; Identifies proven interventions in education, mental health, etc.
Special Education Support Center WA State OSPI-sponsored (may have available volunteer to come to IEP)
TASH International association with resources and support for people with disabilities
Team Child - Advocacy For Youth Agency to divert juveniles from delinquency or other trouble
Toolkit on Communicating with schools/teachers Ctr for the Education & Study of Diverse Populations
Washington Law Help For low-income people to find solutions to civil legal problems
Washington Medical-Legal Partnership Medical providers, social workers & lawyers address legal & health needs of vulnerable families.
Wright's Law Legal information about special education law, education law, and rights for people with disabilities

Alcohol Abuse and Dependence

Anxiety & Depression
See also Mental Health for access to management & treatment resources
Anxiety and Depression Association of America
Clinical & scientific organization (for youth, adults & families)
Anxiety Disorders Treatment Center University N. Carolina site. Includes video presentations.
AnxietyBC Anxiety Disorders Assoc. of BC online, self-help, and evidence-based anxiety resources
Association for Behavioral and Cognitive Therapies Mostly adult-focused, w/useful info on CBT, diagnosis & management
Child Anxiety Center (of EBTCS): Anxiety Disorders Info from the Seattle Anxiety & Stress Reduction Ctr
Child Anxiety Network Info about child & adolescent anxiety disorders and resource support
Cognitive-Behavioral Therapy NACBT brief description of CBT
Cognitive-Behavioral Therapy Description by the Royal College of Psychiatrists (Britain)
Cognitive-Behavioral Therapy: Brief Therapist's Guide Dep't of Veterans Affairs compilation of CBT skills (basic steps)
Cognitive-Behavioral Therapy exercises online exercises, presented by CBT Los Angeles
Cognitive-Behavioral Therapy online self-guided programs Anxiety Canada; MindShift & other tools for kids, teens, & adults
Coping Cat Parents Screening checklist; Management tips; free & for-purchase resources
Depression info & help Seattle Children's Hospital
International OCD Foundation Clinical & scientific organization (for youth, adults & families)
OCD Child Mind Institute; includes description, and teacher guide and parent guide
OCD Challenge Online, interactive, behavioral program for OCD created by psychologists
Overcoming Anxiety: Mindfulness Audio 1, 2, 3, 4, 5 Orientation to anxiety & mindfulness (Judson Brewer, MD, PhD, Brown Univ.)
Peace of Mind: OCD Subsidizes OCD Challenge; useful Videos for children & teens
Seattle Children's anxiety & depression resources Seattle Children's Psychiatry & Behavioral Medicine
Seattle Children's Mood & Anxiety Program For youth 6 to 18 years; Psychiatry & Behavioral Medicine
Selective Mutism Association Part of Child Anxiety Network
Selective Mutism Foundation Non-profit with professional advisory board
Suicide & Depression Student Guidebook Warning signs, tools, resources. MGH psychiatrist, nurse & LearnPsychology.org
Washington Youth Suicide Prevention Program US Dep't of Health, & SAMHSA
WorryWiseKids Created by Tamar Chansky, PhD; Info on full range of anxiety disorders
You & Depression: An Animated Patient's Guide Video Non-profit (Annenberg) psychiatrists' discussion of cause & management

Assistive Technologies
AbleData Objective info about assistive technology products & rehab equipment; Domestic & international
Apps recommended by Georgia Tech "Tools for Life"; Search cost-free downloadable Assitive Tech apps
Augmentative and Alternative Communication with Intro to AAC American Speech Language Hearing Ass'n
Augmentative and Alternative Communication Glossary University of Washington, Patricia Dowden, PhD, CCC-Sp
Augmentative and Alternative Communication MYTHS Child Dev't Centre, Hong Kong, clarifies common misconceptions
Bridging Apps Apps for mobile devices; there are fees, but funding support sources are often included
National Ctr. on Accessible Educational Materials Resources for educators, parents, students on accessibility
Special Education Technology Ctr. Assists w/special technology needs for special ed. students; Includes videos
WA Assistive Technology Act Program Help to obtain technology for jobs, education & independent living
WebAIM (Accessibility In Mind) Resources to make internet content accessible to people w/disabilities

Attention-Deficit/Hyperactivity Disorder
Attention Deficit Disorder Association Info, resources & networking for adults with ADHD
Behavior Management: Finding a Behavioral Provider Advice from Children's Hospital of Philadelphia
ADHD - A Guide for Families AACAP resource
Cartoon "29 Things Only People w/ADHD Understand", by Katy Rollins, reviewed by George Krucik, MD
CHADD: National y español -  The nation's largest advoacy, info & resource agency on ADHD
CHADD: Eastside chapter Seattle area/ Eastside chapter of the national organization
CHADD: Recursos en español sobre TDA/H (ADHD) Déficit de Atención e Hiperactividad
CHADD: South King County chapter Seattle area / South King County chapter of the national organization
Coaching in ADHD & Executive functions Edge Foundation; Non-profit; fee-based, but financial support case-by-case
College Success & ADHD Edge Foundation's guidelines
Fact sheets, Treatment materials, & Assessment tools Florida International U. site
Medication Chart Stimulant & non-stimulant dosing and costs (prepared by Dr. Powell, 2011)
Medication Comparison Guide for Caregivers Cost, generic option, frequency (Cincinnati Children's, 2015)
Medication Guide Photo guide of all approved ADHD Meds (Cohen Children's Med. Ctr.)
National Institute of Mental Health - ADHD The NIH branch with info to consumers on ADHD
National Resource Center on ADHD CHADD-sponsored clearinghouse for science-based info about ADHD
Understood.org Learning & attention issues. Empowers parents of kids 3 to 20 w/tools to succeed.

Autism
ADEPT (Autism Distance Education Parent Training) MIND Institute online parent modules to teach functional skills to kids w/ASD
Adults - Alyssa Burnett Adult Life Center Year-round classes on health, recreation, life skills
Advantages to autism, ADHD & dyslexia General interest (non-scientific) article from The Economist, suggesting possible advantages
Applied Behavioral Analysis (ABA): What to do when your child can't get timely ABA? WAAA guide
Applied Behavioral Analysis (ABA) Medicaid Coverage Checklist SCH, Sep 2018 & 1-page guide
Applied Behavioral Analysis (ABA) Access: Medicaid/Apple Health WA State HCA, w/Medicaid-enrolled ABA providers
Applied Behavioral Analysis (ABA) & related resources Directory SCH Autism Ctr; Aug 2014
Applied Behavioral Analysis (ABA): A Parent's Guide Autism Speaks; Definitions and descriptions of ABA types (e.g., DTT, ESDM, PRT, others), Aug 2018
Asperger Syndrome Support - Seattle Non-professionally refereed regional support groups via Yahoo
Association for Science in Autism Treatment Background & recommendations on current treatments
Autism After 16 Not professionally-refereed. Guidance on transition to adulthood from professionals & parents.
Autism Awareness Project WA State Dept of Health site for parents & others.  Includes resources, guidebook, services directory
Autism: Basics and Resources for Parents CDC parent tools to watch for & record milestones
Autism Blog SCH Autism Center; professionals provide info about raising a child w/autism
Autism Center Seattle Children's
Autism Center University of Washington
Autism - español FriendshipCircle Blog (not professionally-refereed); Spanish-language autism resources
Autism evaluators in greater Seattle Username & Password required, or email Seattle Children's Autism Ctr. autismresources@seattlechildrens.org
Autism Facts: 14 Languages UCEDD/Children's Hospital L.A. & U.S.C.
Autism Guidebook for Washington State Governor-appointed group. Printable.  A "how to" at all life stages [2016].
Autism Information Center CDC general info site for parents & professionals
Autism Internet Modules From OCALI, features multi-topic expert videos with pre- & post-module assessments
Autism Lending Library Free regional lending library & other services from NW Educational Service District
Autism Medications Brochure for Parents U.W. Autism Center brochure. Printable and interactive.
Autism Navigator Tool to assist early identification of autism.
Autism Practice Guideline N.Y. State Early Intervention guidelines
Autism Resource Directory Seattle Children's Autism Ctr.; accessing services, provider database, childcare, support groups
Autism Science Foundation Research & info; Genetics emphasis; Endorses routine vaccinations.
Autism Society of America National organization with professional Board, provides education, advocacy, research
Autism Society of Washington Washington State resources and support groups
Autism Speaks y español The nation's largest autism advocacy organization, with many useful resources
Boy with Asperger: Video 4-minute cartoon of 12-year-old boy interviewing his mother about his Asperger syndrome
Challenging Behaviors Tool Kit Autism Speaks
Communication Milestones (birth-to-2 years): Video Lisa Shulman, MD shows typical social, language & communication effort
Dogs/Service Dogs Links to Dogs, Service Dogs section of this Resources page
FEAT (Families for Effective Autism Treatment) of WA For families & teachers of children with autism 
First 100 Days Kits - 2019 y (Manual de los 100 Dias) Autism Speaks for newly diagnosed
First Signs For parents & professionals to help identify early signs of autism
Genetics of Autism: Videos Several videos (brief and long); various professionals (Matthew State, Eric Courchesne, etc.)
Interacting With Autism Videos y español and in Chinese A video-based resource, w/brief discussions, examples, other. US gov't sponsored/AHRQ
Interactive Autism Network Linking autism community & researchers; Kennedy Krieger & Simons Foundation
National Autism Center Best-practices info. Sponsored by May Institute (center for evidence-based practice)
National Institute of Mental Health - Autism NIH website with general autism info and guidelines
National Standards Project List of "established", "emerging" & "unestablished" treatments
Neurodiversity A variety of links on inclusion; featured by Univ. WA Autism Ctr. which alerts viewer that UWAC doesn't necessarily endorse all content
Research Autism British organization dedicated to evidence-based research on autism interventions
Resourse Guide Autism Speaks online search by geographic location and service category
Ryther Programs for autism evaluation, social skills development & other services
Social Skills Link to Social Skills resources on this website
Social Stories templates Personalized story templates with your own pictures to help child know what to expect in various situations! (Autism Speaks & UW READi Lab)
Spectrum News & analysis on autism. Funded by SFARI (editorially independent)
TEACCH Nationally recognized autism program based at University of North Carolina
Treatments Behavioral, Associated conditions, Medication; Autism Speaks;
Understanding Autism: VIDEO y español Orientation to families newly diagnosed (Seattle Children's Autism Ctr.)
Video Glossary Autism Navigator to help identify early signs of autism
Washington Autism Alliance & Advocacy
Financial aid, advocacy & other resources for families
Yale Child Study Center Frequently asked questions about Autism and related conditions

Bereavement, Loss, and Palliative Care
Babyloss For families who have lost a baby at any stage: pregnancy, at birth, or neonatal
Camp Erin Free bereavement camp of the Moyer Foundation for kids 6-17 who've experienced death of a loved one
Children and Grief General info from American Academy of Child & Adolescent Psychiatry
Children's Grief Education Ass'n Grief education & support to bereaved children, families & professionals thru outreach & training
Compassionate Friends: Supporting Family After a Child Dies Evidence-oriented (note: no professional board)
Courageous Parents Network and Videos y español Provides support & guidance to strengthen families caring for a seriously ill child
I'm Gonna Miss You, Mr. Hooper! Video Sesame Street clip with Big Bird coming to terms with loss
Journey Program Seattle Children's program for families who have experienced death of a child.
M.I.S.S. Foundation: When a Child Dies Non-profit, evidence-based agency for families. Regional support groups.
National Alliance for Grieving Children Resources, Education, Peer Networking, Annual conference
National Ctr for School Crisis & Bereavement USC resource to help schools support students thru crisis/loss
Pregnancy Loss and Infant Death Alliance Non-profit evidence-based agency for families

Bipolar Disorder
Balanced Mind Foundation Parent-led w/professional advisory board.  Resources & referral.
Depression and Bipolar Support Alliance Patient-directed w/prof. advisory board (child, teen & adult support)
Resources Suggested by AACAP (2005) Recommended readings and other resources

Blindness & Vision (with or without hearing impairment)
Affordable Colleges Online - Guide to Visual Disabilities Info on getting degrees, technologies, accommodations, etc.
American Foundation for the Blind
 Technology, professional tools & independent living.  Helen Keller Archives.
Blind Children's Center Los Angeles-based organization w/support for all children with visual impairment
DeafBlind Service Center Independence in daily life tasks, communication, & self-confidence (Seattle Central District)
Department of Services for the Blind WA State; serves kids, youth & adults who are blind or have low vision
Dogs/Service Dogs/Seeing Eye Dogs Links to Dogs, Service Dogs section of this Resources page
FamilyConnect For parents of children w/visual impairment; Provides education, advocacy, activities
Helping Students w/Visual Impairments Accredited Schools Onlines resource w/info on tools & technology
InfantSEE Public Health program for infants for free-of-cost vision screening [Tel: 888-396-EYES (3937)]
Lighthouse for the Blind Employment, support, computer workstations, & training (Seattle)
National Center on Deaf-Blindness Education & resources for kids w/BOTH visual & hearing impairment
National Family Ass'n for Deaf-Blind Resources & education for families of children who are deaf-blind
National Federation of the Blind of WA State Advocacy, technology, programs for independence. Multiple sites
National Library Service for Blind & Physically Handicapped Lends recorded, large print & braille materials
Northwest Access Fund Directory of blind/low-vision educational, recreational, & cultural resources
Northwest Association for Blind Athletes Sports & physical activity for blind/low-vision individuals (Pacific NW)
Paths to Literacy Uses Learning Media Assessment to determine the best instructional medium for students w/visual impairment
Perkins eLearning Service of Perkins School for the Blind; Educational resources, lessons & activities
Vision Loss Connections Cultural, recreational, and educational (Puget Sound)
WA Council of the Blind Opportunity, equality, & independence for business & social access
WA Sensory Disabilities Services Supports development & learning of hearing- or vision-impaired children 0 to 21
WA State Department of Services for the Blind Training, counseling, & support for employment, education, and independent living.
WA State Hands & Voices NOTE: Not professionally refereed; Supports families w/children who are blind and/or deaf
WA State School for the Blind Demonstration & resource center with services on & off campus (located Vancouver, WA)
WA Talking Book & Braille Library Washington State Library

Brain Injury
LEARNet Problem-Solving System Brain Injury Assn of NY.  Videos, tutorials to address learning, behavior & medical care.

Bullying
Bullies 2 Buddies & Videos Not peer-reviewed. School psychologist; Rational Emotive Therapy & Cognitive Behavioral Therapy
Cyberbullying Resource thru 'Affordable Colleges Online' w/descriptions and advice
Cyberbullying: That's Not Cool For teens. Works on building resilience.
Eyes On Bullying Multi-media resource, with toolkit, by developmental experts.
Kids Against Bullying - PACER Center Multi-media resources
National School Climate Center Guide on building a positive school climate and reducing drop-out, violence
Olweus Bullying Prevention Program Description and contact info for schools
Resilience Project (bullying & cyberbullying) "We Can Stop Toxic Stress"; AAP site for clinicians & families
Safe Schools Coalition An international public-private partnership to make schools safe for LBGTQ youth
School Safety Center of WA State OSPI site on multiple issues regarding school safety
Special Needs: Anti-Bullying Toolkit The Bully Project, w/videos & other resources for families
Stop Bullying Health Resources & Services Admin multi-media tools for families/kids
Teens Against Bullying Part of PACER Center's program, directed exclusively to teens
Walk A Mile In Their Shoes Bullying & special needs, from AbilityPath.org

Care Coordination/Case Management
Family Resource Coordinator Directory by WA State County (Dep't of Children, Youth, & Families)
Guide to WA State Care Coordinator Roles
Center for Children with Special Needs
Inside Out Care Many Languages upper right-hand corner "All-in-one planner" to plan and track your care; Requires registration but no fee
Medical Home Guide on care coordination WA State Medical Home guide for primary care providers

Cerebral Palsy
American Academy for Cerebral Palsy & Developmental Medicine For professionals. Education & advocacy
Australasian Academy of CP & Developmental Medicine Mostly for professionals. Good hip dislocation info + video
CanChild Centre - Cerebral Palsy and other disability For families & professionals. Education & advocacy
Cerebral Palsy Foundation Addresses "Moments of Impact" (interventions to change lives)
CP Now Foundation Health and wellness. Has a Tool kit
Critical Elements of Care - Cerebral Palsy For professionals; Seattle Children's Ctr for Children w/Special Needs (2011)
Graphs on screening algorithms, co-occurring conditions & clinical outcomes From review article, 2014
MyCP Web portal for community participation in research thru discussions & surveys (via cprn.org)
Reaching for the Stars Advocacy, education and research grassroots organization
Wellbeing for Parents & Caregivers Toolkit for caregivers of children & adults w/CP (from CP Now)
World CP Day Worldwide program providing tools, education + infographics, & advocacy for school, community, home

Child Care
Child Care Aware and WA State Tools for child care providers & families
Child Care & Preschool Options Services to WA State DCYF guide & directory; Prepare kids for care & kindergarten
National Resource Center for Health & Safety in Child Care & Early Education "Caring for Our Children" publication of standards

Complementary and Alternative (CAM) Healthcare
Academic Consortium for Integrative Medicine & Health Academic biomed + intrinsic healing
CLIA Labs
& Direct Access Testing Clinical labs regulations, including direct-to-consumer labs
Consumer Labs Information on standardized dietary supplements
Dietary Supplements FDA Information
JCAHO Guidelines on inquiring about and documenting supplements
Lab Accreditation College of American Pathologists guidelines to determine lab accreditation
Longwood Herbal Boston Children's Hospital: Discontinued in 2003, but useful info on herbal & other
MedlinePlus - Complementary & Alternative Medicine NIH National Library of Medicine; Big database
National Center for Complementary and Alternative Medicine An NIH agency
Nat'l Certification Commission for Acupuncture & Oriental Med. Recognized standards of competence & safety
Natural Medicines Comprehensive Database Evidence-based effectiveness, safety & interactions info
New Medicine PBS program and resources
Office of Dietary Supplements An NIH agency
Pseudoscientific Therapies: Some Warning Signs Guidelines from Ass'n for Science in Autism Treatment
Quackwatch National Council Against Health Fraud affiliate
Science-Based Medicine Presents empirical data behind issues/controversies in science & medicine
Seattle Children's Acupuncture and Pain Management Program
Section on Complementary & Integrative Medicine AAP site; For professionals, but OK for consumers
9 Questions to Help You Make Sense of Health Research Guide from the NIH (NCCAM)
Vision Therapy Position Statements: AAPOS and AOA (page 27); Vision & Reading (AOA)

Complex Medical Care
Complex Care at Home for Children For caregivers, educators, and health providers; Examples: Respiratory; Dialysis; Enterostomy; McGill University
Complex Child Online magazine by parents of children with special healthcare needs & disabilities. Provides medical info in simple language.

Coronavirus/COVID-19
See also "Abuse" and/or "Crisis & Trauma Support"
See also "School Re-Entry Info." at the bottom of this section

Anxiety Daily Update w/Coronavirus
Mindfulness, based on physiology of anxiety, presented by Judson Brewer, MD, PhD, Brown University
Autism: How to Communicate to Your Child about Coronavirus
Multiple guides/links from Seattle Children's Autism Center
Behavioral Health Toolbox for Families: Supporting children & teens during COVID-19 Tips to navigate emotions (WA State Dep't of Health)
Caring for Children & Youth w/Special Health Care Needs During COVID-19 American Academy of Pediatrics guide for clinicians & their patients/families
Coronavirus Sanity Guide Ten Percent Happier; Mindfulness resource for families & clinicians (Dan Harris [journalist] brings together experts for guidance)
COVID-19 Information & Resources for families of children & youth with special health care needs Family Voices
COVID-19 Information & Support Informing Families; WA State Portal for all-things COVID (support regarding food, health, school, mental health, other)
COVID-19 Portal to raising children during this pandemic SDBP source for activities & education at home, self-care, etc.
Deaf: Communicating with Medical Personnel During Coronavirus w/Video National Assoc. of the Deaf; Guidelines for patients and for providers
Dealing w/School & Childcare Closings y español HealthyChildren (American Academy of Pediatrics)
Developmental & Behavioral Disorders Centers for Disease Control & Prevention (CDC)
Five Ways to View Coverage of the Coronavirus
American Psychological Association
Helping Children & Teens Cope with Anxiety about COVID-19 Seattle Children's Hospital
Parent/Caregiver Guide to Helping Families Cope with COVID-19
y español and in Chinese The National Child Traumatic Stress Network
Plain language info about COVID-19 by and for people w/disabilities Green Mountain Self-Advocates
Right Now I Am Fine Narrated and printable book (and coloring book) for children on COVID-19, using Mindfulness practices for kids (Daniela Owen, PhD)
SCREEN for COVID-19 Online quick screener with interpretation and guidance; Developed by CDC, FEMA, the White House, & Apple, Inc.
Talking to Children about COVID-19 y español National Association of School Psychologists
Talking with Children about COVID-19 Centers for Disease Control
Talking to Kids About Coronavirus with Video
y español Child Mind Institute
Talking to Kids About Coronavirus National Geographic
10 Tips for Talking about COVID-19 with your Kids PBS
WA State Coronavirus Response in MANY LANGUAGES; Government & Community services; Maintained by WA State Emergency Operations Center

Crisis & Trauma Support
Behavior Support Team (BeST) In-home Positive Behavior services for King County parents of kids 3-17 years w/disability. 1-800-318-KIDS (1-800-318-5437)
Children's Crisis Outreach Response System (CCORS) King County DCHS. Families of youth to 18 years in crisis [family conflict, behavioral problems or imminent removal risk]
Crisis Connections (King County) Phone & online services for King County people in emotional distress in need of help
Crisis Text Line Text "741741" from anywhere in the U.S. to be connected to crisis counselor
ECLIPSE (Early Childhood Intervention and Prevention Services) DCYF program for families w/complex trauma
Institute for Family Development HOMEBUILDERS Pgm [WA State & Portland] in-home services
Intensive Stabilization Services for people w/Developmental Disabilities CCORS; In-home family positive behavior support for dependent w/disability; 2-21 years old; Request "ISS-DD"
National Ctr for School Crisis & Bereavement USC resource to help schools support students thru crisis/loss
Nat'l Child Traumatic Stress Network U.S. DHHS site for families & professionals. Culturally sensitive info on all trauma/stress types
Report Abuse/Child Protective Services WA State DSHS; 24-hour hotline 1-866-ENDHARM or 1-866-363-4276
Supporting Young Children Experiencing Separation & Trauma Zero to Three
Teen Link Teen-to-teen support for confidential talking about anything on your mind. Program of Crisis Connections. 1-(866)-TEENLINK [1.866.833.6546]
Washington State Mental Health Crisis Lines Listed by County; Dept of Social & Health Services
WISe (Wraparound w/Intensive Services) WA State BHA; Comprehensive "wraparound" behavioral health services to Medicaid-eligible youth

Deafness/Hearing Impairment (for Deaf-Blind resources, select Blindness & Vision)
American Society for Deaf Children Advocacy organization affiliated w/accredited schools & organizations
Childhood Communication Center & Hearing Loss Clinic: Seattle Children's multi-disciplinary services
Dogs/Service Dogs Links to Dogs, Service Dogs section of this Resources page
Educating Deaf Children Q & A from experts, mediated thru the National Technical Institute for the Deaf
Hearing, Speech & Deaf Center (HSDC) nclusive & accessible communities; Offers early childhood ed. (Parent-Infant & Rosen Family Preschool)
John Tracy Clinic & español: Offers distance learning (English/español) for caregivers of kids birth-5 years
Listening & Spoken Language Knowledge Center Info & resources to improve communication
My Baby's Hearing NIDCD site; English y español. Caregiver info on newborn screening & confirmed hearing loss
National Cued Speech Assn Organiziation w/info about this visual communication system
National Deaf Children's Society British website. Use "search" box for many excellent resources.
Nat'l Inst. on Deafness & Other Communication Disorders NIH agency. Prevention & management for all ages.
Northwest School for Deaf & Hard-of-Hearing Children Birth-8th grades & Community resources (Shoreline, WA)
Office of the Deaf & Hard of Hearing For WA State people who are deaf, hard of hearing, deaf-blind, or w/speech disability
WA Center for Deaf & Hard of Hearing Youth School (in Vancouver, WA) + Statewide outreach & professional development
WA State Hands & Voices NOTE: Not professionally refereed; Supports families w/children who are deaf and/or blind
WA School for the Deaf Offers statewide services to families, students & teachers
WA Sensory Disabilities Services Supports development & learning of hearing- or vision-impaired children 0 to 21
World Deaf Info Resource Project Gallaudet University-sponsored; for worldwide deaf-related resources 

Dentistry
Access to Baby and Child Dentistry Dental care for King County children w/Medicaid coupons
American Academy of Pediatric Dentistry Nat'l organization w/resources & supports on child dental care
Center for Pediatric Dentistry for youth birth to 20 w/special  needs (program ofUW & Seattle Children's)
DECOD UW dental program (in partnership w/Ctr. for Pediatric Dentistry) for adults w/autism, CP, MS, other
Dental Toolkit & guide Includes video; Prepares kids w/autism & related in going to dentist, by Autism Speaks
Dentists Providing Care to Patients w/Developmental or Acquired Special Needs WA State Dental Assn
Seattle Special Care Dentistry For kids & adults with special needs. Accepts Medicaid for kids < 9 years .
Special Needs & Dental Care UW dental school site w/disorder-specific concerns (e.g., Autism)
Tooth-grinding (bruxism or clenching) Nemours KidsHealth information
Within Reach Connects WA State families to free or low-cost health & dental

Directories
Database Resources on Developmental Pediatrics (Well-child and Children/Youth with Disability)
ARC of King County Resource Guide ARC guide for King County people w/developmental disabilities
Autism: Mental Health therapists (western WA State) prepared by Seattle Children's, June 2019
Autism - Adults: Mental Health therapists & counselors (western WA State) prepared by Seattle Children's, June 2019
Autism Center Resource Directory January 2016 version; Comprehensive, with many categories (PASSWORD needed -as for Consultation)
Center for Children with Special Needs Seattle Children's - disability resources; Includes a Starting Point Guide
Ctr. for Parent Info. & Resources (English/español) Office of Special Ed. Programs: Effective disability rights
Children with Special Health Care Needs Program WA State DOH: access to programs & services
Commission for People with DisAbilities Seattle government agency to help find & build resources
County-specific resources for kids w/special needs Resources for WA State kids w/special needs
Disability Resources - National US Department of Labor resource database, by topic
Disability Resources - WA State Disabilities Resources Monthly guide; multiple topics
King County: Public Health Directory Health protection & promotion for youth, people w/special needs, all
Maternal and Child Health Library Maternal & Child Health Bureau resources database for families & professionals
Neurodevelopmental Toolkit - Patient & Family Education (accessible only from Seattle Children's Hospital computers)
Pierce County Coalition for Developmental Disabilities Resource guides, referrals, trainings, other
Resource Directory: Neurodevelopment Seattle Children's Hospital weblinks (by category)
Resource Directory: Special Needs Cincinnati Children's Hospital - resources on multiple topics
Washington Connection State of WA site; Identifies online Local, State & Federal programs/services you qualify for
Washington Information Network 2-1-1 Multi-topic resources by county
WithinReach "Essential resources for family health" - formerly WA State Healthy Mothers/Healthy Babies
Yellow Pages for Kids with Disabilities WrightsLaw: educational consultants, psychologists, tutors, attorneys, etc

Diversity
Asian Counseling & Referral Services in MULTIPLE LANGUAGE ACCESS Human services & behavioral health to King County Asian Pacific Americans
Atlantic Street Ctr. Family support & Behavioral health for low- & very low-income African-Am. & other families of color in Central & SE Seattle, S. King & N. Pierce Cty
CHAP - Community Health Access Program King County cultural health & social services
East African Community Services Nurtures whole-life development interests (education, mentorship, citizenship, parent leadership, childcare, food, supplies)
Families of Color Seattle Connects parents of color to build community with parent groups, family events, & consulting
Indian: Seattle Indian Health Board American Indians & Alaskan Natives services
Latino: El Centro de la Raza Advocacy, Child/Youth programs [after-school, college readiness, other)
Latino: SeaMar Community Health Ctrs / Clinica de la Comunidad Medical, dental, social & other services
Multi-cultural: Associates in Cultural Exchange Part of Global WA; Connects people of other languages & cultures
Multi-cultural: EthnoMed Health/social resources for Seattle immigrants & refugees
Multi-cultural: National Ctr for Cultural Competence Support for professionals
Multi-cultural: Neighborhood House Low-income immigrants: jobs, transportation, HIV education, Head Start
Multi-cultural: ReWA (Refugee Women's Alliance) Supports to refugee/immigrant woman/families (parenting, dev't disabilities, violence, etc.)
Open Doors for Multicultural Families Ensures equal access to culturally & linguistically services for people w/disability
Spanish: Consejo Counseling & Referral y espanol Behavioral health, substance abuse & domestic violence
Spanish: Recursos en español Padres Seattle Children's multiple topics for parents
Special Books by Special Kids Videos Interviews w/people living w/disability and/or neurodiversity; Hosted by Chris Ulmer; Seeks to normalize diversity within humankind

Divorce & Separation
Facts for Families: Children & Divorce American Academy of Child & Adolescent Psychiatry
Healthy Divorce: How to Make Your Split as Smooth as Possible American Psychological Association
How to Support Children After Their Parents Separate or Divorce
AAP guide & database of resources

Dogs, Service Dogs
ADA Requirements for Service Animals U.S. Dep't of Justice Civil Rights Division overview
Assistance Dogs International Coalition of non-profit assistance dog organizations.
Brigadoon Service Dogs
Trained service dogs for veterans, kids, adults w/physical, dev't. & behavioral disability. Fee-based.
Cascade Service Dogs Rescued dogs trained to serve those w/Autism, PTSD & brain injury. Olympia WA. Fee-based.
Golden Ears Hearing Dogs Alerts hearing-impaired people to sounds for home/daily life. Tacoma WA. Fee-based.
Heeling Allies Assistance Dogs Trains mental health (emotional & skilled companion) support dogs. Seattle WA.
Paws-Abilities Total Dog Center Service-Dog training
Prison Pet Partnership WA Corrections Ctr. for Women in Gig Harbor. Rescued dogs trained for service . No charge ($25 application fee)
Service Dog Academy Trains one's own dog for alert & response purposes. W. Seattle. Fee-based.
Summit Assistance Dogs Trains service, companion & professional therapy dogs. Anacortes WA. Works w/Monroe Corrections. Donations.
Types of support animals: Checklist 3 types, & qualifications for Fair Housing Act; by LoveOnALeash

Down Syndrome
Clinic: Down Syndrome University of Washington Clinical Training Unit; Director Lisa Herzig, MD
Clinic: Virginia Mason [Issaquah] Down Syndrome Program
Rebecca Partridge, MD
Down syndrome: Health Issues
NOTE: Not refereed, but created by physician/father of child w/Down synd.
Down Syndrome Clinic To You (DSC2U) Personalized care plan to clinicians & families who aren't near a Down syndrome specialty program; Small fee (MGH)
Down Syndrome Community - Puget Sound Western Washington State non-profit parent-based
Down Syndrome Resource Foundation
Canadian organization w/Medical/Healthcare, educational & other
Down Syndrome Test Prenatal Testing Pamphlet from National Down Syndrome Congress
Haring Center Down Syndrome model program (UW Experimental Education Unit)
Medical Monitoring Guidelines
2011 updated AAP guidelines for practitioners
National Down Syndrome Society Includes Medical/Healthcare, educational, advocacy & other

Drug Abuse and Dependence

Dyslexia
Child Development Institute: About Dyslexia & Phonemic Awareness U.C. Irvine faculty & others
Get Ready To Read
 Early childhood screening and activities
Ideas for educational accommodations in dyslexia Prepared by Seattle Children's Speech/Language Pathology
International Dyslexia Association Info & support for people w/dyslexia & other language-based difficulty
WABIDA  WA State branch of the International Dyslexia Association
Yale Ctr for Dyslexia & Creativity Interactive, illustrated and colorful site by Dr. Shaywitz

Early Intervention & Early Education
Birth to One Part of the CoIIN program; Infants w/special needs birth to 4 mo. (Local + State supports, other)
Child Find
 National IDEA program requiring states to locate, identify, refer young kids w/special needs
Diagnoses that qualify for ESIT Alphabetical list of diagnoses that qualify for early intervention in WA State (DCYF, Oct. 2019)
Early Childhood Technical Assistance Center Finds resources for infants & toddlers w/disability in all 50 states
Early Intervention: King County Developmental Disabilities Division, Dep't of Community & Human Services
Early Intervention: Video WA State 3-minute video telling parents if and how to refer for evaluation
Early Learning & Childcare Help in finding these services in WA State; DCYF
Early Support for Infants & Toddlers (ESIT) WA State Early Intervention (WA Dep't of Children, Youth & Families) [King County ESIT Referral Form]
Family Resource Coordinator (FRC) Find your ESIT contact/local lead agency by WA State county
Head Start vs. ECEAP Description of differences between these 2 program for kids 3 to 5 years
IFSP - How to write it NICHCY explanation of the Individualized Family Service Plan
IFSP: Video King County video featuring families & experts to explain IFSP
Zero To Three National agency for families & professionals to promote healthy infant, toddler & family development

Eating Disorders

Education - General
Denise Louie Education Ctr Immigrant & low-income. Early learning, Head Start, Preschool, Parenting training. 3 locations (I.D., Beacon Hill, Seward Pk)
Education World Lesson planning, professional development, school issues
ERIC Clearinghouse database Education Resources Information Center
Grade Retention and Social Promotion Policy statements; National Assn of School Psychologists
GreatSchools A variety of resources to help students & families succeed academically
Homework tips From Sydney Zentall's & Sam Goldstein's book, "7 Steps to Homework Success"
School Readiness y español with "Info-Graphic" Zero to Three
School Readiness Article by AAP (2008), with definitions of School Readiness and background info
School Readiness US Dept of Education 'Get Ready for School!' w/school readiness activities
School Readiness Helping your Preschool Child (US Dept of Education 2005 booklet)
Seattle Preschool Program Dep't of Education & Early Learning; Affordable, high-quality
What Works Clearinghouse US Dep't of Education database of scientific evidence for education 

Education - Special
IDEA (2004) - A Training Curriculum y español Construyendo el Legado Basics on special education law
IDEA updates Office of Special Education Programs (OSEP) explains the IDEA changes since 2005
IDEIA (2005) - Wright's Law links Info on most recent version of IDEA
IDEIA (2005) - update to I.D.E.A. Info on most recent version of IDEA
Least Restrictive Environment (LRE) VIDEO 31 minutes; Some info is specific to State of PA
Non-Public Agencies These schools provide special education via contract w/school districts; OSPI
Office of Superintendant of Public Education (OSPI) - Special Ed. WA State main website; w/ overview for families & making a referral
Project IDEAL [Informing & Designing Ed. for All Learners] w VIDEOS Prepares teachers to work w/students w/disabilities; TX Council for DD
Resource Library (Special Education) OSPI; Easy to use info & supports, alphabetically listed
Response To Intervention (RTI) OSPI; School-based prevention system to ↑ achievement & ↓ behavior problems
Schools: Seattle Public - Alternative Learning Experience & Service Special schools and services
Schools: Seattle Public - Special Education
 Webpage for Seattle public schools special ed.
Section 504 Not special education, but rather Civil Rights law.
Special Education Guide Multiple resources [e.g., Response To Intervention (RTI), IEP, IDEA]. Not peer-reviewed
Special Education Support Center WA State OSPI-sponsored program for families, educators, students, others
Tool Kit on Teaching and Assessing Students with Disabilities For parents; OSEP (2018)

Elimination Problems (bowel and bladder)
Chronic Constipation and Encopresis in Children University of Virginia tutorial for families
Encopresis Treatment Center Nurse-based program in Edmonds for kid w/functional encopresis, toilet training & severe constipation
UCanPoopToo Online program for childhood poop accidents. Fee-based, but site has free resources

Emergency Preparedness
Emergency Preparedness for Children with Special Needs Seattle Children's website
Emergency/Disaster Preparedness: Multiple languages King County Public Health
Four Steps to Prepare Your Family for Disasters American Academy of Pediatrics
"Ready" - (English/español): Videos Emergencies including for children w/special needs. Homeland Security

Employment - People with Disability

Environmental Safety & Health
Agency for Toxic Substance & Disease English y español; U.S. DHHS w/mission to provide trusted health info related to toxic substances
Be Ready To Prevent Wandering Big Red Safety Toolkit, by National Autism Association (2012)
Big Red Safety Box Will send you a box of materials and guidebook for kids at safety risk (elopement, wandering, 'running', etc.); National Autism Association
Childhood Lead Poisoning Prevention Centers for Disease Control and Prevention
Childhood Lead Poisoning Prevention Washington State Dept of Health
Children's Health Protection Environmental Protection Agency site, search environmental hazards
Database of Safety Products & Services by Autism Speaks (home, school, car, community)
Guide to Safety: Life Journey Through Autism 146-page online 'book' by Organization for Autism Research; threats during childhood, adolescence, & adulthood
Home Safety Checklists Multiple topics/checklists for parents.  From "KidsHealth"
Household Products Database NIH site for consumers on safety & handling
Pediatric Environmental Health Specialty Unit FACT SHEETS: Protect kids from risks & find a specialist
Project TENDR (Targeting Env. NeuroDevelopmental Risks) Resources to reduce environmental toxic exposure
Toxipedia Aims to inform on evidence-based environmental factors. Non-profit & academician-reviewed, but not affiliated

Face Blindness (prosopagnosia)
Developmental Prosopagnosia in Kids Test From Prosopagnosia Research Center
Face Blind Prosopagnosia Research Center (Harvard & U. College London collaborative)

Family Preservation
PACT (Parents And Children Together) Prevention. In-home counseling, skill building, support to at-risk homes

Fathers
Fathers Network Program of WA State DOH: Office of Children w/Special Healthcare Needs
National Responsible Fatherhood Clearinghouse y español Activities, programs, toolkits; US DHHS

Fetal Alcohol Spectrum Disorders/Prenatal Drug Exposure
Caring for Babies with Prenatal Substance Exposure Baby Steps: Vancouver Coastal Health Authority (2003)
Families Moving Forward Program
consultation of + behavior support, motivational interviewing & other. (UW & Seattle Children's)
FAS Diagnostic & Prevention Network University of Washington clinic and research-based program
Hope RISING Clinic Wonderland multi-disciplinary program (Shoreline); birth to 12 years & families impacted by prenatal substance
National Org. on Fetal Alcohol Syndrome and WA State chapter Education, Social support, Advocacy, other
SNACS Short-term Seattle Children's consultation for children w/prenatal alcohol exposure

Financial, Food, Child Care, Housing Help
See also Coronavirus/COVID-19
See also Crisis & Trauma Support
See also Cultural
See also Directories
See also Mental Health & Wellness
Apple Health for Kids
 Formerly SCHIP, for youth in homes w/incomes 2 to 2.5 times poverty level. Tel (800) 562-3022
Basic Food y español Monthly benefits to help low-income individuals & families buy food; Washington Connection
Ben's Fund For children w/Autism; sponsored by FEAT; up to $1,000 per year
Catalyst Center National (US gov't) center to improve health care coverage & financing for kids w/special health care needs
CHAP - Community Health Access Program King County pgm w/culturally appropriate health & social services
Child Care Assistance Program (CCAP) Seattle families, thru Dep't of Early Learning; Helps pay for childcare for kids up to 13 years
Child Care Resources Supports WA State families in search for child care, assists with costs, & trains low-income & refugee women pursuing careers in early learning
Dept of Social & Health Services (DSHS) WA State social support agency. Services listed by topic.
Developmental Disabilities Administration (DDA) DSHS supports for in-home and community
Disability Advisor Articles & other content on disability benefits. Also, Q&A at Ask the Disability Advisor
Employment Security Department (WA State) COVID-19 affected workers, info on unemployment, paid leave, employer info, school closure, etc.
Family Voices Info on insurance and advocacy
First Place Family of Services Non-profit: Safe and secure housing for disadvantaged families
Food during COVID-19 Map for food banks, school food sites, public food site events
Food Lifeline WA State food pantries, food banks & hot meal programs. Search by type or location
Homechoice Program WA State Housing Finance Comm. House down payment help to people w/disability
Hopelink Housing, shelters, family dev't services for families w/homelessness in East & North King County
King County Social Services Free/Low-cost healthcare, other services
Low-Income Home Energy Assistance Program (LIHEAP) WA State Dep't of Commerce; Helps keep heat on.
Nexus Youth & Families S. King County; provides Emergency shelter, Behavioral healthcare, Case management
Northwest Access Fund Low-interest loans for assistive technology device or service, or vehicle & home modifications
Prescription Assistance Programs  Free/Low-cost medication opportunities via Patient Help Network
Prescription Drug Program Provides assistance to obtain drug coverage; WA State Health Care Authority
Rental Assistance Programs Seattle/King County Rental Housing Assoc. of WA & WA Multifamily Housing Assoc. database
Seattle (City gov't) Children & Families Human Services Dep't Support for family, preschool, childcare, after-school & nutrition
Seattle Food Committee Food programs serving those in need of supplemental food in Seattle
Solid Ground Food, housing, transportation support in King County
Summer Food Service Program ("Summer Sack Lunch") Meals for summer nutrition to Seattle-area kids
Summer Food - Kids Cafe Part of Food Lifeline. Nutrition/Meals available for WA State kids during summer months
Supplemental Security Income (SSI) Social Security benefits to children & adults w/disability
Supplement Security Income (SSI) Starter Kit y español "How to start" guide for SSI for children w/disabilities
VITA (Volunteer Income Tax Assistance) Free tax help to people w/disabilities, lower income, limited English, elderly
Washington Connection y español & VIDEO Apply easily online for food, cash, childcare, long-term care, Medicare; WA State DSHS
WA State Dep't of Financial Instutitions Financial Resources for WA State residents impacted during COVID-19
Wellspring Family Services Low-income King County families: Mental health; Homeless; Early learning; Basic needs; Domestic violence
WithinReach Connects families w/free or low-cost insurance, food, parenting & other social & health programs

Foster Parenting

Genetics (Disorders & General Education for Families)
Centre for Genetics Education Australian site for families. Includes glossary, facts sheet, etc.
DNA From The Beginning Interactive site from Dolan DNA Learning Ctr for teens & adults
DNA Learning Center Multi-media site for kids & adults; Cold Spring Harbor Labs
DNA Workshop Interactive activity from PBS to learn about DNA replication & protein synthesis
GEMSS (Genetics Education Materials for School Success) 'How to' guides for family, from UNH & NEGC
Genetics & Genomics for Patients & the Public NIH site: Genetic disorders, genome science, create a family history, etc.
Genetics Basics General orientation to Genetics; Centers for Disease Control
Genetics Home Reference: Your Guide to Understanding Genetic Conditions US Nat'l Library of Med.: Disorders, Genes, Glossary, Resources
Glossary - Talking Glossary of Genetic Terms NIH resource, includes spoken explanations of each term
Six Things Everyone Should Know About Genetics ASHG site for families & health care providers
Unique: Rare Chromosome Disorders Support Group Non-refereed but pledges to provide only evidence-based info. Education & support
What are Genes? Site for kids from non-refereed site, w/creative activities to learn about genes

Gifted Youth
Council for Exceptional Children: Gifted Education Information and resources
Johns Hopkins Univ. Ctr. for Talented Youth Pre-college students; Summer, online, & family programs
National Association for Gifted Children Resources for families & educators
Robinson Center for Young Scholars
UW program for highly capable pre-college & college students
SENG (Supporting Emotional Needs of the Gifted) Guides families/communities of gifted people to reach goals

Girls
Girls Health Fitness, Feelings, Relationships, Future; US DHHS
Girls, Inc.
Nat'l organization w/WA State chapters. Promotes activities to inspire underserved girls

Grandparents
Kinship Care Financial, legal & emotional resources for people raising a relative's child. WA State DSHS
Kinship Care Finding/Providing support; Child Welfare Information Gateway (US DHHS)
Relatives as Parents Resource guide [available directly here] from WA State DSHS

Home & Virtual schools
Home School Legal Defense Association NOTE: Religious-based, but asserts homeschool freedom
Home-Based Instruction in WA State OSPI site for technical assistance to parents & school districts
Pink Book Washington State's laws regulating home-based instruction
Washington Virtual Academies For WA State home-schooled students K-12, via Internet public schools

Immigrant/Refugee/Asylum
See also Crisis & Trauma Support
Immigrant Health Toolkit WA Chapter of AAP. Guidance & access to healthcare, advocates, other.
Moving Beyond Trauma: Child Migrants & Refugees in the U.S. ChildTrends.org

Intellectual Disabilities (formerly "Mental Retardation")
The ARC Array of services & support for families & individuals w/intellectual & developmental disabilities
The Arc of King County King County chapter of The ARC
The Arc of Washington State WA State chapter The ARC

Laboratory Testing
Lab Tests Online Consumer site to understand specific lab tests and determine lab accreditation

Learning and Learning Disabilities
All Kinds of Minds Principles of Pediatrician Mel Levine. Help students w/learning struggles succeed
Executive Functions Description of Processing Speed & Working Memory (LDA)
Executive Functions Article describing fundamentals (LD Online)
Executive Functions: VIDEO Features Adele Diamond, PhD (17 minutes)
Executive Functions & Self-Regulation: VIDEO Center on Developing Child - Harvard (5 minutes)
Great Schools: Learning Difficulties Info on learning disabilities for parents
"Inspiration" for visual learning support  Note: Commercial software for sale
LD Navigator Tool from NCLD for pediatric primary care provider in working w/patients who have LD
LEARNet Problem-based consideration of sources of learning & behavioral challenge; Brain Injury Assoc. of NY
Learning Disabilities Assn of America Supports for children w/learning disability & their educators
Learning Disabilities Online y español; Info & resources, including ADHD
Learning Zone (Child Development Institute) Learning styles, Learning disabilities - U.C. Irvine & others
Misunderstood Minds PBS-sponsored.  Includes exercises to experience learning disabiliy first-hand
National Ctr for Learning Disabilities Info & advocacy for parents & teachers of kids w/learning disability
Understanding LD - FAT City Workshop & Transcript purchasable video Social experience of LD
Understood.org Learning & attention issues. Empowers parents of kids 3 to 20 w/tools to succeed.

Legal Support

Literacy/Reading
Book Adventure Online reading club for kids KG - 8th grade (some is free-of-cost)
Books Build Connections Toolkit American Academy of Pediatrics; for families and providers
Bookshare Online library of digital books for people w/visual, physical or learning disabilites
Children of the Code: Videos A project of multiple interviews w/world-renowned experts on current illiteracy crisis
Get Ready to Read! Helps educators, parents & young children develop early literacy skills
Health Literacy Ability to understand & follow basic health info; this NNLM site provides links to multiple others
Health Literacy: Ask Me 3 A quick tool to improve health communication between patient & provider 
Literacy NOW Online Resources Supported by Tacoma Community House; tutoring & other aids
My Storybook Children create their own virtual illustrated storybooks, with guidance.
Reach Out & Read Literacy materials for providers and families
Reach Out & Read Guide for families of kids with developmental disabilities Addresses autism, intellectual disability, othres
Reading Rockets Teaching reading, and Helping struggling readers
Seattle Public Library programs Storytime (many languages), parent help, summer learning,, homework help
The Children's Reading Foundation National organization giving direction on building early readers;

Medical Home
Building Your Medical Home Tool kit from the AAP
Defining the Medical Home Patient-centered Primary Care Collaborative
Child Health Notes WA State Medical Home Tool for partnership-building of families with providers
Medical Home - National Main site for "Medical Home"
Medical Home - Washington State y español WA State chapter of national Medical Home

Medical Procedures Safety
CT Scans in children - Radiation Risks National Cancer Institute
CT Scans for head injury in children HealthyChildren (American Academy of Pediatrics)
Image Gently
Imaging safety in children Q & A (CT scans, other radiation; a collaborative of universities, others)
PASS Clinic Seattle Children's Hospital: Pre-Anesthesia Surgical Service)
Smart Tots
Anesthesia safety in children Q & A (a collaborative of the FDA and IARS)

Medication - Psychiatric
Antidepressants in kids: FDA statement Risks & guidelines
CDER (Center for Drug Evaluation and Research) FDA site. Multiple drug topics
Facts for Families Guide American Academy of Child & Adolescent Psychiatry - Multiple topics
Marijuana, Medicinal - Patient Information WA State Dep't of Health laws regarding prescription
Medical Assistance Tool free or low-cost medication access via PHRMA
MedlinePlus NIH tool; Search 'health topics' or 'drugs & supplements'
Micromedex Use Search option for a specific medication (PASSWORD REQUIRED)
Parent's Guide to ADHD Medications Child Mind Institute
Parents' Med Guide ADHD & Depression. Info for parents about medication warnings
Pill-swallowing Guidance to kids, parents & professionals; Northshore Long Island Jewish
Psychiatric medications in kids Orange County Psychiatric Society: General overview
Psychiatric medications in young children Video 1-hour presentation from 2019, J. Rebecca Weis, MD (Child/Adolescent Psychiatrist, NYU)
UpToDate Use Search option for a specific medication (PASSWORD REQUIRED)

Mental Health & Wellness
Behavior Analysts - finding an "A.B.A." or related certified therapists Behavior Analyst Certification Board
Behavioral Health Organization (BHO) Mental Health coverage by county for people with WA State Medicaid
BiteBack For tweens/teens. 'Mental fitness' via online cognitive-behavioral strategies. (Australian Dep't of Health)
Calm Together A variety of meditations, stories, music, and exercises to help promote sleep & calm
Care Guides (Multiple conditions) Seattle Children's Hospital PAL line guides for primary care providers
Character Strengths - VIA Aims to improve quality of life via identification/application of Character Strengths
Center for Human Services Shoreline; Provides mental health, Parenting training, Family activities, other
Child Mind Institute Quick-reference expert help on common mental health & learning disorders, parenting
Choosing a therapist: Advice for Selecting a Psychologist Society of Clinical Child & Adolescent Psychology
DSHS (WA State Dep't of Social & Health Services) Select 'Mental Health & Addiction' tab
DSM-5 value & limitations APA President Dilip Jeste, MD & NIMH Director Tom Insel, MD
Effective Child Therapy From ABCT. Effective therapy approaches based on disorder
Greater Good Well-being. Gives exercises & videos on Mindfulness, Compassion, etc. U.C. Berkeley
Healing Hearts Counseling (Tacoma): HopeSparks Sliding scale, available to Pierce County
Healthfinder Many useful links; U.S. Dep't of Health & Human Services
Imagine - Behavioral & Developmental Services Accepts Medicaid; Seattle, Tacoma, Spokane; ABA, CBT & DBT (kids & adults)
Insurance Coverage for Mental Health services in WA State Guidelines prepared by Seattle Children's
IntelliCare This research project has online CBT apps to target common causes of depression & anxiety (Northwestern U. & NIH)
Kent Youth & Family Services Kent; Counseling, Parenting classes; Preschool; LGBT youth support
King County Mental Health Services Guide to available King County services
Mental Health (King County-PLUS) Dept of Community & Human Services, Behavioral Health & Recovery
Mental Health Information WA State DSHS - DBHR (Dept of Social & Health Services). Directory
Mental Health Initiative For pediatricians (AAP), w/toolkit, resources,Rx info, & other supports
Mindfulness Activities for Children & Teens PositivePsychology; 25 activities, guided, some cartoons. Courtney E, Ackerman, MSc.
Mindfulness - Guided Meditations UCLA Mindful Awareness Research Center; Includes an app,Videos and other resources
Mindfulness - Still Quiet Place Amy Saltzman, MD. Audio and Video exercise samples
Mindfulness Resources Articles, Links & Apps. Site of Mark Bertin, MD. See also Greater Good
MoodGYM Interactive online cognitive-behavioral program to prevent & decrease depression
myCompass For adults. Interactive online cognitive-behavioral program to build resilience & wellbeing (Australian Dep't of Health)
Navos Mental Health Solutions Service for people near or below poverty in King County
Northshore Youth & Family Services Bothell and neighboring; Counseling, Parenting classes, Other
Partnership Access Line and Care Guides Phone-based mental health consultation system for providers, funded by DSHS thru Seattle Children's
Pediatric Integrated Care Resource Center For providers; links medical w/behavioral/mental health services
Provider List for Children & Youth King County Mental Health [select 'Filters' & select 'Youth']
Psychosocial Resources for Seattle Children's Hospital patients Accessible only from computers in the hospital
Referral - Mental Health Agencies Seattle Children's Hospital listing Feb 2011
Referral database - Psychiatric Outpatient (children & adult) Source: UW Psychiatry
Referral database - Psychiatric by specialty (children & adult) Oct 2011. Source: UW Psychiatry
Referral database WA State community mental health providers Seattle Children's Hospital listing Feb 2011
Renton Area Youth & Family Services Renton; Counseling, Parenting classes, Case Management
Ryther Therapy, Counseling, Parenting, Psychiatry, Sub-acute inpatient; In Seattle, Bellevue & Mukilteo
Seattle Children's Home Programs for families w/ & w/o a child w/disability, including parenting, out- & in-patient
Seattle Counseling Service LGBTQI community
Self-help online CBT modules "InfoPax" Centre for Clinical Interventions (Gov't of W. Australia Dept of Health)
Sound Short- and long-term mental health and related services throughout Puget Sound for youth & adults; ethnic & cultural diversity
Sound Advice on Mental Health American Academy of Pediatrics; Audio; Multiple topics
Substance Abuse & Mental Health Services Administration (SAMHSA) y español US DHHS for behavioral health
Taking Charge of Your Health & Wellbeing U. Minn. Bakken Ctr. for Spirituality & Healing. Online evaluation & guide.
Therapeutic Health Services Substance dependence/Recovery & Mental health; Multiple King County & Everett locations
Washington's Mental Health Referral Service for Children & Teens Matches families to nearby licensed providers who accept their insurance
WISe (Wraparound w/Intensive Services) WA State BHA; Comprehensive behavioral health services to Medicaid-eligible youth
Women's Mental Health: Reproductive psychiatry resource & info. center MGH; pregnancy & post-partum
Youth Eastside Services (YES) Eastside King County (counseling & treatment); families and youth

Mental Retardation

Neural Tube Defects/Spina Bifida
Guidelines for the Care of People w/Spina Bifida Spina Bifida Association
Myelomeningocele Seattle Children's Hospital neurosurgery site on this condition, w/links to info + resources
Spina Bifida Association National non-profit. Education, advocacy, research, resources

Neuroscience Education for Families
Brain Facts For kids KG - 12th grade about brain & behavior [Society for Neuroscience]
Brain from Top to Bottom
 For all kids/families. Diagrams.Many topics [Canadian Institutes of Health Research]
Neuroscience for Kids (and families) Award-winning site to explain brain & developmental conditions

Nutrition, Eating, Feeding
Autism & restrictive eating Reasons kids w/ASD restrict & strategies to manage. Includes VIDEO
Best Bones Forever
US Govt site for bone health for girls & young women
BodyWorks Free program for overweight girls 9 to 13 years. Available in western WA hospitals.
ChooseMyPlate with a "SuperTracker" US Govt site, w/online dietary & physical activity assessment tool
Eating Disorders American Psychiatric Ass'n consumer info
Eating Disorders: Anorexia, Bulimia & Others American Academy of Pediatrics info for parents
Eating Disorders: Overview y español National Institute of Mental Health consumer info
Eating Disorders Programs Seattle Children's multidisciplinary team for awareness, education & resources
Ellyn Satter Institute Multiple issues for different ages, including general guidance and picky eaters
GirlsHealth.gov Program of the US Dep't of Health & Human Services on health, nutrition
Glycemic Index University of Sydney site. Explains Glycemic Index (G.I.) & load. Database of G.I. of specific foods.
Healthy Eating Strategies (for parents, teens, kids) to build healthful eating habits; Nemours/
NutritionData Funded by advertisers, but uses USDA data. Provides visual graphics & tools to determine food values
Nutrition resources UW info for kids with special needs and others
Obesity cartoon "The Real Bears" Polar bear commercial spoof & consequences of sugar soda by CSPINET
Obesity Program Seattle Children's
Oley Foundation For patients dependent on home intravenous nutrition & tube feeding; Education, advocacy, & networking.
Parent's Guide to feeding behavior problems by Autism Speaks, but applies to all children with eating behavior problems

Organizing Medical & School Documents
See Care Coordination Link to this website's section on Case Management
Care Notebook Children w/Special Healthcare Needs; Downloadable organizer to share w/clinicians & school

Pain
Pediatric Pain - Science Helping Children Dalhousie University site for pain info for kids, parents and clinicians
Seattle Children's Hospital: Pain Medicine One of few US children's hospitals to offer wide variety of pain control options

Parenting Skills Support
Aha! Parenting Scenarios, Q&A, VIDEOS by age group; Laura Markham, PhD (no academic affiliation)
American Academy of Pediatrics: "Healthy Children"
 Search by topic
Behavior Support Team (BeST) In-home 12-week guidance; King County families of kids in DDD w/disability.
Books on Parenting/Discipline Listing of suggested published books
Caring for Your Newborn Video y español 35-minute video by Mount Sinai, demonstrating how to promote infant development, and answers to common questions
Center for Effective Discipline Alternatives to spanking. Agency based at Winona University
Center for Effective Parenting y español 0-5 años y 6-18 años Handouts on wide variety of interests regarding Infants & School-aged kids (U. Arkansas)
Child & Adolescent Treatment Center Multi-disciplinary specialty ctr. Not cost-free. Includes parent training.
Child Development Institute U.C. Irvine & other; Parenting, Milestones by age, Temperament
Child Welfare League of America (CWLA) Parenting resources
Children's Home Society: Family Support
Many services, helps the whole family succeed. Low or no-cost.
Cooper House y español Prenatal to 5 years (social, emotional, behavioral challenges). Access regardless of abilty to pay
Development & Behavior Resources Search by topic thru "Your Child" of U. Michigan
Developmental Timeline From Talaris Institute's 'Parenting Counts' site; Details 0-5 years on four domains.
Family Preservation programs Links to programs including parenting supports for at-risk families
Incredible Years Carolyn Webster-Stratton, PhD nationally recognized program
KidsHealth Medical and other info for families
Lives in the Balance Dr. Ross Greene's Collaborative Problem Solving for behavior challenges (w/Videos)
Parent-Child Home Program (Seattle site) Home visits for early learning & parenting; Lower income & immigrant families.
Parent-Child Interaction Training (PCIT): Provider database National website's database of regional providers
Parent-Child Interaction Training (PCIT) Free parent training for parents w/ 3- to 7-year-olds w/serious behavior problems. Español.
Parent Map NOTE: Non-professionally refereed resources for Puget Sound families
Parent to Parent y español The ARC WA State; support for parents of children with special needs
Parent Training Programs 4 key components to successful training, from CDC meta-analysis (2010)
Parent Trust for Washington Children Education and support for parents
ParentHelp 123 - Resource Finder Parenting resources in WA State by region; A service of WithinReach
Parenting Classes by King County neighborhoods Database by Family Law CASA
Parenting Classes - Seattle Community Colleges North, Central, [Email: parentchildcenter@seattlecolleges.edu] & South
Parenting Classes database Puget Sound Adlerian Society; Link to The Parenting Calendar; updated quarterly
Parenting Classes (Seattle Children's) Patient and Parent Groups w/Psychiatry & Behavioral Med. (anxiety, ADHD, etc)
Parenting Classes (Tacoma): Hope Sparks Uses 'The Incredible Years' approach
Parenting Coach Understood.org tool for parents. Enter your child's age & the specific behavior challenge.
Parenting for Lifelong Health - low-resource communities World Health Org. parenting manuals (birth thru adolescence) for parents & facilitators
Parenting Pyramid The Incredible Years; graphic pyramid of paret skills & child benefits
Parenting Styles Descriptions & outcomes: 4 classic (Baumrind 2x2 table) parenting styles
Play Nicely VIDEO Manage hurtful behavior in young kids; English y español; parents & providers (APA, AAP & NAEYC)
Positive Behavior Intervention & Supports in the Home WORKBOOK produced by Behavior Solutions
Positive Parenting (Nemours Foundation) y español Multiple topics
Positive Parenting Tips CDC resource; categorized by age groups (infancy through adolescence)
Positive Parenting Toolkit Prepared by Ctr for the Education & Study of Diverse Populations
Private Providers list for parenting training Fee-for-service; The list requires password from Dr. Zinner
PURPLE Crying The period in newborn life of increased crying - learn why & what to do
Puget Sound Adlerian Society Many helpful services
Resilience, Building resilience in children AAP guide based on "7 Cs" as conceived by Kenneth Ginsburg, MD
Resilience Guide for Parents Helps parents build child's resilience; from American Psychological Ass'n
Seattle's Child Multiple resources
Seattle Children's Home Via navos, "BeST" (Behavior Support Team) to King County families. 1-800-318-KIDS
Spanking - 10 Reasons Not to Hit Your Child & 8 warnings Dr. Sears; includes Biblical interpretation
Spanking - Global Initiative to End All Corporal Punishment of Children UNICEF & other global agencies
Spanking - US Alliance to End the Hitting of Children Resources for pediatricians and caregivers
Think Kids & Demonstrations: Videos Ross Greene: Explosive Child. Collaborative Problem Solving
Triple P (Positive Parenting Program) Based on 5 principles. Online modules (NOTE: fee required)
Triple P - Stepping Stones for parents of a child with a disability. Online modules (NOTE: fee required)
Wellspring Family Services Parenting guidance on emotional development (infants & toddlers)
Zero To Three Families & professionals - healthy development of infants & toddlers; See 'tips & tools' for challenging behaviors

Parents with Disabilities
Through the Looking Glass Services, referral & resources for the 15% of all U.S. parents who have disabilities

Premature infants
Infant Development Follow-up Clinic University of WA developmental follow-up; birth-to-5 years
Neonatal Follow-up Clinic Mary Bridge Children's Hospital (Tacoma); birth-to-3 years

Preventive Care, Early Learning, Anticipatory Guidance & Health Promotion
Ages & Stages American Academy of Pediatrics, HealthyChildren.org (prenatal to young adult)
Association of Maternal & Child Health Programs (AMCHP)
 Info on 'Title V' & resources
Born Learning Helps parents & other caregivers turn everyday moments into fun learning opportunities
Bright Futures Health promotion tools for families and primary care providers
Center for Developing Child VIDEOS Harvard U; Brain Architecture, Mental Health, etc. Jack Shonkoff, MD
Child Development Tracker Birth to 8 years tracking of developmental streams
CHILD Profile WA State health promotion materials and immunization registry
Dept of Children, Youth & Families (DCYF) WA State early learning educational services
Developmental Milestones screens Birth thru high school (Understood.org)
Developmental Milestones Videos y español iyo Soomaali MN Help Me Grow; Narrated, w/ typical motor, communication, social, & cognitive milestones (Birth thru 5 years)
Home Visiting DCYF. For expectant parents & families w/young children to build physical, social, & emotional health
KidsHealth Medical and other info for families
Learn the Signs. Act Early. CDC website of developmental milestones w/interactive tools for parents
Medical Home Ideas for accessible, continuous, family-centered, coordinated, culturally effective care
MedlinePlus Health Information NIH resource database with easily accessible info
National Ctr on Birth Defects & Developmental Disabilities CDC site promotes well-being for people w/disability
National Institute of Child Health & Human Dev't: A-to-Z topics NIH: Multiple children's health topics
Pathways Awareness Foundation Early detection & treatment of motor delays. Many languages
PEDS Child Dev't Screening Test Parental screening of 0- to 8-year-olds. NOTE: Charges a fee
Physical Developmental Delay Screener "What to look for" Tool by the AAP & CDC; Birth to 5 years old
Regression & Touchpoints NPR interview with T. Berry Brazelton, MD, describing the normal periodic regression in skills followed by a burst of new skills
Resilence Project, The AAP program for families and practitioners to protect against toxic stress
Talaris Research Institute Supports caregivers in raising emotionally healthy children. NOTE: Sells products
Text4Baby y español Weekly text message to pregnant woman & new moms w/info on baby's health
Vroom y español Bezos Family Foundation; infants to teens (everyday activities to build intellectual and socail skills)
Watch Me! Celebrating Milestones & Sharing Concerns y español CDC free training modules

Race, Racism, & Ethnicity
Beyond the Golden Rule Children's book by Teaching Tolerance, Southern Poverty Law Center
Embrace Race
Multiracial community of parents, teachers, experts, & others to meet the challenges that race poses to children, families, & communities
Talking About Race Guided exploration for teachers, parents/caregivers, & humanity; National Museum of African American History & Culture/Smithsonian
Talking to Children About Racism: The Time is Now American Academy of Pediatrics
Teaching Tolerance Resources for teachers, administrators, counselors for KG - high school, for inclusive communities; Southern Poverty Law Ctr.

Recreational Activities
Ability Online Monitored site where young people w/disability make friends & mentors in an atmosphere of collaboration
Activities and Fun Online non-TV activities for families of kids through 6th grade
Adaptive Sports & Recreation Directory Seattle Children's Hospital directory (version March 21, 2017)
Adaptive Sports & Recreation: Tacoma Children & adults. Serves people w/physical disabilites.
Beep Ball Clubs of WA State Balls beep and bases buzz (includes beep kickball)
Boys & Girls Club Youth facilities/activities w/professional staff. Services sliding fee & available to all.
Challenger Baseball: League finder Team baseball for kids w/range of disabilities; enter your zip code to find
Challenger Baseball/Pacific Little League Team baseball for kids (Edmonds & Lynnwood) w/range of disabilities
K - 12 Resource Guide (U. Washington) U.W.-sponsored activities (many are free) sorted by interests & age
Mobility International USA International exchange/travel for people w/disability
Northwest Center Teen Program "When Seattle Public Schools are closed, the center is open." Naturalistic social experiences.
Outdoors for All Regional outdoor activities for kids & adults (age 5+) w/physical, sensory or cognitive disability.
PARKS & RECREATION - SPECIALIZED PROGRAMS
(for children & adults w/disability & of all ability):
___Bellevue Parks & Community Services: Adaptive Recreation
___Everett Camp Patterson Daycamp for kids 5 & older w/developmental or physical challenges. Low-fee. Scholarships.
___Issaquah Parks & Recreation Specialized Programs Low & no-fee. Year-round.
___Seattle Parks & Recreation Specialized Programs ages 4 years-adult. Low & no-fee. Scholarships. Year-round.
___Tacoma MetroParks Specialized Recreation
PlayGarden 1-acre fully fenced garden in Seattle. Provides kids of all abilities an accessible place to play. 
Save the Children During Coronavirus/COVID-19, provides Play & Academic activities (Pre-K thru 6th grade levels)
Seattlle Adapative Sports Ages 4 thru adults. Low-fee. Scholarships available. Serves people w/physical disabilities.
Simple Activities for Children & Adolescents National Child Traumatic Stress Network
Special Olympics Washington
Year-round sports training & athletic competition to people w/intellectual disability 
Summer camps & programs for WA State children w/special needs Seattle Children's site
Teen Portal Seattle City database to connect teens to programs, events, jobs, homework help, music, other
Theater of Possibility Uses theater to explore self. Welcomes those w/autism, ADHD & other learning differences. Partial scholarships available
Toy Foundation Toys & grant funding to children's charities
VSA Learning through & participation in The Arts for people w/disabilities
ZAC Browser Activities for kids, commercial-free and distraction-reduced.  Autism & general appeal

Respite
Crisis Support Link to section on this website
National Respite Locator Search by location & match by your specific needs

Screens & Screen Time

Sensory Integration
Referral List for Sensory Clinics - Greater Seattle Occupational Therapy programs (as of Nov. 2019)

Sexuality & Gender
Advocates for Youth For youth, professionals & parents. Advocacy & support to make responsible choices about sex & reproductive health.
Birds + Bees + Kids Non-refereed site of Seattle-based professional. Provides advice, resources & workshops
College: LGBQT-friendly colleges & student resources service of Affordable Colleges Online
DIVERSE FAMILIES: Kids' books & Creating welcoming early childhood for LGBTQ-headed families US-DHHS
FLASH (Family Life & Sexual Health curriculum) Lesson plans for youth w/ & w/o special needs. King County Public Health.
Gay-Straight Alliance Network Connects school GSA's to each other via training, peer support, other
Gender Clinic - Seattle Children's Hospital 1 of only 5 such clinics in the U.S.
Gender Development in Young Kids, Healthy Guide for programs & professionals (Early Childhood Nat'l Ctrs)
Gender Diversity awareness and well-being of range of gender variations in children, teens, adults
Gender Health Program Tacoma/Mary Bridge Children's Hospital; Management of gender dysphoria & transgender
Gender Spectrum Supports gender-sensitive & inclusive environments for children & teens
GLSEN Assures school communities respect everyone regardless of identity/expression
Great Conversations Presentations on puberty, sexuality, parenting; Scholarships available (206) 789-2306
Healthy Bodies Toolkit: Parents' Guide on Puberty for Girls/Boys with Disabilities y español Vanderbilt University
NW Network y español Individual support & groups in Seattle for queer & trans youth
PFLAG Promotes health & well-being of gay, lesbian, bisexual & transgender persons, families & friends
Practitioner's Resource Guide: Helping Famlies to Support Their LGBT Youth SAMHSA booklet 2014
Sexual Orientation & Youth: Just The Facts A.P.A. resource for school principals & other educators
Sexuality Across Lifespan: Children & Adolescents w/Developmental Disabilities y español Workbook; DHHS, 2011
Sexuality & Developmental Disability: A Guide for Parents 15-page guide from teachingsexualhealth.ca
Sexuality Education for Students with Disabilities y español Center for Parent Information & Resources
SIECUS (Sexuality Info & Education Council of the U.S.) Comprehensive evidence-based sexual info & support
Student resources & support: LGBTQ Creating welcoming environments for teens & college students
Students & Gender Identity: Toolkit for Schools USC Rossier Online guide on communication, inclusion, glossary
Transgender Children - Supporting & Caring American Academy of Pediatrics & HRC
Welcoming Schools HRC; Prof. dev't to elem. school educators on diverse families & students, gender-inclusion, bullying

Siblings
Sibling Rivalry & Sibling Abuse & Sibling w/special need ("Your Child" topics of U. Michigan)
The Sibling Support Project Sibs of kids w/disabilities. Seattle-based national program. Workshops & other resources

Sleep
Autism - Sleep tool kit for parents Autism Speaks resource
CBT-i Coach Designed initially for veterans, this "app" uses cognitive-behavioral therapy to treat insomnia
Frequently Asked Questions (FAQ) Boston Children's Hospital Sleep Ctr. "Q & A" by child age (from infants thru teens)
National Sleep Foundation Many helpful topics
Pediatric Sleep Council Advice by national sleep experts, directed by topic and age
Sleep Channel Many topics.  Monitored by Sleep M.D. specialists
Sleep duration nightly needed, by age American Academy of Sleep Medicine (2016 consensus statement)
SleepEducation Sleep health info from American Academy of Sleep Medicine
Sleep for Kids: Teaching Kids the Importance of Sleep Child-friendly site by the National Sleep Foundation

Smoking Cessation
American Academy of Pediatrics: Richmond Center Quitting support, & education on 2nd- and 3rd-hand effects
American Lung Association - Smoking Cessation Behavioral & medical counsel
Quitline - Washington State Call 877-270-STOP or 877-270-7867
SmokeFree y español US Government site, w/ links for teens, vets, women, seniors on quitting & prevention
Truth Initiative Online sources to prevent smoking/vaping & to help quit

Social Skills
Aspiring Youth Nationally accredited program affiliated w/Ryther; programs throughout greater Seattle
Best Buddies
Global volunteers for 1-to-1 friendships, employment & leadership for youth & adults w/intellectual & developmental disabilities
Improve Your Social Skills Non-refereed; w/Dan Wendler {TEDx speaker}. Coaching via Skype. Fee negotiable.
P.E.E.R.S. Play Kids 3 to 13 years of age. Green Lake area. Limited scholarships may be available.
Resources for teaching social skills Developed by the UW Autism Center & a private SLP
Social Thinking Toddlers thru adulthood  (neurotypical & atypical). Based on Michelle Garcia Winner

Speech & Language
American Speech-Language-Hearing Assn: Typical Development Consumer-oriented info
Auditory Processing Disorder: Simulation Audio simulation (Sound Skills, New Zealand)
Augmentative & Alternative Communication
Enhance communication in non-verbal or related disability
Augmentative & Alternative Communication Evaluators Database of WA State providers (August 2020)
Bilingual Homes Myths & Facts about bilingual children learning language (AAP)
Childhood Apraxia of Speech Assoc. of N. America (CASANA)
Childhood Apraxia of Speech (CAS) VIDEO for Parents Dr. Edythe Strand, Emeritus Professor, Mayo Clinic
Communication Matrix Tool for parents, teachers, clinicians to plan communication strategies & track progress
Early Life Speech & Language classes Cost-free WA State parent group classes to build language in kids 2-7 years
Helping Toddlers Expand Language Skills y español For children 0 to 5 years; Child Mind Institute
How Do Children Hear & Talk For children 0 to 5 years; ASHA
National Institute on Deafness & Other Communication Disorders NIH agency, w/info on voice, speech & language
Pediatric Speech, Language, Communication Evaluators/Therapists Database of WA State providers (March 2020)
Printouts on common speech/language concerns Available only thru Seattle Children's intranet Multiple topics for parents
Stuttering

Television, Internet and other Media
Center on Media & Child Health Boston Children's Hospital - ideas for appropriate media use
Children and Media PBS, Multiple videos addressing how to use media/screen time w/kids 
Common Sense Media Guidance for parents, teachers & policy-makers on using media & technology wisely
Create Your Family Media Plan Healthy Children y español. Step-by-step online approach builds your plan
Early Care and Education Trainings for Professionals; Center for Public Health Nutrition" U. Washington
Media & Children Communication Toolkit AAP site y español w/guide to calculate screen time
Media Education: What Parents Can Do Audio & written discussions on many topics - HealthyChildren.org
Screen Smart Guidelines Easy-to-use guidelines based on child's age, by the late Kimberly Young, PhD

Temperament
Infant-Toddler Temperament Tool (IT3) Parent online tool; Birth to 3 years (Georgetown)
"Preventive Ounce" Parent completes profile of her/his child 4 months thru 12 years
Temperament & Personality 9 temperament traits by Chess & Thomas
Understanding Behavioral Individuality Run by psychologist; a clearinghouse.

Tic Disorders/Tourette syndrome & Stereotypies

BEHAVIOR MANAGEMENT FOR TICS:
CBIT: Tic Management 101 for Parents VIDEO Tourette Ass'n of America featuring Doug Woods, PhD
CBIT VIDEO (in English y español) Tourette Ass'n of America, w/ Dr. Woods
CBIT VIDEO Seattle KOMO news w/Dr. Wiegand (Seattle Children's psychologist)
*Providers of CBIT (Comprehensive Behavioral Intervention for Tics):
_ Bellevue Tana Carpita, MSW, LICSW
_ Bellingham Katharine Botelle Wolhart [Sendan Center]
_ Burien Hilda Campbell, PhD
_ Gig Harbor Diana Dean, MA, CCC
_ Issaquah Leafar Espinoza, PhD; Lisa Shaw, PhD
_ Seattle Lisa Barrois, PhD; Amy Bohlander, PhD; EBT Centers; Suzanna Eller, MA, LMHC; Matt Hopperstad, MD; Rachel Montague, PhD (Brooks Powers Group);
Geoffrey Wiegand, PhD; Seattle Clinic (Andrew Fleming, PhD & Julia Hitch, PhD)
_ Yakima
Renee Slaven, LICSW
_ United States US providers

Habit Reversal Therapy guidelines Behavioral guidelines to eradicate habits. U. Missouri
TicHelper Online fee-based 8-week behavior management of tics; Requires Google Chrome.
Tic Management Toolbox Child & Parent Resource Institute; features Duncan McKinley, PhD

BEYOND BEHAVIOR MANAGEMENT FOR TICS:
Aggression in Tourette- treatment:Video-1 and Video-2 A collaborative approach (medical & behavioral)
Centers for Disease Control and Prevention Tourette portal w/info for families & providers
Classroom management of Tourette Tourette Assn of America - Multiple topics
Flying Anne: VIDEO Documentary of 11-year-old girl ("day in the life of" approach) 21 min, Netherlands 2010
Medication, A Consumer's Guide to Tourette Syndrome Medications TSA, 2008
Newly Diagnosed: Video Part 1 & Part 2 & Part 3 & Part 4 w/John Walkup, MD; For parents (2012)
PANDAS Fact Sheet: IOCDF & Fact Sheet: NIMH; (What is PANDAS/PANS?) & Diagnostic Flow Chart: PANDAS APPN
PANDAS Q&A NY Times featuring Drs. Leckman & King responses to concerns about "PANDAS"
School Care Plan in Tic Disorders WA State government-sponsored accommodations in Tourette syndrome
Stereotypies & Motor Stereotypies & You VIDEO Johns Hopkins info for families
Stereotypies behavioral treatment VIDEO Brief overview; Full program sold (FOR FEE) by Johns Hopkins
Support Groups Tourette Association database
Tourette Association of America National organization.  Support for kids, parents & educators.
Tourette Association of America - YouTube Channel Lectures, anecdotes, other. Maintained by the Ass'n.
Tourette Syndrome Module Diagnosis & management for families, thru Utah Medical Home
Tourette Syndrome: Minimizing Confusion Blog by Neuropsychiatry Clinic, British Columbia Children's Hospital
Tourette's Podcast Weekly talk w/adults w/Tourette, featuring journalist Ben Brown. Not peer-refereed.

Toilet Training - special
Learning to use the toilet Presented by Zero to Three, provides guidance to caregivers of a typically developing toddler
Parent's Guide to Toilet Training in Autism (ATN/AIR-P) Autism Speaks downloadable guide
Toileting Chart w/picture icons TEACCH (U. North Carolina, presented by CDC)
Toileting Picture cards Do2Learn
Toilet training children with Autism Spectrum Disorders Vanderbilt guide
Toilet training children w/behavioral difficulties Brochure, audio experts, other; Fragile X Foundation.
Toilet training children w/special needs American Academy of Pediatrics
Toilet training children w/autism & developmental disabilities Video (Mendy Minjarez, PhD, Seattle Children's)
Toilet training children w/autism & other disabilities w/Video (Jennifer Ledford, PhD, Vanderbilt U)

Trichotillomania
Trichotillomania Learning Center Grassroots agency w/scientific advisory board. Referral, general info, other

Tutors free or low-cost
Reading Partners National Americorps program providing students with individualized reading support to read at grade level by 4th grade
Riverways Education Partnerships K-12 outreach program connects UW undergrads w/students for 1-on-1 tutoring; TEL: (206) 616-2302
Teen Resource Hubs Seattle Parks & Recreation; Mon-Fri, 8:30AM-5:30PM; provides lunch daily; 7 locations
Together Program
Students helping students, Youth helping youth. "Bring your schoolwork, we will help you with it"; Seattle-based
University Tutors for Seattle Schools
 "Any classroom, Any curriculum, In person & remote"; Elementary-thru-High School
UW College of Education Community Board Allows you to post or view announcement for tutors
YMCA: Seattle, Pierce, Snohomish Full-day options for school-aged, to stay focused/on-task during remote learning; Has social enrichment, peer interaction, physical activity
Youth Tutoring Program (YTP) Thru CCS; Individualized tutoring 1st-12th graders within families facing financial need, racism, & limited English proficiency

Vaccines
Autism and vaccines: Q & A Clear answers and smart advice from author/pediatrician
Autism-Vaccine Myth Video NOVA PBS television program to help public understand what happened
Childhood Immunization Support Program American Academy of Pediatrics
Immunizations - Multiple Q & A American Academy of Pediatrics
Institute for Vaccine Safety - Bloomberg School of Public Health Independent vaccine assessment
MMR Safety Guide for health providers from King County addressing retracted fraudulent research (2011)
National Immunization Program Centers for Disease Control and Prevention
National Network for Immunization Information For families & providers. Includes school-entry vaccine requirements
The Vaccine War: Video PBS 1-hour program. Examines the debate between scientists and populist coalition
Vaccinate Your Family Hosted by Every Child By Two, project of former First Lady Rosalynn Carter
Vaccine Beliefs and Concerns CDC website
Vaccine Education Center Children's Hospital of Phildelphia
Vaccine Info for the Public & Health Professionals Immunization Action Coalition. Vaccine importance & safety
Vaccine Safety Q & A Paul Offit, MD highlights - 2014 annual meeting (American Academy of Pediatrics)
Vaccines Don't Cause Autism Video Aaron Carroll, MD Director - Ctr. Health Policy & Professionalism Research, Indiana U.
Vaccines: Separating Fact from Fear: Video CHOP featuring Paul Offit, MD
Vaccines & Your Baby: Video CHOP film, describing vaccines & the diseases they prevent

Vision

samuel.zinner@seattlechildrens.org
Last modified: 12/1/2020