SCREENING & SURVEILLANCE

TOOLS & GUIDELINES
Database of tools: DISABILITY MEASURES Website of database to multiple free disability evaluation tools
Developmental Surveillance and Screening Algorithm

AAP & Medical Home guides with "click-on" to find specific tools 
Developmental Screening & Assessment Instruments: NECTAC (Nat'l Early Childhood Technical Assistance Ctr.)
Comparison Table of instruments (2008)for kids birth to 5; emphasizes social/emotional
Developmental Screening for Healthcare Providers
CDC site provides Overview, "how to" tables, & links screening tool links
Screening Tool Finder STAR Center (AAP's Screening Technical Assistance & Resource Ctr.)
Screening Tools Table
Pediatrics table of 20 instruments, with Description; Age range; Administration time, Cultural info, etc.)
Statistics in Plain English Shows "bell curve" w/comparisons of T-score, %, standard scores, scale socres
Symptom Checker - electronic Child Mind Institute tool for parents (may help clinicians)

Abuse & Neglect
Practicing Safety AAP modules to identify risk & help w/prevention

Adolescence
CRAFFT y español o enlace directo está aquí̇́ Alcohol & drug screening; CRAFFT website
HEADSS Adolescent psychosocial assessment
Adolescent SBIRT Toolkit for Providers Screening, Brief Intervention & Referral for Treatment for EtOH and Other Drug Use (Boston Children's Hospital)
S2BI (Screening to Brief Intervention) Quick, online NIH screening tool for substance use that triages the adolescent into level-of-risk group, and management
TeenScreen Primary Care Questionnaire overview for PSC-Y, PHQ-9 & CRAFFT

Aggression
Functional Analysis Screening Tool (FAST) Identify in verbal, social and/or cognitively impaired individuals if maladaptive behavior is maintained due to attention, escape, sensory stimulation, or pain. FAST website
Modified Overt Aggression Scale
Rate and track aggression

Anxiety
GAD-7 General Anxiety Disorder-7) Age 12+. Online self-administered & automatic scoring; 7 questions; Featured on MDCalc
Hamilton Anxiety Scale Children thru adults. Online clinician-administered & automatic scoring; 14 questions; Featured on MDCalc
PHQ (Patient Health Questionnaire)
& Scoring Self-administered adult screen for anxiety, depression, alcohol, eating. Many languages available.
Preschool Anxiety Scale
+ Scoring & Interpretation Adapted from Spence Children's Anxiety Scale. Download free.
SCARED (Screen for Childhood Anxiety-Related Disorders:Child Self-Report)
 Includes scoring
SCARED: Parent-Report Includes scoring
Spence Children's Anxiety Scale Includes scoring, parent- and child-versions, many languages

Attention-Deficit/Hyperactivity Disorder
Cardiovascular Screening:
Pre-stimulants cardiac screening checklist (per anonymous M.D. source)
Pre-stimulants treatment ECG findings: Table of recommendations (per April '08 American Heart Assn)
Pre-stimulants ECG: AAP response to AHA AAP

ADHD Clinical Screening Instruments:
SNAP-IV Rating Scale
SNAP-IV Scoring
SNAP-IV Color copy with instructions
SNAPDSM-5 version
SNAP & SWAN website Includes both printable instruments
AAP - Vanderbilt-ADHD Letter
AAP - Vanderbilt - ADHD Introduction
AAP - Vanderbilt - Initial Evaluation Form
AAP - Vanderbilt - Parent Form y español o enlace directo está aquí
AAP - Vanderbilt - Teacher Form
AAP - Vanderbilt - Parent Follow-up Form
AAP - Vanderbilt - Teacher Follow-up Form
AAP - Vanderbilt - Scoring Instructions
AAP - Vanderbilt - Scoring Sample
AAP - Vanderbilt - Cover Letter to Teachers
AAP - Management Plan Sample 1
AAP - Management Plan Sample 2
AAP - How to Establish School-Home Daily Report Card
AAP - Stimulant Medication Management
AAP - Does My Child Have ADHD?
AAP - Evaluating Your Child for ADHD
AAP - For Parents of Kids with ADHD
AAP - What to do for sleep problems and ADHD
AAP - Educational Rights and ADHD
AAP - Homework Tips and ADHD
AAP - ADHD Work with your child's school
AAP - Coding Fact Sheet for ADHD
AAP - Billing Encounter Form
AAP - Documentation for Reimbursement
AAP - ADHD Internet Resources
NICHQ - Vanderbilt forms & related Diagnosis, Treatment, Parent info & Resources forms

ADHD: Preschool-age
Preschool [ADHD rating scale-IV preschool version] Requires Password

ADHD: Adults
Adult ADHD Self-Report Scale Includes scoring instructions
Copeland Symptom Checklist Identifies 8 categories to gather cognitive, social, & emotional symptoms associated w/ADHD

Autism
Adult autism screening tools Via the ARC (Autism Research Centre). Multiple tools
Autism Screening Tool Kit for Primary Care Providers by Developmental Pediatrician Alison Schonwald, MD; Boston Children's Hospital
CAST Childhood Asperger Syndrome Test For youth 4 years - 11 years. Not standardized, but cut-off is suggested.
CSBS DP Infant-Toddler Checklist
3 - 24 months; Seven key predictors of later language/social delay or atypicality
Comparison in Dev't between Typical Kids and/or Kids w/Delays
Table (birth - 3), by Volkmar
"Detect Autism. Act Early"
: CDC Link for parents (and professionals)
DSM-5 Autism Diagnosis criteria
Empathy v Systemizing (for Adults) Simon Baron-Cohen's 4 screens that suggest autistic traits.
MCHAT and MCHAT official website screening for children 16 - 48 months of age
MCHAT-R/F Modified Checklist for Autism in Toddlers - Revised with Followup (2013); official website & online MCHAT-R/F w/instant scoring
First Signs screening tools link
Interview Template Interviewing parents along 3 domains (social, communication & interests)

Cerebral Palsy
Ashworth Scale-Modified & Original Scale Measure of spasticity & tone
Care Pathways AACPDM practical algorithm of guidelines for an aspect of care
Comparison in Dev't between Typical Kids and CP
Early Diagnosis of CP - Primitive and Postural Reflexes
GMFCS Illustrations of 5 levels (kids 6 to 12 years) Gross Motor Classification System
GMFCS Illustrations of 5 levels (teens 12 to 18 years) Gross Motor Classification System
GMFCS Gross Motor Classification System (2007 version)
GMFCS Video 7-min. video of the 5 classifications, from CanChild
Gross Motor Skills - Expected vs. Delayed/Deviant
HipScreen Phone app (free) for online measurement and monitoring of hips in kids w/CP
Hip Surveillance Australian Hip Surveillance Guidelines for children with CP (2014)
Hypertonia Assessment Tool (HAT) Research and clinical guide for grading hypertonia severity in kids. Free, but requires download. Dr. Darcy Fehlings of CP Discovery Lab in Toronto

Constipation
Bristol Stool Chart Picture and description guide to the 7 types of stool

Depression
CESD (Ctr. for Epidemiologic Studies Depression Scale) 20-item online self-report (teens & adults)
Montgomery-Asberg Depression Rating Scale
18 years and up; 10-item diagnostic questionnaire to assess changes with medication
MFQ (Mood & Feelings Questionnaire) Child self-report & parent-report versions. Free but must email for password
PHQ-9 (Patient Health Questionnaire) 9-item primary care scale for depression severity & treatment monitoring (background info on PHQ)
Severity Measure for Depression Adolescents 11 - 17 years, adapted from PHQ-9 modified for adolescents

Developmental Milestones - Typical
Ages & Stages birth-to-5 years (milestones) & birth-to-21 years (guidance) (HealthyChildren.org/AAP)
Cognitive Development birth-to-2 years
Cognitive Screening NIH Toolbox (requires iPad; ages 3-to-adult; Executive Function, Attention, Memory, Language
Cognitive-Motor: Draw-A-Person Test Goodenough-Harris Test
Development birth-thru-adolescence (Child Development Institute)
Development: Pathways birth-to-15 months (in English & multiple languages)
Developmental Milestones birth-to-24 months
Developmental Milestones birth-to-5 years (CDC/NCBDDD) w/Milestones In Action photos & VIDEOS
Developmental Milestones birth-to-6 years (7 categories). Source: Div. of Dev. Med, Seattle Children's.
Developmental Milestones birth-to-6 years (7 categories). Source: PIR (July 2010)
Developmental Milestones, reflexes & red flags birth-to-6 years (7 categories). PIR (Jan '16)
Developmental Milestones 1-month to 8-years (7 categories) (Council on Children w/Disabilities, 2012)
Developmental Milestones 1-month to 5 years (Child Mind Institute)
Gross Motor Development (typical v. delayed) birth-to-12 months
Integrating Developmental Screening into Primary Care Practice
Motor Development birth-to-2 years
Motor/Physical Development: Typical v. Atypical Cartoon videos, AAP; for parents
Multi-Media Developmental Screening birth-to-5 years Videos, Milestones, Other (Pathways.org)
PEDS Child Dev't Screening Test and online (free trial available) PEDS:DM (aka PEDS Tools) birth-to-8 years
Psychosocial Dev't birth-to-2 years
Reflexes Primitive reflexes (pictures + descriptions + age of disappearance) Bates' Guide
Speech, Play, and Physical Development birth-to-15 months

Drooling

Dysmorphology & Congenital anomalies
Human Pathology features photos; search by history or exam finding
Minor Congenital Anomalies Checklist of physical examination findings

Environment
Children of Alcoholics Screening Test (CAST) For kids & adolescents whose parent(s) may have alcohol abuse/dependence
Family Psychosocial Questionnaire by Kathi Kemper, MD, Boston Children's to assess family-based risk factors
StimQ: Cognitive Home Environment NYU tool for kids 5-72 months; measures home cognitive stimulation

Fetal Alcohol Spectrum

General Screening

Genetics and Metabolic Support
Gene Tests Medical genetics resources for clinicians
National Organization for Rare Disorders (NORD) NIH agency
Online Mendelian Inheritance in Man (OMIM) Info on all known Mendelian disorders
SimulConsult Computer program that provides differential diagnosis based on findings
Treatable Intellectual Disability Tool to identify treatable metabolic disorders. Download app

Infants
Developmental Skills Check for Children with History of Extreme Prematurity multi-media tool for physicians and nurse practitioners
Extremely Preterm Birth Outcomes tool NIH online tool providing risk for various Neurodevelopmental outcomes based on gestational age, birth weight, etc.
HINE (Hammersmith Infant Neurological Examination) 2 - 24 months; Early detection, diagnosis, prognosis of infants at high risk for cerebral palsy (FACT SHEET)

Medical Home
Child Health Notes WA State Medical Home resource for screening and surveillance generally and on specific topics
Well-Child Guidelines checklist for families to determine non-medical needs for kids with special needs

Movement & Coordination
AIMS (Abnormal Involuntary Movement Scale) Detection of Tardive Dyskinesia in patients taking neuroleptic Rx
AIMS - Instructions
ChildMuscleWeakness.org Neuromuscular Disorders (NMDs). Excellent for healthcare providers (videos, algorithms, etc.). Nat'l Task Force for Early ID of NMDs
CTIM-P (Child Tourette's Syndrome Impairment Scale: Parent report about child) Storch et. al 2007 [Password]
Developmental Coordination Disorder Questionnaire 5 - 15 year-olds (for parents)
MOVES Motor tic, Obsession & compulsion, & Vocal tic Evaluation Scale (Gaffney et al, 1994) [Password]
PUTS Premonitory Urge for Tics Scale
Tics Tools Comparison Tables: Screening for Tic and for Tics/Urges (Martino et al 2017)
YGTSS Yale Global Tic Severity Scale (Leckman et al, 1989)

Neurological

Oral Health

Post-partum Depression

Poverty & Child Health
Accountable Health Communities (AHC) Health-Related Social Needs Screening Tool Social determinants of health; determines unmet health-related social needs
Hunger Vital Sign & 11 languages 2 questions regarding food security
Screening Tools from AAP
Includes 5 separate tools

Psychosocial
Family Psychosocial Screen (website) Parental depression, Substance abuse, Domestic violence, Parental history of abuse, Social supports
Emotion Screening NIH Toolbox (requires iPad; ages 3-to-adult; age-dependent variables)
Mental Health Screening & Assessment Tools for Primary Care American Academy of Pediatrics
Pediatric Symptom Checklist
35-question parent proxy & youth (11 & older) self- report versions
Pediatric Symptom Checklist-17 17-question version & scoring
PROMIS for kids & adults. Measures physical, mental, & social health [Northwestern U. via NIH grant]
Strengths & Difficulties Questionnaire (website) 25-item parent+teacher+self behavioral screening [emotion, conduct, hyperactivity, peer problems, prosocial behavior] about 3-16 year olds. Many languages. Automatic scoring on website.
Survey of Wellbeing of Young Children From Tufts Medical Center; tools to screen social, family & developmental well-being for children 2 months to 5 years old. English, Spanish, Burmese & Nepali
WE-CARE Parent-completed screen: Well-child visit; Eval.; Community resources; Advocacy; Referral; Ed.

Quality of Life
Neuro-QOL for kids & adults w/neurological conditions [Northwestern U. via NIH grant]

Reading
Get Ready To Read readiness screening tool for 4-year-olds

Regression
Developmental Regression labs table Table of neurological regression conditions and screening labs

Sleep
BEARS Sleep Screening Algorithm
Children's Sleep Habits Questionnaire and Scoring Form and research article (Owens et al, 2000)
Children's Sleep Habits Questionnaire Abbreviated version
Epworth Sleepiness Scale Measure of excessive daytime sleepiness
Pediatric Sleep CGI scale (Clinical Global Impressions) Measures severity of sleep problems & response to interventions in kids w/ASD and other NDV disorders. Based on this JDBP article (2016)
Pediatric Daytime Sleepiness Scale (PDDS) Iowa Sleep Disorders Center
REM v. Non-REM Parasomnias Comparison table (2010)
Sleep Diary 2-week diary from AASM to be completed by patient, interpreted by clinician
Sleep Self-Report (Child) Boston Children's Hospital Sleep Center form to help uncover sleep habits

Suicide
Suicide Screening From UW "All Patients Safe" Resources and References

Temperament
Temperament Screen based on Chess & Thomas

Trichotillomania

Violence Prevention
Connected Kids American Academy of Pediatrics

samuel.zinner@seattlechildrens.org
Last modified: 8/27/2020