Listed below are links to Washington State, National, and International websites you may find of value. Our goal is to help you find information, resources, and services related to the broad topics of FASD and maternal alcohol use. Some links are for programs solely devoted to FASD. This is often conveyed in the name of the program. Other links are to large State, National, or International agencies that typically provide a broad array of services and information that include, but are not limited to, FASD. To help you navigate the larger agency websites, we have provided you with links to specific sections of their websites that address issues related to FASD and maternal alcohol use.
The links presented below represent the full spectrum of activities related to FASD (screening, diagnosis, prevention, family advocacy, newsletters, services, etc.). They are listed alphabetically. If you would like to identify links related to specific topics, like the topics reflected in the navigation bar to the left, we recommend you view the links we have provided you within those subsections of this website.
Washington State (listed alphabetically)
- Department of Social and Health Services (DSHS).
The mission of DSHS is to improve the quality of life for individuals and families in need. DSHS is divided into 7 Administrations. Administrations & Programs include: Finding DSHS Services and Programs, Aging and Disability Services Administration; Children's Administration; Economic Services Administration; Health and Recovery Services Administration (Division of Behavioral Health & Recovery, Special Commitment Center, Division of Vocational Rehabilitation); Juvenile Rehabilitation Administration, and Medical Assistance Administration.
- Division of Behavioral Health and Recovery (DBHR).
DBHR is a state Agency within the Department of Health and Human Services (DSHS). DBHR integrates services for mental health and substance abuse. DBHR has voluntarily served as the program chair of the Fetal Alcohol Syndrome Interagency Workgroup (FASIAWG) since it's inception in 1995, to ensure continued development and implementation of FASD services statewide.
- FAS Family Resource Institute (FAS*FRI).
The mission of FAS*FRI, a non-profit organization, is to identify, understand, and care for individuals disabled by prenatal alcohol exposure and their families, and to prevent future generations from having to live with this disability.
- FAS Diagnostic & Prevention Network (FAS DPN), University of Washington.
The Washington State FAS DPN, established in 1993, is a statewide network of interdisciplinary, FASD diagnostic clinics led by the core clinical/research/training clinic at the University of Washington. All clinics use the (2004) FASD 4-Digit Diagnostic Code. The mission of the FAS DPN is prevention of FASD through screening, diagnosis, intervention, surveillance, training and research. The FAS DPN is celebrating it's 20th year of FASD Clinic in 2013.
- Fetal Alcohol and Drug Unit (FADU), University of Washington.
The Fetal Alcohol and Drug Unit is a research unit dedicated to the prevention, intervention and treatment of FASD. The main goals are to conduct research on fetal alcohol and drug effects across the life span, to disseminate information on fetal alcohol and drug effects, to provide consultation for persons of any age thought to be affected by prenatal exposure to alcohol, and to provide training in human behavioral teratology.
- First Steps Program, Department of Social and Health Services.
The goal of the First Steps Program, authorized by the maternity Care Access Act of 1989, is to provide "maternity care necessary to ensure health birth outcomes for low-income families." The legislation called for removal of unnecessary barriers to receiving prenatal care and provided for increased access to care and expanded Medicaid services for low-income pregnant women. First Steps is administered through the Medical Assistance Administration in the Department of Social and Health Services.
- Governor's Office of Indian Affairs (GOIA).
The Governor's Office of Indian Affairs, recognizing the importance of sovereignty, affirms the government-to-government relationship and principles identified in the Centennial Accord to promote and enhance tribal self-sufficiency and serves to assist the state in developing policies consistent with those principles.
- Iceberg FAS Newsletter, Fetal Alcohol Syndrome Information System (FASIS).
Iceberg is a quarterly educational newsletter published by FASIS, a federally recognized 501(c)3 nonprofit, community organization, since 1991.
- Office of Healthy Communities, Department of Health.
The Office of Healthy Communities, within the Department of Health, works to protect and improve the health of people in Washington. The Office aims to make the healthy choice the easy choice in our homes, communities, workplaces, health care settings, and schools. Healthy Communities Washington's goal is to increase the number of people in Washington who are healthy at every stage of life. Specific programs that focus on children are: CHILD Profile which focuses on health concerns that affect youth from birth to 21 years of age; and Children with Special Health Care Needs Program that serves children and youth who have or are at increased risk for a chronic physical, development, behavioral, or emotional condition and who also require health and related service of a type or amount beyond that required by children generally. The Office also maintains Substance Abuse during Pregnancy: Guidelines for Screening, a best practice guide for prenatal care providers. Prevention messages are included in the Department's pregnancy and women's health portal pages.
- NOFAS Washington.
The mission of NOFAS Washington is to provide support, education, advocacy, and training on Fetal Alcohol Spectrum Disorders through the positive cooperation and collaboration of families, caregivers, community provides, professionals, and individuals affected by prenatal alcohol exposure. Included in this program is FASt Friends: A FASD Family and Community Support Network. NOFAS Washington is the Washington State Affiliate of the National Organization on FAS (NOFAS).
- Parent Child Assistance Program (PCAP) Fetal Alcohol and Drug Unit.
PCAP is a model of intensive, long-term, paraprofessional advocacy with high-risk mothers who abuse alcohol or drugs heavily during pregnancy and are estranged from community service providers. The primary goal of PCAP is to prevent alcohol and drug exposure among the future children of these mothers. PCAP was established in 1991 and is a program within the Fetal Alcohol and Drug Unit at the University of Washington.
- Pregnancy Risk Assessment Monitoring System (PRAMS), Department of Health.
PRAMS is a CDC-sponsored, ongoing, population-based surveillance system designed to monitor self-reported maternal behaviors (including use of alcohol) that occur before, during, and after pregnancy. Washington State is one of many states participating in PRAMS. The WA State Department of Health has collected PRAMS data since 1993.
- Safe Babies, Safe Moms, Department of Social and Health Services.
Safe Babies, Safe Moms (formerly the Comprehensive Program Evaluation Project or CPEP) seeks to improve the health and welfare of substance abusing mothers and their young children. The project attempts to improve long-term outcomes for the families and represents an investment in their future. The comprehensive services offered to substance abusing mothers who are prenatal and/or parenting children under age 2 years include: Targeted Intensive Case Management (TICM), Residential/Outpatient Chemical Dependency (CD) Treatment, Housing Support Services for Transitional Housing, Parenting Education, and Child Development Assessments and Referrals.
- Washington State Alcohol/Drug Clearinghouse (WSADC)
The Washington State Alcohol/Drug Clearinghouse provides information
to the people of Washington State on issues relating to alcohol and
other drugs. As the State's designated Regional Alcohol and Drug
Awareness Resource (RADAR) Network Center, WSADC links local
communities with clearinghouses and information centers worldwide.
- Washington State Birth Defects Surveillance, Department of Health.
The Washington State Birth Defects Surveillance System was an active surveillance system from 1986 through 1991. Since then, the system has been passive, relying on hospitals to report cases of children with birth defects. Currently, an enhancement project is in progress to develop a web-based, electronic reporting system to reduce the reporting burden to hospitals. Washington State has approximately 80,000 live births every year with an estimated 2,400 to 3,200 children diagnosed with birth defects based on an annual prevalence proportion of 2-4 per 100 live births per year.
- Washington State FASD Interagency Work Group (FASIAWG).
The FASIAWG is a state organization for FASD established in 1995 through Senate Bill 5688. The FASIAWG was established to ensure coordination of all programs for individuals who have FASD and for women at high risk of having children with FASD. The FASIAWG includes representatives from state, local, private and academic agencies across the state.
National / International
Disclaimer: References or links to any entity, product, service, or information are included for information only and do not imply endorsement or recommendation.
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