PKU Management

PKU Education Curriculum

PKU education curriculum designed by the Cristine M. Trahms Program for Phenylketonuria, includes a series of engaging and fun lessons aimed at specific age groups which teach essential skills for living with PKU. Some topics covered include identification of "yes" and "no" foods, assertiveness, calculating phe, the history of PKU, and more.

Materials are organized by the following categories:

  • Preschool
  • Primary School
  • Teens
  • Transition
  • PKU Pal


Additional management resources

Here are some management tools which may prove useful:


  • Management of Phenylketonuria for optimal outcome: a review of guidelines for Phenylketonuria management and a report of surveys of parents, patients, and clinic directors. By Wappner R, Cho S, Kronmal RA, et al. Pediatrics 1999;104(6):e68.
    Available online at


[top of page]