Video: Really Living with PKU

The video "Really Living with PKU" was created to give families with newly diagnosed infants the reassurance that, with proper medical and nutritional care, their newborn will lead a normal life. The video shows infants, children, adolescents, and their families adapting to PKU, discussing the changes PKU has made for families, and promoting day-to-day activities and long-term treatment.

This video presentation, created in 2001, was produced by the PKU Action Group along with the University of Washington Phenylketonuria and Biochemical Genetics Clinic, and Richard Montague of Meadowlake Productions. Several families of the PKU Clinic were ready and eager participants and we thank them all for their enthusiasm. Generous underwriting support was provided by the Neill family, the Don Welsh Memorial Fund, Mrs. Vernita Thompson, and Dietary Specialties.

acrobat reader logo To download a copy of the video brochure, click here.


View Now

Click here to see the video over the Internet

Order the Video

The video is not available through the UW PKU Clinic.

To order a copy of the video, please contact the Children's PKU Network, 3790 Via D La Valle, Suite 120, Del Mar, CA 92014 or email:





top of page