Seattle Rare Disease Fair

On Friday, August 9th, the Bernier Lab participated in Seattle’s 2nd Rare Disease Fair.  The National Organization for Rare Diseases (NORD) member organization, BORN A HERO, hosted this rare disease awareness event in collaboration with Seattle Children’s Research Institute. They invited individuals to come learn about what makes a disease or disorder “rare,” learn about different rare medical conditions, what questions remain unanswered, and what we can do about it.  It was such a great event and we are proud to be part of this amazing network of parents, advocates, researchers and medical professionals.  We look forward to continued collaborations and helping rare disease!