Tune in for SPARK’s Facebook Live event with Dr. Catherine Lord on Wednesday, December 6 from 9:30am – 10am PST!
A few weeks ago, the 40th Annual Festival of Trees Gala took place at the Fairmont Olympic Hotel in Seattle! Seattle Children’s employees and supporters had a blast raising money for the Seattle Children’s Autism Center and Uncompensated Care at Seattle Children’s Hospital. Check out the link for more news and pictures from the festivities here:
Don’t forget to view this video shown at the Gala, giving you an inside look at the kind of work the Seattle Children’s Autism Center does. Featuring a few families who kindly gave us a glimpse into their experiences with the team, the video captures the essence of the impact the Children’s community has :
Our Research Team is hosting a PIRATE-THEMED Research Family Fun Day on Saturday, December 2nd! Families interested in participating in autism genetics research will have the opportunity to complete 1-2 research studies in a single day!
The SPARK and PANGEA studies are exploring genetic differences related to autism. Families who attend the family fun day will be able to complete online registration and saliva collection for SPARK and/or a blood draw for PANGEA. There will be food, games, prizes, parking, and childcare available! To RSVP to this event, please contact the research team at 206-987-7917 or at SCACstudies@seattlechildrens.org.
WHAT: Fun, research participation event for families
WHEN: Saturday, December 2 from 9am to 5pm
WHERE: Seattle Children’s Autism Center, 4909 25th Ave NE, Seattle, WA 98105
THEME: Pirates and Buried Treasure!
Did you know that Seattle Children’s Theatre has sensory friendly performances? This special performance series is designed to give a world-class theatre experience to those with sensory needs. SCT makes special modifications to the theatre to best support your child, including: lower sound levels, lowered seating capacities, and use of electronic devices with headphones. SCT also provides additional materials on their website to help you and your child prepare for the show as well an option to tour the theatre before the performance.
A sensory friendly performance of Go, Dog. Go! is coming up on Sunday, October 29th at 11:00am.
Check out their website for more information!
By Kira Hamer and Emily Fox
On August 21st, 2017 we will have an amazing opportunity to see an almost complete solar eclipse. This is a once-in-a-lifetime experience. While we aren’t directly in the path of the eclipse (you have to go to Oregon for that), we will experience almost total darkness at 10:30am when the moon passes in front of the sun! Many of us might find this experience and the science behind it incredibly exciting, but for some individuals, this event could be confusing, a little frightening, and disrupting to our routines. In this blog post, our team offers some suggestions for how to prepare yourself and your child for the eclipse, as well as some fun activities to do in the Seattle area while it is happening!
Here is a social story to help prepare your child for the Solar Eclipse: I am going to see a solar eclipse
Here is what the eclipse will look like in Seattle: http://bit.ly/2uC1FlT
Facts about the solar eclipse: http://bit.ly/2tm5aKK
How to Protect Your Eyes during the Eclipse
First and foremost: looking directly at the sun without special eye protection can cause serious damage, so always protect your family’s eyes with solar glasses if you want to directly observe the eclipse. According to space.com, there are four companies that meet NASA standards for solar glasses. These are Rainbow Symphony, American Paper Optics, Thousand Oaks Optical, and TSE 17. Your local library may also offer free eclipse glasses! It is important to note that sunglasses are not a replacement for special viewing glasses. If you are unable to find special glasses, another way to view the eclipse safely is to build a pinhole camera. A pinhole camera projects sunlight through a small hole in a box onto the other side of the box, so that you aren’t looking directly at the sun. You can find instructions for building a pinhole camera here.
How to Prepare Your Child for the Eclipse
Like any new experience or change for a child, it can be helpful to practice what you might do the day of the eclipse or to talk about what might happen. Here are some tips to help you and your child prepare:
Fun Eclipse Activities
The eclipse is a great opportunity to help your kids become real scientists! NASA is asking people in the viewing area to report on what they see and experience. The GLOBE (Global Learning Observations to Benefit the Environment) Observer Eclipse App can be downloaded on your phone, and guides you through how to make observations. NASA is hoping to have a million eclipse viewers contribute their findings!
Two weeks ago a team from the Bernier Lab had the pleasure of flying to Wilmington, Delaware to help facilitate testing for some amazing kiddos affected by disruptive mutations to the gene SCN2A. Our team included our TIGER study coordinator, Morgan Kelly, Post-doc and EEG specialist, Dr. Caitlin Hudac, and our clinical post-doc, Dr. Jessica Peterson! Dr. Raphe Bernier, the principal investigator of the TIGER study, also came out to the SCN2A family meeting to give a presentation on “Dynamic Behavioral & Neural Patterns Among Children with de novo SCN2A Variants”.
Thank you to the families who participated in the TIGER study during this weekend, we are very grateful to all of you and for those who helped organize and attend the event for make this research possible! Participation involved completion of assessments and collection of EEG.
Some highlights from the conference include seeing scientists and families engaged across both days with presentations made by family members and scientists interspersed, and attending the family meeting dinner, where we were able to meet with other researchers and hear stories from families affected by this genetic event. It was a truly wonderful experience to meet some of the families who are invested in seeing SCN2A research advance, thank you for welcoming us and we look forward to future collaborative work!
Follow the link to learn more about the SCN2A family conference: https://www.scn2a.org/single-post/scn2aconference