All posts by Rablab

Seattle Children’s Autism 200 Lecture Feb 16, 2017

Drs. Jen Gerdts and Heather Mefford and giving the Children’s Autism 200 lecture on Thursday, February 16 from 7-8:30pm at the Seattle Children’s Wright Auditorium. The talk is titled: “Autism Genetics: What Parents Should Know”.

We always learn something from Jen and Heather and are excited to hear from them. These lectures are meant for anyone in the community: providers, parents, students, etc., and are free to attend.

Over the past decade, there have been major advances in our understanding of autism genetics, and genetic testing is often offered to patients and families. The tests (and sometimes the results) can be overwhelming and confusing. We will review what is known about autism genetics and what kinds of genetic tests are available to families. In addition, we will discuss the pros and cons of genetic testing and what types of results you might expect to receive. Finally, we will highlight research opportunities and exciting advances in genetic testing that are expected to become available in the near future. This class will be led by Heather Mefford, MD, and Jennifer Gerdts, PhD.

INSAR President’s Message – February 2017

We would like to share with our followers a message from the Board of Director of the International Society for Autism Research (INSAR), which includes Dr. Raphael Bernier.
Message from the President
The Board of Directors of the International Society for Autism Research (INSAR) is deeply troubled about the potential negative impact of President Trump’s Executive Order concerning restrictions on immigration to the United States on a core part of the INSAR mission: To promote collaboration among researchers, students, clinicians, and stakeholders worldwide to better the lives of individuals and families living with autism spectrum disorder (ASD).

Autism science is greatly enriched by collaborations and ideas from all over the globe. INSAR joins with the Association of American Universities (AAU) in urging that “the administration’s new order barring the entry or return of individuals from certain countries…should end as quickly as possible.” We support the AAU’s call for the United States to continue “to welcome the most talented individuals from all countries to study, teach, and carry out research and scholarship at our universities.”

The new travel restrictions are perplexing and unsettling. They will potentially prevent researchers, scientists, and stakeholders from the seven identified countries from sharing their research at the May 2017 International Meeting for Autism Research (IMFAR) in San Francisco, California.  Nearly 25% of the 2016 INSAR meeting’s 2,000 attendees were from non-United States countries. About 30% of INSAR members represent non-United States countries. If the ban remains, it could prevent non-United States-based ASD thought and research leaders from attending future United States-based conferences. Furthermore, United States-based scholars from the identified countries who hold visas or green cards may not be able to travel to INSAR meetings when they are held outside of the United States. This will have a direct, detrimental impact on our scientific community, scientific progress, and those who benefit from the research that we conduct and disseminate. Ultimately, we believe that this will slow progress in understanding autism and related disorders and in finding more effective treatments to lessen disabilities for those affected.

As an organization, we must think carefully about whether to host future international meetings for autism research in the United States.  As an international society, it would be inappropriate to hold the largest annual meeting on autism research in any country that restricts access to our colleagues worldwide.

As the Board of Directors of INSAR, we are unanimous in our denunciation of restrictive immigration policies that will impact researchers, students, and persons with autism and their families. The INSAR Board of Directors will be bringing these concerns to the attention of policy makers and the public.  As members of INSAR, we encourage you to do so as well. This article also appears on the INSAR website.
Sincerely,

Geraldine Dawson, PhD
President, International Society for Autism Research
Duke University

Board Members:

Simon-Baron Cohen, PhD
President-Elect
Cambridge University

Craig Newschaffer, PhD
Vice-President
Drexel University

David Amaral, PhD
Autism Research, Editor
University of California, Davis

Francesca Happé, PhD
Past-President
Kings College London

Katarzyna Chawarska, PhD
Secretary
Yale University

Raphael Bernier, PhD
Treasurer
University of Washington

James McPartland, PhD
Past-Treasurer
Yale University

Upcoming SPARK event: “Adulting” Effectively Preparing Individuals with ASD

January 31, 2017 at 12:00pm EST, SPARK will be hosting an event called “Adulting”: Effectively Preparing Individuals with ASD. To register follow this link: Adulting.

About this event

The transition from adolescence to adulthood does not always receive as much attention as is needed. Often transition services are limited, leaving individuals with autism spectrum disorders (ASD) without the level of preparation needed for “adulting”. We need to begin preparing individuals with ASD as early as possible for the future. The overall goal is for the individual with ASD to have the best quality of life possible. There are a number of variables that become increasingly important as a child with autism moves through adolescence and then onto adulthood. Specific areas of concern that will be discussed include: skill selection, fading of systems, prompt dependency, schedules of reinforcement, behavioral support, and dependency on 1:1 instruction.

About the presenter

Mary E. McDonald, Ph.D., BCBA-D, LBA
Mary E. McDonald, Ph.D., BCBA-D, LBA Image
Mary E. McDonald has 25 years’ experience directing programs for students with autism from early intervention through adulthood. She is an Associate Professor in the Department of Specialized Education at Hofstra University and also directs the Advanced Certificate Programs, including the advanced certificate in applied behavior analysis (ABA). Dr. McDonald is serving as the Interim Associate Executive Director of Long Island Programs for Eden II/Genesis. Eden II is a nonprofit organization that supports people with autism throughout their lives to achieve their full potential through service, science and passion.
Dr. McDonald completed her Ph.D. in Learning Theory at the CUNY Graduate Center and is a Board Certified Behavior Analyst-Doctoral Level and a licensed behavior analyst in New York State. She has published articles in the areas of self-management, social reciprocity, fads in autism intervention, and schedules to promote cooperation of vocational skills.

Arthur’s Story

We want to share with our blog followers a great short story about Arthur and his family’s  experience in Autism research. This story was  that was first posted on the Seattle Children’s Autism Blog.