Websites devoted to Health Transition
Webistes with health and disability information
Websites on transition to adulthood
Transition is recognized as a very important process for teens and young adults. Many websites are devoted to transition topics. Some states have had projects focused on transition, and other groups such as state Councils on Developmental Disabilities have devoted resources to projects on transition. There has also been funding from federal agencies to promote adolescent transition. Some websites focus more on health aspects of transition than others.
There are also many websites that offer health-focused information. Some are associated with government agencies such as the National Institutes of Health. Others are supported by universities or non-profit organizations. These can be helpful in teaching teens and young adults about keeping healthy and about their particular health condition or disability.
We have highlighted some useful websites here, but you can also find others by using your web search engine. Remember to evaluate the reliability of the information you find by using guidelines such as those at http://nnlm.gov/pnr/hip/criteria.html.
- The Center for Children with Special Needs (at Seattle Children’s Hospital)
Page on Teens includes information addressed to teens on self advocacy, moving to adult health care, keeping track of medical information, planning for the future, communication with others.
- Health Care Transition Initiative
Website at the University of Florida that is devoted to improving the process of transitioning from child-centered (pediatric) health care to adult-oriented health care. Provides training programs, products and resources for professionals and youth.
- Florida Health and Transition Services (HATS)
Website for state of Florida that promotes health transition. Many resources are specific to Florida, but the Tool Box has information on health transition topics that are helpful to all.
- Healthy Transitions: Moving from Pediatric to Adult Health Care
Includes detailed modules for learning health care skills. Created by a partnership between Upstate Medical University, GoLisano Children’s Hospital and NY State DD Planning Council.
- Transition Resource and Staying Healthy Resources
Kentucky Children with Special Health Care Needs Family Assistance Resources page. Lists a number of tools for families and providers.
- Got Transition?
New website of the National HealthCare Transition Center. The plan is for the Center to implement and disseminate health care transition best practices in primary care medical homes and specialty settings for youth and young adults with special health care needs.
- Royal Children’s Hospital Melborne
Adolescent Transition website for RCH in Melborne, Australia, includes information, fact sheets, tools for families and professionals.
- Bloorview Kids Rehabilitation Hospital in Toronto
Web page on Preparing for Adult Life. Includes sections ‘For Families & Youth’ and ‘For Professionals’. The section for families, requires the user to fill out a short registration form before accessing the materials, but there is no charge for downloading or printing materials. Includes attractive color pages with a timeline format. Titles include ‘Timetable for Growing Up’, ‘Getting Started’, ‘On My Way’, ‘Almost There’ and ‘Guidelines for Service Providers’. The section for professionals describes the history of the Bloorview transition framework, which is based on the Shared Management work of Kieckherer and Trahms from CHDD. Includes links to resources and publications.
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- Teens Health
Health information website for teens maintained by Nemours Center for Children's Health Media. Information on a wide variety of health topics. Includes a section on Diseases and Conditions. Also has tabs for parents and younger kids.
- Washington State Medical Home
A wide variety of health and medical information for families, physicians and other providers, arranged by audience and topic. Links to other sources.
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(the focus is mostly school and employment, but some also address health transition)
- Seattle University Center for Change in Transition Services (CCTS)
The goal of this website is to improve post-school outcomes for students with disabilities in Washington State. CCTS is funded by the Office of the Superintendent of Public Instruction’s federal resources. CCTS provides training on Secondary Transition to school personnel across the state. Their training materials can be viewed or downloaded from their website and are very helpful in understanding the Transition IEP.
The acronym stands for Disabilities, Opportunities, Internetworking, and Technology. DO-IT promotes the success of individuals with disabilities and the use of computer and networking technologies to increase their independence, productivity and participation in education and careers. The website offers a wealth of information, resources and classes.
- Disability Rights Washington (DRW)
A private non-profit organization that protects the rights of people with disabilities statewide. In the Tools To Help You section, you can find Self-Help Information Sheets on a variety of topics related to rights. Topics include guardianship, legal assistance, mental health, voting, and many others.
- National Secondary Transition Technical Assistance Center (NSTTAC)
The purpose of this website is to help states build capacity to support and improve transition planning, services and outcomes for youth with disabilities. The website is focused toward school districts and teachers. Funding for this project ended December 2010, but the site has a wealth of information about the Transition IEP process and is still on the web as of June 2011.
- National Center on Secondary Education and Transition (NCSET)
Coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures. NCSET is headquartered at the Institute on Community Integration in the University of Minnesota's College of Education and Human Development. Good resource on IEP and transition planning, self-determination and other transition topics.
- National Center on Workforce and Disability/Youth (NCWD/Youth)
Website about employment for youth with disabilities. Covers many aspects of transition. Resources for youth, families, employment and educational professionals.
- Secondary Transition Planning Tool Kit
From the New Hampshire Parent Information Center on Special Education. A tool kit that is broken into Key Components or broad areas for transition planning. In each section you will find Important Details, information you need to know regarding the special education process and laws that impact transition. Also included are Transition Planning Tips to help in planning along with resources and places to find more information about strategies or topics discussed.
- Wisconsin Statewide Transition Initiative
Much of this website is specific to Wisconsin, but the Healthcare Transition page has links to a series of videos on YouTube where young people with disabilities talk about their transition experiences.
- Opening Doors for Children and Youth with Disabilities and Special Health Care Needs
A project of the Maternal and Child Health Bureau to promote better futures for youth with SHCNs. Two of the three projects are of interest to teens and young adults and professionals who work with them. Project Adventure is about inclusive recreational opportunities and Opt4College is about making the decision to go to college.
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