Gender Exploration of Neurogenetics and Development to Advanced Autism Research
The GENDAAR 2.0 study is part of the Autism Center of Excellence (ACE Network), which includes researchers from across the country. The main goal of this follow up study is to investigate the transition through adolescence and into young adulthood. We aim to identify sex differences in individuals with autism spectrum disorders (ASD) and look at their brain development during this important transition. We will compare the data collected with individuals with ASD, to siblings of children with ASD and children with no family history of ASD. In order to investigate the questions we are asking, we will use a variety of methods: neuropsychological testing, EEG, fMRI, and genetics. Currently, research indicates that males are 4 times more likely to be diagnosed with ASD than females. By learning more about these sex differences, we aim to improve techniques for diagnosis and interventions.
We are very excited to share that preparation for a follow-up GENDAAR study is underway! In the coming months, your family may receive a call, email, text, or letter inviting you to participate in the GENDAAR 2.0 study at Seattle Children’s Research Institute. We anticipate contacting nearly 150 participants in the next few years!
The GENDAAR 2.0 study will take place at Seattle Children’s and the University of Washington, but also at the University of Virginia, Yale, UCLA, Children’s National Medical Center in Maryland, and the University of Colorado. Combined across these sites, we plan to invite roughly 400 returning participants, as well as some new participants between the ages of 10 and 26 years old.
For more information, please contact:
Megha Santhosh at firstname.lastname@example.org or (206)-884-7814
IRB HSR #: 21361 Local IRB #: 00001334
Principal Investigator: Dr. Sara Jane Webb
Participating Research Sites: University of California, Los Angeles; University of Southern California; Children’s National Health System; Seattle Children’s Research Institute; University of Washington; University of Denver; George Washington University
* Please note that we cannot guarantee the confidentiality of any information sent by email.