SEAQOL Instruments
To access the new site for the SEAQOL Instruments go to this link: SEAQOL Instruments .
You can now access them on Github for free but donations are very much appreciated.
| Instrument | Concept/ Measure Type |
Domains/ Subscales |
# Items | Scores |
|---|---|---|---|---|
| Cystic Fibrosis Respiratory Symptom Diary (CFRSD) and Chronic Respiratory Infection Symptom Score (CRISS©) | Symptom & Impact/Condition specific | CF-specific Symptoms & Impacts | 16 | Overall symptom score plus individual impact indications |
| Functional Limitations Profile (FLP) | Function/Generic | Ambulation, Body Care & Movement, Mobility, Household Management, Recreation & Pastime, Social Interaction, Emotion, Alertness, Sleep & Rest, Eating, Communication, Work | 136 | Overall, 2 Dimensions (physical, psychosocial), 12 Categories |
| Incontinence Quality of Life Scale (I-QOL) | QoL/Condition specific | Avoidance & Limiting Behavior, Psychosocial Impacts, Social Embarrassment | 22 | Total, 3 Domains |
| Irritable Bowel Syndrome Quality of Life Instrument (IBS-QOL) | QoL/Condition specific | Dysphoria, Interference with Activity, Body Image, Health Worry, Food Avoidance, Social Reaction, Sexual, Relationships | 34 | Total, 8 Subscales |
| Obesity and Weight-Loss Quality of Life Questionnaire (OWLQOL) | QoL/Condition specific | Impacts of Obesity and Weight Loss | 17 | Total |
| Perceived Quality of Life Scale (PQOL) | QoL/Generic | Satisfaction with Life and Health | 20 | Overall, 19 Item |
| Premature Ejaculation Profile (PEP) | Symptom & Impact/Condition specific | Sexual Symptoms & Impacts | 4 | Overall symptom score |
| Weight-Related Symptom Measure (WRSM) | Symptom/Condition specific | Presence and Bothersomeness of Weight Related Symptoms for all obese patients, Presence and Bothersomeness of Weight Related Symptoms for obese patients with diabetes | 20 | 2 Overall |
| World Health Organization Quality of Life-BREF (WHOQOL-BREF) | QoL/Generic | Physical Health, Psychological, Social Relationships, Environment, Overall Quality of Life and General Health | 26 | 4 Domain, 2 Item |
| World Health Organization Quality of Life Scales (WHOQOL-100) | QoL/Generic | Physical, Psychological, Spiritual, Environment, Independence, Social, Global QOL and General Health | 100 | 6 Domain, 24 Facet, 1 Global quality of life and general health perceptions |
| Instrument | Concept/ Measure Type |
Domains/ Subscales |
# Items | Scores |
|---|---|---|---|---|
| Cystic Fibrosis Symptoms and Impacts (CFRSD) | Symptoms/Condition specific | Cystic Fibrosis respiratory symptoms/signs, emotional impacts, activity impacts | 16 | Under development |
| Youth Craniofacial Surgery Attitudes Measures (CSAM) | Attitudes/Condition specific | Attitudes toward craniofacial surgery: past & future surgery | 34 | Under Development |
| Youth Quality of Life Instrument - Deafness and Hard-of-Hearing Module (YQOL-DHH) | QoL/Condition specific | Participation, Self-Acceptance/Advocacy, Perceived Stigma | 32 | 3 Domain |
| Youth Quality of Life Instrument - Facial Differences Module (YQOL-FD) | QoL/Condition specific | Coping, Positive Consequences, Negative Consequences, Negative Self-Image Stigma | 30 | 5 Domain |
| Youth Quality of Life Instrument - Research Version (YQOL-R) | QoL/Generic | Self, Relationships, Environment, and General QoL | 41 perceptual, 2 individual | 4 Domain, Total, 2 individual |
| Youth Quality of Life Instrument - Short Form (YQOL-SF) | QoL/Generic | No subscales | 16 | Total |
| Youth Quality of Life Instrument - Weight Module (YQOL-W) | QoL/Condition specific | Self, Social, Environment | 21 | 3 Domain, Total |
| Instrument | Concept/ Measure Type |
Domains/ Subscales |
# Items | Scores |
|---|---|---|---|---|
| Lymphatic Malformation Function (LMFA-Y) | Function/Condition specific | Under development | 25 | Under development (measurement properties currently being assessed) |
| Youth Disability Screener (YDS) | Disability status/Condition specific | No subscales | 4 | Total |
| Instrument | Concept/ Measure Type |
Domains/ Subscales |
# Items | Scores |
|---|---|---|---|---|
| ADHD Behaviors and Events (ADHD-OROBE) | Behaviors and Events/Condition specific | Under development | 19 | Under development |
| Cystic Fibrosis Signs and Impacts (CFRSignD) | Signs and Impacts/Condition specific | CF respiratory symptoms/signs, emotional impacts, activity impacts | 12 | Under development (measurement properties currently being assessed) |
| First Impressions Ratings | First Impressions/Generic | Social judgments of others' personal attributes, social attributes, appearance and intelligence | 26 | Under development |
| Generic Youth Behaviors and Events (OROBE) | Behaviors and Events/Generic | No subscale | 15 | Under development |
| Lymphatic Malformation Function (LMFA-O) | Function/Condition specific | Under development | 25 | Under development (measurement properties currently being assessed) |
| Youth Deafness and Hard-of-Hearing Behaviors and Events (CROBE-DHH) | Behaviors and Events/Condition specific | 11 (ages 5-7); 15 (ages 8-10) | Submitted for Publication | |
| Youth Facial Differences Behaviors and Events (FD-OROBE) | Behaviors and Events/Condition specific | No subscale | 20 | Under development |
