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SEAQOL Instruments

Adult Instruments

Adult Self-Report, Perceptual
Instrument Concept/
Measure Type
Domains/
Subscales
# Items Scores
Functional Limitations Profile (FLP) Function/Generic Ambulation, Body Care & Movement, Mobility, Household Management, Recreation & Pastime, Social Interaction, Emotion, Alertness, Sleep & Rest, Eating, Communication, Work 136 Overall, 2 Dimensions
(physical, psychosocial), 12 Categories
Incontinence Quality of Life Scale (I-QOL) QoL/Condition specific Avoidance & Limiting Behavior, Psychosocial Impacts, Social Embarrassment 22 Total, 3 Domains
Irritable Bowel Syndrome Quality of Life Instrument (IBS-QOL) QoL/Condition specific Dysphoria, Interference with Activity, Body Image, Health Worry, Food Avoidance, Social Reaction, Sexual, Relationships 34 Total, 8 Subscales
Obesity and Weight-Loss Quality of Life Questionnaire (OWLQOL) QoL/Condition specific Impacts of Obesity and Weight Loss 17 Total
Weight-Related Symptom Measure (WRSM) Symptom/Condition specific Presence and Bothersomeness of Weight Related Symptoms for all obese patients, Presence and Bothersomeness of Weight Related Symptoms for obese patients with diabetes 20 2 Overall
Perceived Quality of Life Scale (PQOL) QoL/Generic Satisfaction with Life and Health 20 Overall, 19 Item
World Health Organization Quality of Life-BREF (WHOQOL-BREF) QoL/Generic Physical Health, Psychological, Social Relationships, Environment, Overall Quality of Life and General Health 26 4 Domain, 2 Item
World Health Organization Quality of Life Scales (WHOQOL-100) QoL/Generic Physical, Psychological, Spiritual, Environment, Independence, Social, Global QOL and General Health 100 6 Domain, 24 Facet, 1 Global quality of life and general health perceptions
Cystic Fibrosis Respiratory Symptom Diary (CFRSD) and Chronic Respiratory Infection Symptom Score (CRISS©) Symptom & Impact/Condition specific CF-specific Symptoms & Impacts 16 ???
Premature Ejaculation Profile (PEP) Symptom & Impact/Condition specific Sexual Symptoms & Impacts 4 ???

Child/Youth Instruments

Click here for an article which give an overview of the SeaQoL Youth Quality of Life (YQOL) Generic and Condition-Specific Modules
Youth Self-Report, Perceptual
Instrument Concept/
Measure Type
Domains/
Subscales
# Items Scores
Youth Quality of Life Instrument - Research Version (YQOL-R) QoL/Generic Self, Relationships, Environment, and General QoL 41 perceptual, 2 individual 4 Domain, Total, 2 individual
Youth Quality of Life Instrument - Short Form (YQOL-SF) QoL/Generic No subscales 16 Total
Youth Quality of Life Instrument - Facial Differences Module (YQOL-FD) QoL/Condition specific Coping, Positive Consequences, Negative Consequences, Negative Self-Image Stigma 30 5 Domain
Youth Craniofacial Surgery Attitudes Measures (CSAM) Attitudes/Condition specific Attitudes toward craniofacial surgery: past & future surgery 34 Under Development
Youth Quality of Life Instrument - Weight Module (YQOL-W) QoL/Condition specific Self, Social, Environment 21 3 Domain, Total
Youth Quality of Life Instrument - Deafness and Hard-of-Hearing Module (YQOL-DHH) QoL/Condition specific Participation, Self-Acceptance/Advocacy, Perceived Stigma 32 3 Domain
Cystic Fibrosis Symptoms and Impacts (CFRSD) Symptoms/Condition specific Cystic Fibrosis respiratory symptoms/signs, emotional impacts, activity impacts 16 Under development


Youth Self-Report, Contextual
Instrument Concept/
Measure Type
Domains/
Subscales
# Items Scores
Youth Disability Screener (YDS) Disability status/Condition specific No subscales 4 Total
Lymphatic Malformation Function (LMFA-Y) Function/Condition specific Under development 25 Under development (measurement properties currently being assessed)


Observer-Report
Instrument Concept/
Measure Type
Domains/
Subscales
# Items Scores
First Impressions Ratings First Impressions/Generic Social judgments of others' personal attributes, social attributes, appearance and intelligence 26 Under development
Generic Youth Behaviors and Events (OROBE) Behaviors and Events/Generic No subscale 15 Under development
Youth Facial Differences Behaviors and Events (FD-OROBE) Behaviors and Events/Condition specific No subscale 20 Under development
Youth Deafness and Hard-of-Hearing Behaviors and Events (DHH-OROBE) Behaviors and Events/Condition specific No subscale 19 (ages 5-7); 23 (ages 8-10) Under development
Cystic Fibrosis Signs and Impacts (CFRSignD) Signs and Impacts/Condition specific CF respiratory symptoms/signs, emotional impacts, activity impacts 12 Under development (measurement properties currently being assessed)
Lymphatic Malformation Function (LMFA-O) Function/Condition specific Under development 25 Under development (measurement properties currently being assessed)
ADHD Behaviors and Events (ADHD-OROBE) Behaviors and Events/Condition specific Under development 19 Under development





How to Order Instruments:

  1. Please submit your requests to the Instrument Distribution Coordinator by filling out the online instrument ordering form/ user agreement located on each instrument page. Please make sure to give complete information as to the purpose of your study, and what you are requesting.
  2. If you are having difficulty with the Catalyst WebQ program, a pdf of the order form can be printed out, and faxed or emailed to the Instrument Coordinator:
    • Toll Free: 800-291-2193
    • Fax: 206-616-3135
    • Email: seaqol@u.washington.edu
    • Mailing Address:

      Attn: Instrument Distribution Coordinator
      Seattle Quality of Life Group
      University of Washington, Dept of Health Services
      Box 359455
      Seattle, WA 98195-9455
  3. After you submit your order form, you will receive a response by e-mail that will include an invoice for your order which you can use to verify your requests and the amount due.
  4. The instrument will not be sent to you until payment or a purchase order is received. You may send in payment with your user agreement for expedited processing of your order.
  5. Instrument documents will be sent to you as electronic files.
  6. DO NOT TRANSLATE ANY INSTRUMENT OBTAINED FROM SEAQOL WITHOUT WRITTEN PERMISSION. PLEASE CONTACT US FOR INSTRUCTIONS ON TRANSLATIONS AND CULTURAL ADAPTATIONS.


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Description of Instrument Charges

The SeaQoL instruments are widely available to users. These charges cover our costs only, we do not market our instruments on a for-profit basis. Charges vary by instrument. There is NO per-subject fee.

The cost covers:
  • the writing and updating of user manuals, including scoring programs and sample datasets;
  • maintenance of our website; and
  • the administration, preparation and distribution of related instrument documents.

For orders within the United States:
  • We have different pricing for students, academic researchers/non-profits/public institutions and for-profit users.
  • Payment for domestic orders must be made by check, money order or purchase order before receipt of instruments. We cannot accept credit cards.
  • In general, for the US English instrument, user's manual, and scoring syntax, pricing is as follows: free for students, $200 for academic/non-profit organizations, and $500 for private/for-profit institutions. Exceptions are noted on the individual instrument order form.

For International orders:
  • International orders must be paid by USD bank checks/money order (payable through a US bank) or wire transfer.