SEAQOL Instruments
General Information
| Instrument | Concept/ Measure Type |
Domains/ Subscales |
# Items | Scores |
|---|---|---|---|---|
| Cystic Fibrosis Respiratory Symptom Diary (CFRSD) and Chronic Respiratory Infection Symptom Score (CRISS©) | Symptom & Impact/Condition specific | CF-specific Symptoms & Impacts | 16 | Overall symptom score plus individual impact indications |
| Functional Limitations Profile (FLP) | Function/Generic | Ambulation, Body Care & Movement, Mobility, Household Management, Recreation & Pastime, Social Interaction, Emotion, Alertness, Sleep & Rest, Eating, Communication, Work | 136 | Overall, 2 Dimensions (physical, psychosocial), 12 Categories |
| Incontinence Quality of Life Scale (I-QOL) | QoL/Condition specific | Avoidance & Limiting Behavior, Psychosocial Impacts, Social Embarrassment | 22 | Total, 3 Domains |
| Irritable Bowel Syndrome Quality of Life Instrument (IBS-QOL) | QoL/Condition specific | Dysphoria, Interference with Activity, Body Image, Health Worry, Food Avoidance, Social Reaction, Sexual, Relationships | 34 | Total, 8 Subscales |
| Obesity and Weight-Loss Quality of Life Questionnaire (OWLQOL) | QoL/Condition specific | Impacts of Obesity and Weight Loss | 17 | Total |
| Perceived Quality of Life Scale (PQOL) | QoL/Generic | Satisfaction with Life and Health | 20 | Overall, 19 Item |
| Premature Ejaculation Profile (PEP) | Symptom & Impact/Condition specific | Sexual Symptoms & Impacts | 4 | Overall symptom score |
| Weight-Related Symptom Measure (WRSM) | Symptom/Condition specific | Presence and Bothersomeness of Weight Related Symptoms for all obese patients, Presence and Bothersomeness of Weight Related Symptoms for obese patients with diabetes | 20 | 2 Overall |
| World Health Organization Quality of Life-BREF (WHOQOL-BREF) | QoL/Generic | Physical Health, Psychological, Social Relationships, Environment, Overall Quality of Life and General Health | 26 | 4 Domain, 2 Item |
| World Health Organization Quality of Life Scales (WHOQOL-100) | QoL/Generic | Physical, Psychological, Spiritual, Environment, Independence, Social, Global QOL and General Health | 100 | 6 Domain, 24 Facet, 1 Global quality of life and general health perceptions |
| Instrument | Concept/ Measure Type |
Domains/ Subscales |
# Items | Scores |
|---|---|---|---|---|
| Cystic Fibrosis Symptoms and Impacts (CFRSD) | Symptoms/Condition specific | Cystic Fibrosis respiratory symptoms/signs, emotional impacts, activity impacts | 16 | Under development |
| Youth Craniofacial Surgery Attitudes Measures (CSAM) | Attitudes/Condition specific | Attitudes toward craniofacial surgery: past & future surgery | 34 | Under Development |
| Youth Quality of Life Instrument - Deafness and Hard-of-Hearing Module (YQOL-DHH) | QoL/Condition specific | Participation, Self-Acceptance/Advocacy, Perceived Stigma | 32 | 3 Domain |
| Youth Quality of Life Instrument - Facial Differences Module (YQOL-FD) | QoL/Condition specific | Coping, Positive Consequences, Negative Consequences, Negative Self-Image Stigma | 30 | 5 Domain |
| Youth Quality of Life Instrument - Research Version (YQOL-R) | QoL/Generic | Self, Relationships, Environment, and General QoL | 41 perceptual, 2 individual | 4 Domain, Total, 2 individual |
| Youth Quality of Life Instrument - Short Form (YQOL-SF) | QoL/Generic | No subscales | 16 | Total |
| Youth Quality of Life Instrument - Weight Module (YQOL-W) | QoL/Condition specific | Self, Social, Environment | 21 | 3 Domain, Total |
| Instrument | Concept/ Measure Type |
Domains/ Subscales |
# Items | Scores |
|---|---|---|---|---|
| Lymphatic Malformation Function (LMFA-Y) | Function/Condition specific | Under development | 25 | Under development (measurement properties currently being assessed) |
| Youth Disability Screener (YDS) | Disability status/Condition specific | No subscales | 4 | Total |
| Instrument | Concept/ Measure Type |
Domains/ Subscales |
# Items | Scores |
|---|---|---|---|---|
| ADHD Behaviors and Events (ADHD-OROBE) | Behaviors and Events/Condition specific | Under development | 19 | Under development |
| Cystic Fibrosis Signs and Impacts (CFRSignD) | Signs and Impacts/Condition specific | CF respiratory symptoms/signs, emotional impacts, activity impacts | 12 | Under development (measurement properties currently being assessed) |
| First Impressions Ratings | First Impressions/Generic | Social judgments of others' personal attributes, social attributes, appearance and intelligence | 26 | Under development |
| Generic Youth Behaviors and Events (OROBE) | Behaviors and Events/Generic | No subscale | 15 | Under development |
| Lymphatic Malformation Function (LMFA-O) | Function/Condition specific | Under development | 25 | Under development (measurement properties currently being assessed) |
| Youth Deafness and Hard-of-Hearing Behaviors and Events (CROBE-DHH) | Behaviors and Events/Condition specific | 11 (ages 5-7); 15 (ages 8-10) | Submitted for Publication | |
| Youth Facial Differences Behaviors and Events (FD-OROBE) | Behaviors and Events/Condition specific | No subscale | 20 | Under development |
How to Order Instruments:
- As of July 1, 2019, all instruments (except for the WHOQOL-BREF) will be priced as follows: free for students, $300 for academic/non-profit organizations, and $900 for private/for-profit institutions.
- Please submit your requests to the Instrument Distribution Coordinator by filling out the: Instrument Order Form and User Agreement
(Please make sure to give complete information as to the purpose of your study, and what you are requesting.) - If you have and questions about the Instrument Order Form and User Agreement please contact the Instrument Distribution Coordinator:
- Email: hsseaqol@uw.edu
- Mailing Address:
Attn: Instrument Distribution Coordinator
Seattle Quality of Life Group
University of Washington, Dept. of Health Systems and Population Health
Box 357660
Seattle, WA 98195-7660 - When your submitted Instrument Order Form and User Agreement is processed, the Instrument Distribution Coordinator will send you an email with an invoice. Use this to verify your requests and the amount due.
- The requested instrument/translations will not be sent until payment or a purchase order is received.
- Instrument documents will be emailed to you as electronic files.
- DO NOT TRANSLATE ANY INSTRUMENT OBTAINED FROM SEAQOL WITHOUT WRITTEN PERMISSION. PLEASE CONTACT US FOR INSTRUCTIONS ON TRANSLATIONS AND CULTURAL ADAPTATIONS.
Description of Instrument Charges
The SeaQoL instruments are widely available to users. These charges cover our costs only, we do not market our instruments on a for-profit basis. There is NO per-subject fee.
The cost covers:- the writing and updating of user manuals, including scoring programs and sample datasets;
- maintenance of our website; and
- the administration, preparation and distribution of related instrument documents.
For orders within the United States:
- We have different pricing for students, academic researchers/non-profits/public institutions and for-profit users.
- Payment for domestic orders must be made by check, money order or purchase order before receipt of instruments. We cannot accept credit cards.
For International orders:
- International orders must be paid by USD bank checks/money order (payable through a US bank) or wire transfer.
