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The following is a partial list of recent publications including SeaQoL Group authors.


Devine EB, Alfonso-Cristancho R, Yanez ND, Edwards TC, Patrick DL, Armstrong CA, Devlin A, Symons RG, Meissner MH, Derrick EL, Lavallee DC, Kessler LG, Flum DR; Comparative Effectiveness Research Translation Network (CERTAIN) Collaborative.. Effectiveness of a Medical vs Revascularization Intervention for Intermittent Leg Claudication Based on Patient-Reported Outcomes. JAMA Surg. 2016 Oct 19;151(10):e162024. doi: 10.1001/jamasurg.2016.2024.  PMID: 27760274


Cuervo J, Castejón N, Khalaf KM, Waweru C, Globe D, Patrick DL. Development of the Incontinence Utility Index: estimating population-based utilities associated with urinary problems from the Incontinence Quality of Life Questionnaire and Neurogenic Module. Health Qual Life Outcomes. 2014 Oct 8;12(1):147. doi: 10.1186/s12955-014-0147-7.  PMID: 25288099    PMCID: PMC4196092

Reed SC, Bell JF, Edwards TC. Weapon carrying, physical fighting and gang membership among youth in washington state military families. Matern Child Health J. 2014 Oct;18(8):1863-72. doi: 10.1007/s10995-014-1430-2.  PMID: 24463984

Brito E, Patrick DL, Konopken YP, Keller CS, Barroso CS, Shaibi GQ. Effects of a diabetes prevention programme on weight-specific quality of life in Latino youth. Pediatr Obes. 2014 Oct;9(5):e108-11. doi: 10.1111/ijpo.240. Epub 2014 Jun 5.  PMID: 24903526    PMCID: PMC4163087

Jiang XY, Wang HM, Edwards TC, Chen YP, Lv YR, Patrick DL. Measurement Properties of the Chinese Version of the Youth Quality of Life Instrument-Weight Module (YQOL-W). PLoS One. 2014 Sep 30;9(9):e109221. doi: 10.1371/journal.pone.0109221. eCollection 2014.  PMID: 25268884    PMCID: PMC4182632

Gallego CJ, Bennette CS, Heagerty P, Comstock B, Horike-Pyne M, Hisama F, Amendola LM, Bennett RL, Dorschner MO, Tarczy-Hornoch P, Grady WM, Fullerton SM, Trinidad SB, Regier DA, Nickerson DA, Burke W, Patrick DL, Jarvik GP, Veenstra DL. Comparative effectiveness of next generation genomic sequencing for disease diagnosis: Design of a randomized controlled trial in patients with colorectal cancer/polyposis syndromes. Contemp Clin Trials. 2014 Sep;39(1):1-8. doi: 10.1016/j.cct.2014.06.016. Epub 2014 Jul 3.  PMID: 24997220    PMCID: PMC4175052

Friedly J, Akuthota V, Amtmann D, Patrick D. Why disability and rehabilitation specialists should lead the way in patient-reported outcomes. Arch Phys Med Rehabil. 2014 Aug;95(8):1419-22. doi: 10.1016/j.apmr.2014.03.022. Epub 2014 Apr 13.  PMID: 24732170

Coronado GD, Jimenez R, Martinez-Gutierrez J, McLerran D, Ornelas I, Patrick D, Gutierrez R, Bishop S, Beresford SA. Multi-level Intervention to increase participation in mammography screening: ˇFortaleza Latina! study design. Contemp Clin Trials. 2014 Jul;38(2):350-4. doi: 10.1016/j.cct.2014.06.008. Epub 2014 Jun 18.  PMID: 24952281

Conway K, Acquadro C, Patrick DL. Usefulness of translatability assessment: results from a retrospective study. Qual Life Res. 2014 May;23(4):1199-210. doi: 10.1007/s11136-013-0572-9. Epub 2013 Nov 22.  PMID: 24264803

Flum DR, Alfonso-Cristancho R, Devine EB, Devlin A, Farrokhi E, Tarczy-Hornoch P, Kessler L, Lavallee D, Patrick DL, Gore JL, Sullivan SD; CERTAIN Collaborative. Implementation of a "real-world" learning health care system: Washington state's Comparative Effectiveness Research Translation Network (CERTAIN). Surgery. 2014 May;155(5):860-6. doi: 10.1016/j.surg.2014.01.004.  PMID: 24787113


Bennette CS, Trinidad SB, Fullerton SM, Patrick D, Amendola L, Burke W, Hisama FM, Jarvik GP, Regier DA, Veenstra DL. Return of incidental findings in genomic medicine: measuring what patients value--development of an instrument to measure preferences for information from next-generation testing (IMPRINT). Genet Med. 2013 Nov;15(11):873-81. doi: 10.1038/gim.2013.63.  PMID: 23722871    PMCID: PMC3823641

Wang HM, Bell JF, Edwards TC, Patrick DL. Weight status, quality of life, and cigarette smoking among adolescents in Washington State. Qual Life Res. 2013 Sep;22(7):1577-87. doi: 10.1007/s11136-012-0306-4. Epub 2012 Nov 13.  PMID: 23150168

Devine EB, Alfonso-Cristancho R, Devlin A, Edwards TC, Farrokhi ET, Kessler L, Lavallee DC, Patrick DL, Sullivan SD, Tarczy-Hornoch P, Yanez ND, Flum DR; CERTAIN Collaborative. A model for incorporating patient and stakeholder voices in a learning health care network: Washington State's Comparative Effectiveness Research Translation Network. J Clin Epidemiol. 2013 Aug;66(8 Suppl):S122-9. doi: 10.1016/j.jclinepi.2013.04.007.  PMID: 23849146

Patrick DL, Bell JF, Huang JY, Lazarakis NC, Edwards TC. Bullying and quality of life in youths perceived as gay, lesbian, or bisexual in Washington State, 2010. Am J Public Health. 2013 Jul;103(7):1255-61. doi: 10.2105/AJPH.2012.301101. Epub 2013 May 16.  PMID: 23678925

Matza LS, Patrick DL, Riley AW, Alexander JJ, Rajmil L, Pleil AM, Bullinger M. Pediatric Patient-Reported Outcome Instruments for Research to Support Medical Product Labeling: Report of the ISPOR PRO Good Research Practices for the Assessment of Children and Adolescents Task Force. Value Health. 2013 Jun;16(4):461-79. doi: 10.1016/j.jval.2013.04.004.  PMID: 23796280

Patrick DL, Khalaf KM, Dmochowski R, Kowalski JW, Globe DR. Psychometric Performance of the Incontinence Quality-of-Life Questionnaire Among Patients With Overactive Bladder and Urinary Incontinence. Clin Ther. 2013 Jun;35(6):836-45. doi: 10.1016/j.clinthera.2013.04.013. Epub 2013 Jun 5.  PMID: 23747076

Patrick D. Reporting of patient-reported outcomes in randomized trials: the CONSORT PRO extension. Value Health. 2013 Jun;16(4):455-6. doi: 10.1016/j.jval.2013.04.001.  PMID: 23796277

Meyer A, Sie K, Skalicky A, Edwards TC, Schick B, Niparko J, Patrick DL. Quality of life in youth with severe to profound sensorineural hearing loss. JAMA Otolaryngol Head Neck Surg. 2013 Mar;139(3):294-300. doi: 10.1001/jamaoto.2013.35.  PMID: 23657441

Schick B, Skalicky A, Edwards T, Kushalnagar P, Topolski T, Patrick D. School placement and perceived quality of life in youth who are deaf or hard of hearing. J Deaf Stud Deaf Educ. 2013 Jan;18(1):47-61. doi: 10.1093/deafed/ens039. Epub 2012 Nov 26.  PMID: 23184867    PMCID: PMC3521777


Matza LS, Fallowfield LJ, Chung KC, Currie BM, Van Brunt K, Patrick DL. Patient-reported outcome instruments used to assess pain and functioning in studies of bisphosphonate treatment for bone metastases. Support Care Cancer. 2012 Apr;20(4):657-77.  PMID: 22302082    PMCID: PMC3297753


Patrick D, Edwards T, Skalicky A. ?Glass Half Full or Glass Half Empty?: the Youth Quality of Life (YQOL) Generic and Condition-Specific Modules. PRO Newsletter. 2011 (Fall);46:25-30.

Patrick DL, Skalicky AM, Edwards TC, Kuniyuki A, Morales LS, Leng M, Kirschenbaum DS. Weight loss and changes in generic and weight-specific quality of life in obese adolescents. Qual Life Res. 2011 Aug;20(6):961-8. Epub 2010 Dec 28.  PMID: 21188537

Morales LS, Edwards TC, Flores Y, Barr L, Patrick DL. Measurement properties of a multicultural weight-specific quality-of-life instrument for children and adolescents. Qual Life Res. 2011 Mar;20(2):215-24. Epub 2010 Sep 6.  PMID: 20820926    PMCID: PMC3040311


Patrick DL, Topolski TD, Edwards TC, Aspinall CL, Kapp-Simon KA, Rumsey NJ, Strauss RP, Thomas CR. Measuring the quality of life of youth with facial differences. Cleft Palate Craniofac J. 2007 Sep;44(5):538-47.  PMID: 17760483

Diehr P, Lafferty WE, Patrick DL, Downey L, Devlin SM, Standish LJ. Quality of life at the end of life. Health Qual Life Outcomes. 2007 Aug 3;5:51.  PMID: 17683554    PMCID: PMC2077331

Drossman D, Morris CB, Hu Y, Toner BB, Diamant N, Whitehead WE, Dalton CB, Leserman J, Patrick DL, Bangdiwala SI. Characterization of health related quality of life (HRQOL) for patients with functional bowel disorder (FBD) and its response to treatment. Am J Gastroenterol. 2007 Jul;102(7):1442-53. Epub 2007 May 17.  PMID: 17509027

Norman GR, Wyrwich KW, Patrick DL. The mathematical relationship among different forms of responsiveness coefficients. Qual Life Res. 2007 Jun;16(5):815-22. Epub 2007 Mar 10.  PMID: 17351823

Strauss RP, Ramsey BL, Edwards TC, Topolski TD, Kapp-Simon KA, Thomas CR, Fenson C, Patrick DL. Stigma experiences in youth with facial differences: a multi-site study of adolescents and their mothers. Orthod Craniofac Res. 2007 May;10(2):96-103.  PMID: 17552946


Topolski TD, LoGerfo J, Patrick DL, Williams B, Walwick J, Patrick MB. The Rapid Assessment of Physical Activity (RAPA) among older adults. Prev Chronic Dis. 2006 Oct;3(4):A118. Epub 2006 Sep 15. Review.  PMID: 16978493    PMCID: PMC1779282

Mouradian WE, Edwards TC, Topolski TD, Rumsey N, Patrick DL. Are We Helping Children? Outcome Assessments in Craniofacial Care. In: Parens E, editor. Surgically shaping children: technology, ethics, and the pursuit of normality. Baltimore, MD: Johns Hopkins University Press; 2006. p. 141-56.


Edwards TC, Patrick DL, Topolski TD, Aspinall CL, Mouradian WE, Speltz ML. Approaches to craniofacial-specific quality of life assessment in adolescents. Cleft Palate Craniofac J. 2005 Jan;42(1):19-24.  PMID: 15643913

Topolski TD, Edwards TC, Patrick DL. Quality of life: how do adolescents with facial differences compare with other adolescents? Cleft Palate Craniofac J. 2005 Jan;42(1):25-32.  PMID: 15643924


Topolski TD, Edwards TC, Patrick DL. Toward youth self-report of health and quality of life in population monitoring. Ambul Pediatr. 2004 Jul-Aug;4(4 Suppl):387-94.  PMID: 15264944

Topolski TD, Edwards TC, Patrick DL, Varley P, Way ME, Buesching DP. Quality of life of adolescent males with attention-deficit hyperactivity disorder. J Atten Disord. 2004 Feb;7(3):163-73.  PMID: 15260173

Patrick DL, Bushnell DM, Rothman M. Performance of two self-report measures for evaluating obesity and weight loss. Obes Res. 2004 Jan;12(1):48-57.  PMID: 14742842


Patrick DL. Patient-Reported Outcomes (PROs): An organizing tool for concepts, measures, and applications. Quality of Life Newsletter. 2003;31(Fall):1-5.

Patel KK, Veenstra DL, Patrick DL. A review of selected patient-generated outcome measures and their application in clinical trials. Value Health. 2003 Sep-Oct;6(5):595-603. Review.  PMID: 14627066

Patrick DL, Ferketich SL, Frame PS, Harris JJ, Hendricks CB, Levin B, Link MP, Lustig C, McLaughlin J, Ried LD, Turrisi AT 3rd, Unützer J, Vernon SW; National Institutes of Health State-of-the-Science Panel. National Institutes of Health State-of-the-Science Conference Statement: Symptom Management in Cancer: Pain, Depression, and Fatigue, July 15-17, 2002. J Natl Cancer Inst. 2003 Aug 6;95(15):1110-7. Review.  PMID: 12902440

Edwards TC, Patrick DL, Topolski TD. Quality of life of adolescents with perceived disabilities. J Pediatr Psychol. 2003 Jun;28(4):233-41.  PMID: 12730280


Belza B, Topolski T, Kinne S, Patrick DL, Ramsey SD. Does adherence make a difference? Results from a community-based aquatic exercise program. Nurs Res. 2002 Sep-Oct;51(5):285-91.  PMID: 12352776

Patrick DL, Edwards TC, Topolski TD. Adolescent quality of life, part II: initial validation of a new instrument. J Adolesc. 2002 Jun;25(3):287-300.  PMID: 12128039

Edwards TC, Huebner CE, Connell FA, Patrick DL. Adolescent quality of life, part I: conceptual and measurement model. J Adolesc. 2002 Jun;25(3):275-86.  PMID: 12128038


Topolski TD, Patrick DL, Edwards TC, Huebner CE, Connell FA, Mount KK. Quality of life and health-risk behaviors among adolescents. J Adolesc Health. 2001 Dec;29(6):426-35.  PMID: 11728892

Ramsey SD, Spencer AC, Topolski TD, Belza B, Patrick DL. Use of alternative therapies by older adults with osteoarthritis. Arthritis Rheum. 2001 Jun;45(3):222-7.  PMID: 11409661

Patrick DL, Ramsey SD, Spencer AC, Kinne S, Belza B, Topolski TD. Economic evaluation of aquatic exercise for persons with osteoarthritis. Med Care. 2001 May;39(5):413-24.  PMID: 11317090


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