Tag Archives: mucopolysaccharidoses
17(2) Families as Partners – A view of a family and their child with a progressive, degenerative special health care need
The purpose of this article is to share one family’s experience of rearing a child with a progressive, degenerative special health care need and to provide a nutrition case study of Matt. The article will include medical and nutrition information … Continue reading →
Posted in General Topics Related to CSHCN, Uncategorized
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Tagged behavior, development, family centered care, feeding, growth, Hunter syndrome, metabolic disorders, mucopolysaccharidoses, team members, transition
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