Tag Archives: transition

33(6) Prader-Willi Syndrome – Nutrition Update

Posted on June 30, 2019 by nutrfoc

Max, a 6-month-old infant, has recently had a gastrostomy tube placed after receiving breast milk via NG tube due to significant hypotonia. His length is <5th percentile, weight is at 5th percentile, and weight-for-length is 50th percentile. Maddie is 4 … Continue reading →

Posted in Specific Conditions | Tagged assessment, behavior, calories, CSHCN, development, education, energy, enteral nutrition, failure to thrive, family centered care, feeding, genetics, growth, growth charts, infants, intervention, nutrition management, obesity, physical activity, prader-willi syndrome, school, team members, transition | Comments Off

32(3) Nutrition and Feeding for the Premature Infant after Hospital Discharge

Posted on May 1, 2017 by nutrfoc

In the United States about 1 in 10 babies is born at less than 37 weeks gestation. The most recent data available (2015) identified preterm births accounting for 9.63% of births (approximately 383,130 infants) in the United States (US). This … Continue reading →

Posted in Nutrition-related Issues, Specific Conditions | Tagged assessment, calories, CSHCN, development, energy, failure to thrive, family centered care, feeding, fluid, growth, growth charts, infants, late preterm, nutrition management, oral-motor, prematurity, preterm, protein, reflux, team members, transition | Comments Off

30(2) Nutrition Issues for Children with Down Syndrome

Posted on March 1, 2015 by nutrfoc

Within the community, many health care professionals who work with children with special health care needs have seen families with children who have Down syndrome (DS). Over the last 5 decades individuals with DS have moved out of institutions and … Continue reading →

Posted in Specific Conditions | Tagged complementary therapies', down syndrome, education, energy, enteral nutrition, failure to thrive, family centered care, feeding, fluid, genetics, growth, growth charts, intervention, nutrition management, team members, transition | Comments Off

29(5) A Focus on Family-Centered Care from the Parent’s Perspective

Posted on September 1, 2014 by nutrfoc

The term “family-centered care” (FCC) was coined in the 1980’s to describe a philosophy of care for children with special health care needs and their families. It was a radical paradigm shift from the previous philosophies of “systemcentered care” in … Continue reading →

Posted in General Topics Related to CSHCN | Tagged ABA, autism, CSHCN, enteral nutrition, family centered care, feeding, prematurity, resources, school, team, team members, transition, tube feeding | Comments Off

29(4) Weaning from tube feedings: many different pathways Part 2B – Case Study Illustrations

Posted on July 1, 2014 by nutrfoc

These detailed and comprehensive case studies complement Part 1 of this topic published in November/December 2013. Due to the depth of information shared within the case studies which contributed to many pages we have decided to publish the case studies … Continue reading →

Posted in Nutrition-related Issues | Tagged assessment, behavior, calories, constipation, CSHCN, education, energy, enteral nutrition, failure to thrive, family centered care, growth, hunger, intervention, nutrition management, oral-motor, resources, team members, transition, tube feeding, weaning | Comments Off

29(3) Weaning from tube feedings: many different pathways Part 2A – Case Study Illustrations

Posted on May 1, 2014 by nutrfoc

This article is Part 2 of the series. Part 1 was published in November/December 2013. It can be accessed by those who have a current subscription to the Nutrition Focus newsletter (https://depts.washington.edu/nutrfoc). Part 1 describes several models of treatment for … Continue reading →

Posted in General Topics Related to CSHCN, Nutrition-related Issues | Tagged assessment, behavior, calories, CSHCN, energy, enteral nutrition, family centered care, feeding, growth, intervention, nutrition management, oral-motor, team members, transition, tube feeding | Comments Off

28(6) Weaning from tube feedings: many different pathways Part I

Posted on November 1, 2013 by nutrfoc

Developing the ability to eat by mouth and grow at an appropriate rate is usually viewed as a simple part of infancy and childhood. When a baby is born, the parents expect this process will unfold smoothly for both parent … Continue reading →

Posted in General Topics Related to CSHCN | Tagged enteral nutrition, feeding, growth, nutrition management, oral-motor, team members, transition, tube feeding, weaning | Comments Off

28(4) Phenylketonuria (PKU) and Hyperphenylalaninemia (HPA) – A Review

Posted on June 1, 2013 by nutrfoc

Phenylketonuria (PKU) and hyperphenylalaninemia (HPA) are metabolic disorders that affect an enzyme required for the conversion of phenylalanine to tyrosine, leading to a build-up of the amino acid phenylalanine (Phe) in the blood. Increased blood levels of Phe are associated … Continue reading →

Posted in Specific Conditions | Tagged assessment, down syndrome, education, family centered care, genetics, metabolic disorders, nutrition management, pku, team members, transition | Comments Off

20(3) Passing the Baton: Nutrition and Transition to Adulthood for Youth with Special Health Care Needs Using Enteral Nutrition

Posted on June 30, 2005 by nutrfoc

This issue of NUTRITION FOCUS explores issues related to transition from pediatric to adult care, for children with special health care needs who use enteral nutrition. Subscription required to view the full newsletter

Posted in General Topics Related to CSHCN, Nutrition-related Issues, Uncategorized | Tagged CSHCN, enteral nutrition, family centered care, resources, team members, transition, tube feeding | Comments Off

17(2) Families as Partners – A view of a family and their child with a progressive, degenerative special health care need

Posted on April 30, 2002 by nutrfoc

The purpose of this article is to share one family’s experience of rearing a child with a progressive, degenerative special health care need and to provide a nutrition case study of Matt. The article will include medical and nutrition information … Continue reading →

Posted in General Topics Related to CSHCN, Uncategorized | Tagged behavior, development, family centered care, feeding, growth, Hunter syndrome, metabolic disorders, mucopolysaccharidoses, team members, transition | Comments Off

Tag Archives: transition

33(6) Prader-Willi Syndrome – Nutrition Update

30(2) Nutrition Issues for Children with Down Syndrome

28(4) Phenylketonuria (PKU) and Hyperphenylalaninemia (HPA) – A Review

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