COPD Studies

Improving the Quality of End of Life Care for Patients with COPD
Principal Investigator:  JR Curtis
Career Investigator Development Award:  American Lung Association, July 1998 to June 2002

The objectives of this study were to identify the barriers and facilitators to patient-physician communication about end-of-life care for patients with end-stage COPD, to develop and validate a measure of the quality of patient-physician communication about end-of-life care for persons with end-stage COPD, and to determine whether increased quality of communication is associated with increased quality of end-of-life medical care.

 

Improving The Quality Of Clinician-Patient Communication For Non-English Speaking Patients With COPD
Principal Investigator:  JR Curtis
Research Grant:  Firlands Foundation, July 2001 to June 2005

The long-term objective of this proposal was to improve the quality of end-of-life care for patients with chronic lung diseases who are from other cultures. This was a pilot study to gain a better understanding of how to communicate with patients from other cultures and countries about end-of-life issues and by developing culturally-sensitive techniques and interventions that aimed improve communication about end-of-life care. The specific aims were: 1) to describe the role of culture and ethnicity on the attitudes that patients with severe COPD have toward communication about end-of-life care; and 2) to assess the cultural relevance of a questionnaire designed to measure the quality of communication about end-of-life care.

Publications from these studies include:

Janssen DJA, Curtis JR, Spruit MA, Downey L, Schols JMGA, Wouters EFM, Engelberg RA.  Patient-clinician communication about end-of-life care care for Dutch and US patients with COPD. Eur Respir . 2011 Aug;38(2):268-76. Epub 2011 Jan 13. [#152]

Downey L, Engelberg RA, Curtis JR, Lafferty WE, Patrick DL.  Shared priorities for the end-of-life period.  J Pain Symptom Manage. 2009 Feb;37(2):175-88. Epub 2008 Aug 22. [#111]

Engelberg R, Downey L, Curtis JR.  Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care.  J Palliat Med. 2006 Oct;9(5):1086-98. [#79]

Curtis JR, Engelberg RA, Wenrich MD, Au DH.  Communication about palliative care for patients with chronic obstructive pulmonary disease.  J Palliat Care. 2005 Autumn;21(3):157-64. [#69]

Knauft ME, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR.  Barriers and facilitators to end-of-life care communication for patients with COPD.  Chest. 2005;127: 2188-2196 [#60]

Stapleton RD, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR.  Association of depression and life-sustaining treatment preferences in patients with COPD.  Chest. 2005 Jan;127(1):328-34. [#56]

Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL.  Patient-physician communication about end-of-life care for patients with COPD.  Eur Respir J. 2004; 24: 200-205. [#53]