Publications

Book:

Curtis JR, Rubenfeld GD (eds.). The Transition from Cure to Comfort: Managing Death in the ICU. Oxford University Press: New York, 2001.

Articles & Editorials:

[#202] Wysham NG, Mularski RA, Schmidt DM, Nord SC, Louis DL, Shuster E, Curtis JR, Mosen DM. Long-term persistence of quality improvements for an intensive care unit communication initiative using the VALUE strategy. J Crit Care. 2013 Dec 21. pii: S0883-9441(13)00474-7. [Epub ahead of print]

[#201] Curtis JR, Sprung CL, Azoulay E. The importance of word choice in the care of critically ill patients and their families. Intensive Care Med. 2014 Jan 18. [Epub ahead of print]

[#200] Long AC, Curtis JR. The epidemic of physician-family conflict in the ICU and what we should do about it. Crit Care Med. 2014 Feb;42(2):461-2.

[#199] Khandelwal N, Curtis JR. Clinical and economic implications of timing of limitations in life support. Crit Care Med. 2014 Feb;42(2):455-6.

[#198] Curtis JR, Back AL, Ford DW, Downey L, Shannon SE, Doorenbos AZ, Kross EK, Reinke LF, Feemster LC, Edlund B, Arnold RW, O’Connor K, Engelberg RA. Effect of communication skills training for residents and nurse practitioners on quality of communication with patients with serious illness: a randomized trial. JAMA. 2013 Dec 4;310(21):2271-81.

[#197] Lewis-Newby M, Curtis JR. Family centered care at the end of a child’s life: we must get this right. Minerva Anestesiol. 2013 Dec;79(12):1321-3.

[#196] Bays AM, Engelberg RA, Back AL, Ford DW, Downey L, Shannon SE, Doorenbos AZ, Edlund B, Christianson P, Arnold RW, O’Connor K, Kross EK, Reinke LF, Feemster LC, Edwards K, Alexander SC, Tulsky JA, Curtis JR. Interprofessional communication skills training for serious illness: evaluation of a small-group, simulated patient intervention. J Palliat Med. 2013 Nov 1. [Epub ahead of print]

[#195] Kross EK, Engelberg RA, Downey L, Cuschieri J, Hallman MR, Longstreth WT Jr, Tirschwell DL, Curtis JR. Differences in end-of-life care in the ICU across patients cared for by medicine, surgery, neurology and neurosurgery physicians. Chest. 2013 Oct 10. [Epub ahead of print]

[#194] DeCato TW, Engelberg RA, Downey L, Nielsen EL, Treece PD, Back AL, Shannon SE, Kross EK, Curtis JR. Hospital variation and temporal trends in palliative and end-of-life care in the ICU. Crit Care Med. 2013 Jun;41(6):1405-11.

[#193] Long AC, Curtis JR. Physicians’ decision-making roles for critically ill patients: what is the “right” approach? Crit Care Med. 2013 Jun;41(6):1587-8.

[#192] Aziz NM, Grady PA, Curtis JR. Training and career development in palliative care and end-of-life research: opportunities for development in the U.S. J Pain Symptom Manage. 2013 Apr 27.  [Epub ahead of print]

[#191] Schleyer AM, Curtis JR. Family satisfaction in the ICU: why should ICU clinicians care? Intensive Care Med. 2013 Jun;39(6):1143-5. Epub 2013 Apr 24.

[#190] Gries CJ, Dew MA, Curtis JR, Edelman JD, DeVito Dabbs A, Pilewski JM, Goss CH, Mulligan MS, White DB. Nature and correlates of post-traumatic stress symptomatology in lung transplant recipients. J Heart Lung Transplant. 2013 May;32(5):525-32.

[#189] Decato TW, Engelberg RA, Downey L, Nielsen EL, Treece PD, Back AL, Shannon SE, Kross EK, Curtis JR. Hospital Variation and Temporal Trends in Palliative and End-of-Life Care in the ICU. Crit Care Med. 2013 Jun;41(6):1405-11.

[#188] Curtis JR, Downey L, Engelberg RA. The quality of dying and death: is it ready for use as an outcome measure? Chest. 2013 Feb 1;143(2):289-91.

[#187] Curtis JR. The use of informed assent in withholding cardiopulmonary resuscitation in the ICU. Virtual Mentor. 2012 Jul 1;14(7):545-50.

[#186] Billings ME, Lazarus ME, Wenrich M, Curtis JR, Engelberg RA. The effect of the hidden curriculum on resident burnout and cynicism. J Grad Med Educ. 2011 Dec;3(4):503-10.

[#185] Doorenbos A, Lindhorst T, Starks H, Aisenberg E, Curtis JR, Hays R. Palliative Care in the Pediatric ICU: Challenges and Opportunities for Family-Centered Practice. J Soc Work End Life Palliat Care. 2012 Dec;8(4):297-315.

[#184] Zaros MC, Curtis JR, Silveira MJ, Elmore JG. Opportunity lost: End-of-life discussions in cancer patients who die in the hospital. J Hosp Med. 2012 Nov 20. [Epub ahead of print]

[#183] Aziz NM, Miller JL, Curtis JR. Palliative and end-of-life care research: Embracing new opportunities. Nurs Outlook. 2012 Nov;60(6):384-90.

[#182]  Downey L, Au DH, Curtis JR, Engelberg RA. Life-Sustaining Treatment Preferences: Matches and Mismatches Between Patients’ Preferences and Clinicians’ Perceptions. J Pain Symptom Manage. 2012 Sep 24. [Epub ahead of print]

[#181] Curtis JR, Engelberg RA, Bensink ME, Ramsey SD. End-of-life care in the intensive care unit: can we simultaneously increase quality and reduce costs? Am J Respir Crit Care Med. 2012 Oct 1;186(7):587-92. Epub 2012 Aug 2.

[#180] Curtis JR, Ciechanowski PS, Downey L, Gold J, Nielsen EL, Shannon SE, Treece PD, Young JP, Engelberg RA.  Development and evaluation of an interprofessional communication intervention to improve family outcomes in the ICU. Contemp Clin Trials. 2012 Nov;33(6):1245-54. Epub 2012 Jul 6.

[#179] Kross EK, Nielsen EL, Curtis JR, Engelberg RA.  Survey burden for family members surveyed about end-of-life care in the intensive care unit. J Pain Symptom Manage. 2012 Nov;44(5):671-80. Epub 2012 Jul 3.

[#178] Dale CR, Hayden SJ, Treggiari MM, Curtis JR, Seymour CW, Yanez ND 3rd, Fan VS.  Association between hospital volume and network membership and an analgesia, sedation and delirium order set quality score: a cohort study. Crit Care. 2012 Jun 18;16(3):R106. [Epub ahead of print]

[#177] Osborn TR, Curtis JR, Nielsen EL, Back AL, Shannon SE, Engelberg RA.  Identifying elements of ICU care that families report as important but unsatisfactory: decision-making, control and ICU atmosphere. Chest. 2012; 142(5):1185–1192. Epub 2012 May 31.

[#176] Tonelli MR, Curtis JR, et al.; ACCP/ATS/SCCM Working Group.  An official multi-society statement: the role of clinical research results in the practice of critical care medicine. Am J Respir Crit Care Med. 2012 May 15;185(10):1117-24.

[#175] Cooke CR, Curtis JR.  Admitting patients with preset treatment limitations to the intensive care unit: An opportunity to clarify goals of care. Crit Care Med. 2012 Jul;40(7):2239-41.

[#174] Kross EK, Curtis JR.  ICU clinicians’ perceptions of appropriateness of care and the importance of nurse-physician collaboration. Arch Intern Med. 2012 Jun 11;172(11):889-90.

[#173] Dickson RP, Engelberg RA, Back AL, Ford DW, Curtis JR.  Internal medicine trainee self-assessments of end-of-life communication skills do not predict assessments of patients, families, or clinician-evaluators. J Palliat Med. 2012 Apr;15(4):418-26. Epub 2012 Apr 4.

[#172] Lustbader DR, Nelson JE, Weissman DE, Hays RM, Mosenthal AC, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Brasel KJ, Campbell ML, Cortez TB, Curtis JR; IPAL-ICU Project. Physician reimbursement for critical care services integrating palliative care for patients who are critically ill. Chest. 2012 Mar;141(3):787-92.

[#171] Nelson JE, Azoulay E, Curtis JR, Mosenthal AC, Mulkerin CM, Puntillo K, Siegel MD. Palliative care in the ICU. J Palliat Med. 2012 Feb;15(2):168-74. Epub 2012 Jan 26.

[#170] Ford DW, Downey L, Engelberg R, Back AL, Curtis JR. Discussing religion and spirituality is an advanced communication skill: an exploratory structural equation model of physician trainee self-ratings. J Palliat Med. 2012 Jan;15(1):63-70. Epub 2012 Jan 13.

[#169] Lewis-Newby M, Curtis JR, Martin DP, Engelberg RA. Measuring family satisfaction with care and quality of dying in the intensive care unit: does patient age matter? J Palliat Med. 2011 Dec;14(12):1284-90. Epub 2011 Nov 22.

[#168] Mosenthal AC, Weissman DE, Curtis JR, Hays RM, Lustbader DR, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Brasel KJ, Campbell M, Nelson JE. Integrating palliative care in the surgical and trauma intensive care unit: a report from the Improving Palliative Care in the Intensive Care Unit (IPAL-ICU) Project Advisory Board and the Center to Advance Palliative Care. Crit Care Med. 2012 Apr;40(4):1199-1206. Epub 2011 Nov 10.

[#167]  Janssen DJ, Spruit MA, Schols JM, Cox B, Nawrot TS, Curtis JR, Wouters EF.  Predicting changes in preferences for life-sustaining treatment among patients with advanced chronic organ failure. Chest. 2012 May;141(5):1251-9. Epub 2011 Oct 20.

[#166]  Patel K, Janssen DJ, Curtis JR.  Advance care planning in COPD. Respirology. 2012 Jan;17(1):72-8. Epub 2011 Oct 18.

[#165]  Au DH, Udris EM, Engelberg RA, Diehr PH, Bryson CL, Reinke LF, Curtis JR.  A randomized trial to improve communication about end-of-life care among patients with COPD. Chest. 2012 Mar;141(3):726-35. Epub 2011 Sep 22.

[#164]  Nelson JE, Cortez TB, Curtis JR, Lustbader DR, Mosenthal AC, Mulkerin C, Ray DE, Bassett R, Boss RD, Brasel KJ, Campbell ML, Weissman DE, Puntillo KA; The IPAL-ICU Project™.  Integrating Palliative Care in the ICU: The Nurse in a Leading Role. J Hosp Palliat Nurs. 2011 Mar;13(2):89-94.

[#163]  Curtis JR.  Reimbursement for advance care planning: why should intensivists care?  Am J Respir Crit Care Med. 2011 Aug 15;184(4):387-8.

[#162]  Reinke LF, Slatore CG, Uman J, Udris EM, Moss BR, Engelberg RA, Au DH.  Patient-clinician communication about end-of-life care topics: is anyone talking to patients with chronic obstructive pulmonary disease? J Palliat Med. 2011 Aug;14(8):923-8. Epub 2011 Jun 1.

[#161]  Gristina GR, De Gaudio R, Mazzon D, Curtis JR.  End-of-life care in Italian intensive care units: where are we now? Minerva Anestesiol. 2011 Sep;77(9):911-20. Epub 2011 Apr 14.

[#160]  Curtis JR, Tonelli MR.  Shared decision-making in the ICU: value, challenges, and limitations. Am J Respir Crit Care Med. 2011 Apr 1;183(7):840-1.

[#159]  Muni S, Engelberg RA, Treece PD, Dotolo D, Curtis JR.  The influence of race/ethnicity and socioeconomic status on end-of-life care in the intensive care unit. Chest. 2011 May;139(5):1025-33. Epub 2011 Feb 3.

[#158]  Muni S, Curtis JR.  Race and ethnicity in the intensive care unit: what do we know and where are we going? (editorial) Crit Care Med. 2011 Mar;39(3):579-80.

[#157]  Curtis JR, Engelberg RA.  What is the “right” intensity of care at the end of life and how do we get there? (editorial) Ann Intern Med. 2011 Feb 15;154(4):283-4.

[#156]  Janssen DJ, Engelberg RA, Wouters EF, Curtis JR.  Advance care planning for patients with COPD: past, present and future. Patient Educ Couns. 2012 Jan;86(1):19-24. Epub 2011 Feb 12.

[#155]  Muni S, Engelberg RA, Treece PD, Dotolo D, Curtis JR.  The influence of race/ethnicity and socioeconomic status on end-of-life care in the intensive care unit. Chest. 2011 May;139(5):1025-33. Epub 2011 Feb 3.

[#154]  Ho LA, Engelberg RA, Curtis JR, Nelson J, Luce J, Ray DE, Levy MM.  Comparing clinician ratings of the quality of palliative care in the intensive care unit. Crit Care Med. 2011 May;39(5):975-83. Epub 2011 Jan 28.

[#153]  Curtis JR, Levy MM. Improving the science and politics of quality improvement. JAMA. 2011 Jan 26;305(4):406-7. Epub 2011 Jan 19.

[#152]  Janssen DJ, Curtis JR, Au DH, Spruit MA, Downey L, Schols JM, Wouters EF, Engelberg RA.  Patient-clinician communication about end-of-life care for Dutch and US patients with COPD. Eur Respir J.  2011 Aug;38(2):268-76. Epub 2011 Jan 13.

[#151]  Ehlenbach WJ, Curtis JR.  The meaning of do-not-resuscitation orders: a need for clarity. Crit Care Med. 2011 Jan;39(1):193-4.

[#150]  Curtis JR, Vincent JL.  Ethics and end-of-life care for adults in the intensive care unit. Lancet. 2010 Oct 16;376(9749):1347-53. Epub 2010 Oct 11.

[#149]  Curtis JR, Nielsen EL, Treece PD, Downey L, Dotolo D, Shannon SE, Back AL, Rubenfeld GD, Engelberg RA.  Effect of a quality-improvement intervention on end-of-life care in the intensive care unit: a randomized trial. Am J Respir Crit Care Med. 2011 Feb 1;183(3):348-55. Epub 2010 Sep 10.

[#148]  Kross EK, Engelberg RA, Gries CJ, Nielsen EL, Zatzick D, Curtis JR.  ICU care associated with symptoms of depression and PTSD among family members of those who die in the ICU. Chest. 2011 Apr;139(4):795-801. Epub 2010 Sep 9.

[#147]  Janssen DJ, Engelberg RA, Curtis JR.  Toward patient-tailored education in COPD. Patient Educ Couns. 2010 Oct;81(1):1-2. Epub 2010 Aug 11.

[#146]  Curtis JR, Burt RA.  Futility in the intensive care unit: hard cases make bad law. Crit Care Med. 2010 Aug;38(8):1742-3.

[#145]  White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR.  The language of prognostication in intensive care units. Med Decis Making. 2010; 30:76-83.

[#144]  White DB, Malvar G, Karr J, Lo B, Curtis JR.  Expanding the paradigm of the physician’s role in surrogate decision-making: an empirically derived framework. Crit Care Med. 2010; 38:743-750.

[#143]  Doorenbos AZ, Lindhorst T, Schim SM, Van Schaik E, Demiris G, Wechkin HA, Curtis JR.  Development of a web-based educational intervention to improve cross-cultural communication among hospice providers. J Soc Work End Life Palliat Care. 2010 Jul;6(3-4):236-55.

[#142]  Reinke LF, Shannon SE, Engelberg R, Dotolo D, Silvestri GA, Curtis JR.  Nurses’ identification of important yet under-utilized end-of-life care skills for patients with life-limiting or terminal illnesses. J Palliat Med. 2010 Jun;13(6):753-9.

[#141]  Reinke LF, Shannon SE, Engelberg RA, Young JP, Curtis JR.  Supporting hope and prognostic information: nurses’ perspectives on their role when patients have life-limiting prognoses. J Pain Symptom Manage. 2010 Jun;39(6):982-92.

[#140]  Engelberg RA, Downey L, Wenrich MD, Carline JD, Silvestri GA, Dotolo D, Nielsen EL, Curtis JR.  Measuring the quality of end-of-life care. J Pain Symptom Manage. 2010 Jun;39(6):951-71.

[#139]  Cooke CR, Hotchkin DL, Engelberg RA, Rubinson L, Curtis JR.  Predictors of time to death after terminal withdrawal of mechanical ventilation in the ICU. Chest. 2010 Aug;138(2):289-97. Epub 2010 Apr 2.

[#138]  Slatore CG, Cecere LM, Reinke LF, Ganzini L, Udris EM, Moss BR, Bryson CL, Curtis JR, Au DH.  Patient-clinician communication: associations with important health outcomes among veterans with COPD. Chest. 2010 Sep;138(3):628-34. Epub 2010 Mar 18.

[#137]  Downey L, Engelberg RA.  Quality-of-life trajectories at the end of life: assessments over time by patients with and without cancer. J Am Geriatr Soc. 2010 Mar;58(3):472-9.

[#136]  White DB, Malvar G, Karr J, Lo B, Curtis JR.  Expanding the paradigm of the physician’s role in surrogate decision-making: an empirically derived framework. Crit Care Med. 2010 Mar;38(3):743-50.

[#135]  Billings ME, Engelberg RA, Curtis JR, Block S, Sullivan AM.  Determinants of medical students’ perceived preparation to perform end-of-life care, quality of end-of-life care education, and attitudes toward end-of-life care. J Palliat Med. 2010 Mar;13(3):319-26.

[#134]  McCormick AJ, Curtis JR, Stowell-Weiss P, Toms C, Engelberg RA.  Improving social work in intensive care unit palliative care: results of a quality improvement intervention. J Palliat Med. 2010 Mar;13(3):297-304.

[#133]  Ehlenbach WJ, Hough CL, Crane PK, Haneuse SJ, Carson SS, Curtis JR, Larson EB.  Association between acute care and critical illness hospitalization and cognitive function in older adults. JAMA. 2010 Feb 24;303(8):763-70.

[#132]  Curtis JR.  Life and death decisions in the middle of the night: teaching the assessment of decision-making capacity. Chest. 2010 Feb;137(2):248-50.

[#131]  Thornton JD, Curtis JR, Allen MD.  Primary care physicians’ attitudes and practices regarding discussing organ donation with their patients. J Natl Med Assoc. 2010 Jan;102(1):52-8.

[#130]  Isaac M, Curtis JR.  Improving quality of life for patients with terminal respiratory disease. Expert Rev Respir Med. 2009 Dec;3(6):597-605.

[#129]  Hammer B, Mathers J, Curtis JR, Levy MM.  An open letter to President Obama on health care reform. Am J Crit Care. 2009 Nov;18(6):512-3.

[#128]  Billings ME, Curtis JR, Engelberg RA.  Medicine residents’ self-perceived competence in end-of-life care. Acad Med. 2009 Nov;84(11):1533-9.

[#127]  Downey L, Curtis JR, Lafferty WE, Herting JR, Engelberg RA.  The quality of dying and death questionnaire (QODD): empirical domains and theoretical perspectives. J Pain Symptom Manage. 2010 Jan;39(1):9-22. Epub 2009 Sep 25.

[#126]  Gries CJ, Engelberg RA, Kross EK, Zatzick D, Nielsen EL, Downey L, Curtis JR.  Predictors of symptoms of post-traumatic stress and depression in family members after patient death in the intensive care unit. Chest. 2010 Feb;137(2):280-7. Epub 2009 Sep 17.

[#125]  Buckley JD, Addrizzo-Harris DJ, Clay AS, Curtis JR, Kotloff RM, Lorin SM, Murin S, Sessler CN, Rogers PL, Rosen MJ, Spevetz A, King TE Jr, Malhotra A, Parsons PE.  Multisociety task force recommendations of competencies in pulmonary and critical care medicine. Am J Respir Crit Care Med. 2009 Aug 15;180(4):290-5.

[#124]  Kross EK, Engelberg RA, Shannon SE, Curtis JR.  Potential for response bias in family surveys about end-of-life care in the ICU. Chest. 2009 Dec;136(6):1496-502. Epub 2009 Jul 17.

[#123]  Ehlenbach WJ, Barnato AE, Curtis JR, Kreuter W, Koepsell TD, Deyo RA, Stapleton RD.  Epidemiologic study of in-hospital cardiopulmonary resuscitation in the elderly. N Engl J Med. 2009 Jul 2;361(1):22-31.

[#122]  Downey L, Engelberg RA, Standish LJ, Kozak L, Lafferty WE.  Three lessons from a randomized trial of massage and meditation at end of life: patient benefit, outcome measure selection, and design of trials with terminally ill patients. Am J Hosp Palliat Care. 2009 Aug-Sep;26(4):246-53. Epub 2009 Apr 24.

[#121]  Curtis JR, Morrison RS.  The future of funding for palliative care research: suggestions for our field. J Palliat Med. 2009 Jan;12(1):26-8.

[#120]  Back AL, Young JP, McCown E, Engelberg RA, Vig EK, Reinke LF, Wenrich MD, McGrath BB, Curtis JR.  Abandonment at the end of life from patient, caregiver, nurse, and physician perspectives: loss of continuity and lack of closure. Arch Intern Med. 2009 Mar 9;169(5):474-9.

[#119]  Starks H, Diehr P, Curtis JR.  The challenge of selection bias and confounding in palliative care research. J Palliat Med. 2009 Feb;12(2):181-7.

[#118]  Engelberg RA, Wenrich MD, Curtis JR.  Responding to families’ questions about the meaning of physical movements in critically ill patients. J Crit Care. 2008 Dec;23(4):565-71.

[#117]  Thornton JD, Pham K, Engelberg RA, Jackson JC, Curtis JR.  Families with limited English proficiency receive less information and support in interpreted intensive care unit family conferences. Crit Care Med. 2009 Jan;37(1):89-95.

[#116]  Kross EK, Gries CJ, Curtis JR.  Post-traumatic stress disorder following critical illness. Crit Care Clin. 2008 Oct;24(4):875-87, ix-x.

[#115]  Curtis JR, White DB.  Practical guidance for evidence-based ICU family conferences. Chest. 2008 Oct;134(4):835-43. Review.

[#114]  White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR.  The language of prognostication in intensive care units. Med Decis Making. 2010 Jan-Feb;30(1):76-83. Epub 2008 Aug 27.

[#113]  Gerstel E, Engelberg RA, Koepsell T, Curtis JR.  Duration of withdrawal of life support in the intensive care unit and association with family satisfaction. Am J Respir Crit Care Med. 2008 Oct 15;178(8):798-804.

[#112]  Selph RB, Shiang J, Engelberg R, Curtis JR, White DB.  Empathy and life support decisions in intensive care units. J Gen Intern Med. 2008 Sep;23(9):1311-7.

[#111]  Downey L, Engelberg RA, Curtis JR, Lafferty WE, Patrick DL.  Shared priorities for the end-of-life period. J Pain Symptom Manage. 2009 Feb;37(2):175-88. Epub 2008 Aug 22.

[#110]  Starks H, Curtis JR.  Is withholding life support associated with a premature death? If so, what does this mean for ICU practice? Chest. 2008 Jun;133(6):1298-300.

[#109]  Kross EK, Curtis JR.  Burden of psychological symptoms and illness in family of critically ill patients: what is the relevance for critical care clinicians? Crit Care Med. 2008 Jun;36(6):1955-6.

[#108]  Curtis JR, Treece PD, Nielsen EL, Downey L, Shannon SE, Braungardt T, Owens D, Steinberg KP, Engelberg RA.  Integrating palliative and critical care: evaluation of a quality-improvement intervention. Am J Respir Crit Care Med. 2008 Aug 1;178(3):269-75.

[#107]  Curtis JR, Engelberg R, Young JP, Vig LK, Reinke LF, Wenrich MD, McGrath B, McCown E, Back AL.  An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer. J Palliat Med. 2008 May;11(4):610-20.

[#106] Reinke LF, Engelberg RA, Shannon SE, Wenrich MD, Vig EK, Back AL, Curtis JR.  Transitions regarding palliative and end-of-life care in severe chronic obstructive pulmonary disease or advanced cancer: themes identified by patients, families, and clinicians. J Palliat Med. 2008 May;11(4):601-9.

[#105]  Ehlenbach WJ, Curtis JR.  Noninvasive ventilation for patients near the end of life: what do we know and what do we need to know? Crit Care Med. 2008 Mar;36(3):1003-4.

[#104]  Truog RD, Campbell ML, Curtis JR, Haas CE, Luce JM, Rubenfeld GD, Rushton CH, Kaufman DC; AACCM.  Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American Academy of Critical Care Medicine. Crit Care Med. 2008 Mar;36(3):953-63.

[#103]  Glavan BJ, Engelberg RA, Downey L, Curtis JR.  Using the medical record to evaluate the quality of end-of-life care in the intensive care unit. Crit Care Med. 2008 Apr;36(4):1138-46.

[#102]  Curtis JR.  Caring for patients with critical illness and their families: the value of the integrated clinical team. Respir Care. 2008 Apr;53(4):480-7.

[#101]  Pham K, Thornton JD, Engelberg RA, Jackson JC, Curtis JR.  Alterations during medical interpretation of ICU family conferences that interfere with or enhance communication. Chest. 2008 Jul;134(1):109-16. Epub 2008 Mar 17.

[#100]  Shanawani H, Wenrich MD, Tonelli MR, Curtis JR.  Meeting physicians’ responsibilities in providing end-of-life care. Chest. 2008 Mar;133(3):775-86.

[#99]  Ward NS, Teno JM, Curtis JR, Rubenfeld GD, Levy MM.  Perceptions of cost constraints, resource limitations, and rationing in United States intensive care units: results of a national survey. Crit Care Med. 2008 Feb;36(2):471-6.

[#98]  Gries CJ, Curtis JR, Wall RJ, Engelberg RA.  Family member satisfaction with end-of-life decision-making. Chest. 2008 Mar;133(3):704-12. Epub 2008 Jan 15.

[#97]  Stapleton RD, Curtis JR.  End-of-life considerations in older patients who have lung disease. Clin Chest Med. 2007 Dec;28(4):801-11,vii.

[#96]  Norris K, Merriman MP, Curtis JR, Asp C, Tuholske L, Byock IR.  Next of kin perspectives on the experience of end-of-life care in a community setting. J Palliat Med. 2007 Oct;10(5):1101-15.

[#95]  Curtis JR, Burt RA.  Point: the ethics of unilateral “do not resuscitate” orders: the role of “informed assent.” Chest. 2007 Sep;132(3):748-51; discussion 755-6.

[#94]  Diehr P, Lafferty WE, Patrick DL, Downey L, Devlin SM, Standish LJ.  Quality of life at the end of life. Health Qual Life Outcomes. 2007 Aug 3;5(1):51.

[#93]  McCormick AJ, Engelberg R, Curtis JR.  Social workers in palliative care: assessing activities and barriers in the intensive care unit. J Palliat Med. 2007 Aug;10(4):929-37.

[#92]  White DB, Curtis JR, Wolf LE, Prendergast TJ, Taichman DB, Kuniyoshi G, Acerra F, Lo B, Luce JM.  Life support for patients without a surrogate decision maker: who decides? Ann Intern Med. 2007 Jul 3;147(1):34-40.

[#91]  Wall RJ, Curtis JR, Cooke CR, Engelberg RA.  Family satisfaction in the ICU: differences between families of survivors and non-survivors. Chest. 2007 Nov;132(5):1425-33. Epub 2007 Jun 15.

[#90]  Curtis JR, Puntillo K.  Is there an epidemic of burnout and post-traumatic stress in critical care clinicians? Am J Respir Crit Care Med. 2007 Apr 1;175(7):634-6.

[#89]  White DB, Braddock CH 3rd, Bereknyei S, Curtis JR.  Toward shared decision making at the end of life in intensive care units: opportunities for improvement. Arch Intern Med. 2007 Mar 12;167(5):461-7.

[#88]  Wall RJ, Engelberg RA, Gries CJ, Glavan B, Curtis JR.  Spiritual care of families in the intensive care unit. Crit Care Med. 2007 Apr;35(4):1084-90.

[#87]  Lautrette A, Darmon M, Megarbane B, Joly LM, Chevret S, Adrie C, Barnoud D, Bleichner G, Bruel C, Choukroun G, Curtis JR, Fieux F, Galliot R, Garrouste-Orgeas M, Georges H, Goldgran-Toledano D, Jourdain M, Loubert G, Reignier J, Saidi F, Souweine B, Vincent F, Barnes NK, Pochard F, Schlemmer B, Azoulay E.  A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med. 2007 Feb 1;356(5):469-78.

[#86]  White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR.  Prognostication during physician-family discussions about limiting life support in intensive care units. Crit Care Med. 2007 Feb;35(2):442-8.

[#85]  Hsieh HF, Shannon SE, Curtis JR.  Contradictions and communication strategies during end-of-life decision making in the intensive care unit. J Crit Care. 2006 Dec;21(4):294-304.

[#84]  Wall RJ, Engelberg RA, Downey L, Heyland DK, Curtis JR.  Refinement, scoring, and validation of the family satisfaction in the intensive care unit (FS-ICU) survey. Crit Care Med. 2007; 35(1):271-9.

[#83]  Mularski RA, Curtis JR, Billings JA, et al.  Proposed quality measures for palliative care in the critically ill: a consensus from the Robert Wood Johnson Foundation Critical Care Workgroup. Crit Care Med. 2006 Nov;34(11 Suppl):S404-11.

[#82]  Treece PD, Engelberg RA, Shannon SE, Nielsen EL, Braungardt T, Rubenfeld GD, Steinberg KP, Curtis JR.  Integrating palliative and critical care: description of an intervention. Crit Care Med. 2006 Nov;34(11 Suppl):S380-7.

[#81]  Curtis JR, Engelberg RA.  Measuring success of interventions to improve the quality of end-of-life care in the intensive care unit. Crit Care Med. 2006 Nov;34(11 Suppl):S341-7.

[#80]  Downey L, Engelberg RA, Shannon SE, Curtis JR.  Measuring intensive care nurses’ perspectives on family-centered end-of-life care: evaluation of three questionnaires. Am J Crit Care. 2006 Nov;15(6):568-79.

[#79]  Engelberg R, Downey L, Curtis JR.  Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care. J Palliat Med. 2006 Oct;9(5):1086-98.

[#78]  Engelberg RA.  Measuring the quality of dying and death: methodological considerations and recent findings. Curr Opin Crit Care. 2006; Oct;12(5):381-7.

[#77]  Wenrich MD, Curtis JR.  Narratives of critical care: the missing link. J Crit Care. 2006 Sep;21(3):248-9.

[#76]  White DB, Curtis JR.  Establishing an evidence base for physician-family communication and shared decision making in the intensive care unit. Crit Care Med. 2006 Sep;34(9):2500-1.

[#75]  White DB, Curtis JR, Lo B, Luce JM.  Decisions to limit life-sustaining treatment for critically ill patients who lack both decision-making capacity and surrogate decision-makers. Crit Care Med. 2006 Aug;34(8):2053-9.

[#74]  Stapleton RD, Engelberg RA, Wenrich MD, Goss CH, Curtis JR.  Clinician statements and family satisfaction with family conferences in the intensive care unit. Crit Care Med. 2006 Jun;34(6):1679-85.

[#73]  Curtis JR.  Interventions to improve care during withdrawal of life-sustaining treatments. J Palliat Med. 2005;8 Suppl 1:S116-31.

[#72]  Au DH, Udris EM, Fihn SD, McDonell MB, Curtis JR.  Differences in health care utilization at the end of life among patients with chronic obstructive pulmonary disease and patients with lung cancer. Arch Intern Med. 2006 Feb 13;166(3):326-31.

[#71]  Engelberg RA, Patrick DL, Curtis JR.  Correspondence between patients’ preferences and surrogates’ understandings for dying and death. J Pain Symptom Manage. 2005 Dec;30(6):498-509.

[#70]  Curtis JR, Cook DJ, Wall RJ, Angus DC, Bion J, Kacmarek R, Kane-Gill SL, Kirchhoff KT, Levy M, Mitchell PH, Moreno R, Pronovost P, Puntillo K.  Intensive care unit quality improvement: a “how-to” guide for the interdisciplinary team. Crit Care Med. 2006 Jan;34(1):211-8.

[#69]  Curtis JR, Engelberg RA, Wenrich MD, Au DH.  Communication about palliative care for patients with chronic obstructive pulmonary disease. J Palliat Care. 2005 Autumn;21(3):157-64.

[#68]  Curtis JR, Shannon SE.  Transcending the silos: toward an interdisciplinary approach to end-of-life care in the ICU. Intensive Care Med. 2006 Jan;32(1):15-7.

[#67]  White DB, Curtis JR.  Care near the end-of-life in critically ill patients: a North American perspective. Curr Opin Crit Care. 2005 Dec;11(6):610-615.

[#66]  Norris WM, Wenrich MD, Nielsen EL, Treece PD, Jackson JC, Curtis JR.  Communication about end-of-life care between language-discordant patients and clinicians: insights from medical interpreters. J Palliat Med. 2005 Oct;8(5):1016-24.

[#65]  Yaguchi A, Truog RD, Curtis JR, Luce JM, Levy MM, Melot C, Vincent JL.  International differences in end-of-life attitudes in the intensive care unit: results of a survey. Arch Intern Med. 2005 Sep 26;165(17):1970-5.

[#64]  Curtis JR, Rubenfeld GD.  Improving palliative care for patients in the intensive care unit. J Palliat Med. 2005 Aug;8(4):840-54.

[#63]  West HF, Engelberg RA, Wenrich MD, Curtis JR.  Expressions of nonabandonment during the intensive care unit family conference. J Palliat Med. 2005 Aug;8(4):797-807.

[#62]  Hough CL, Hudson LD, Salud A, Lahey T, Curtis JR.  Death rounds: end-of-life discussions among medical residents in the intensive care unit. J Crit Care. 2005 Mar;20(1):20-5.

[#61]  Mularski RA, Heine CE, Osborne ML, Ganzini L, Curtis JR.  Quality of dying in the ICU: ratings by family members. Chest. 2005 Jul;128(1):280-7.

[#60]  Knauft ME, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR.  Barriers and facilitators to end-of-life care communication for patients with COPD. Chest. 2005;127: 2188-2196.

[#59]  Norris WM, Nielsen EL, Engelberg RA, Curtis JR.  Treatment preference for resuscitation and critical care among homeless persons. Chest. 2005; 127: 2180-2187.

[#58]  Levy CR, Ely EW, Payne K, Engelberg RA, Patrick DL, Curtis JR.  Quality of dying and death in two medical ICUs: perceptions of family and clinicians. Chest. 2005 May;127(5):1775-83.

[#57]  Hough CL, Curtis JR.  Long-term sequelae of critical illness: memories and health-related quality of life. Crit Care. 2005 Apr;9(2):145-6. Epub 2005 Feb 23.

[#56]  Stapleton RD, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR.  Association of depression and life-sustaining treatment preferences in patients with COPD. Chest. 2005 Jan;127(1):328-34.

[#55]  Curtis JR, Engelberg, RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD.  Missed opportunities during family conferences about end-of-life care in the intensive care unit. J Respir Crit Care Med. 2005; 171: 844-849.

[#54]  Mularski RA, Curtis JR, Osborne ML, Engelberg RA, Ganzini L.  Agreement among family members in their assessment of the quality of dying and death. J Pain Symptom Manage. 2004 Oct; 28 (4): 306-15.

[#53]  Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL.  Patient-physician communication about end-of-life care for patients with COPD. Eur Respir J. 2004; 24: 200-205.

[#52]  Hodde NM, Engelberg RA, Treece PD, Steinberg KP, Curtis JR.  Factors associated with nurse assessment of the quality of dying and death in the ICU. Crit Care Med. 2004, Aug;32(8):1648-53.

[#51]  Chan JD, Treece PD, Engelberg RA, Crowley L, Rubenfeld GD, Steinberg KP, Curtis JR.  Narcotic and benzodiazepine use after withdrawal of life support: association with time to death? Chest. 2004; 126:286-93.

[#50]  McDonagh JR, Elliott TB, Engelberg RA, Treece PD, Shannon SE, Rubenfeld GD, Patrick DL, Curtis JR.  Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction. Crit Care Med. 2004; 32:1484-1488.

[#49]  Clarke EB, Luce JM, Curtis JR, Levy M, Nelson J, Solomon MZ, for the Robert Wood Johnson Foundation Critical Care End-of-Life Peer Workgroup Members.  A content analysis of forms, guidelines, and other materials documenting end-of-life care in intensive care units. J Crit Care. 2004; 19:108-17.

[#48]  Treece PD, Engelberg RA, Crowley L, Chan JD, Rubenfeld GD, Steinberg KP, Curtis JR.  Evaluation of a standardized order form for the withdrawal of life support in the intensive care unit. Crit Care Med. 2004; 32:1141-1148.

[#47]  Curtis JR.  Communicating about end-of-life care with patients and families in the intensive care unit. Crit Care Clin. 2004 Jul;20(3):363-80, viii.

[#46]  Rubenfeld GD, Curtis JR.  Improving care for patients dying in the intensive care unit. Clin Chest Med. 2004; 20:363-80. 2003 Dec;24(4):763-73.

[#45]  Clarke EB, Curtis JR, Luce JM, Levy M, Danis M, Nelson J, Solomon MZ; Robert Wood Johnson Foundation Critical Care End-Of-Life Peer Workgroup Members.  Quality indicators for end-of-life care in the intensive care unit. Crit Care Med. 2003 Sep;31(9):2255-62

[#44]  Patrick DL, Curtis JR, Engelberg RA, Nielsen EL, McCown EB.  Measuring and improving the quality of dying and death. Ann Intern Med. 2003 Sep2; 139 (5 pt 2): 410-5.

[#43]  Rocker GM, Curtis JR.  Caring for the dying in the intensive care unit: in search of clarity (editorial). JAMA. 2003;290:820-822.

[#42]  Curtis JR, Patrick DL.  Assessment of health status among patients with COPD. Eur Respir J Suppl. 2003 Jun;41:36s-45s.

[#41]  Curtis JR, Burt RA.  Why are critical care clinicians so powerfully distressed by family demands for futile care? J Criti Care. 2003 Mar;18(1):22-4.

[#40]  Rubenfeld GD, Curtis JR.  Beyond ethical dilemmas: improving the quality of end-of-life care in the intensive care unit. Crit Care. 2003 Feb;7(1):11-2. Epub 2002 Dec 18.

[#39]  Wenrich MD, Curtis JR, Ambrozy DM, Carline JD, Shannon SE, Ramsey PG.  Dying patients’ need for emotional support and personalized care from physicians: perspectives of patients with terminal illness, families and health care providers. J Pain Symptom Manage. 2003; Mar25(3):236-46.

[#38]  Carline JD, Curtis JR, Wenrich MD, Shannon SE, Ambrozy DM, Ramsey PG.  Physicians’ Interactions with health care teams and systems in the care of dying patients: perspectives of dying patients, family members, and health care professionals. J Pain Symptom Manage. 2003; Jan; 25(1): 19-28.

[#37]  Way J, Back AL, Curtis JR.  Withdrawing life support and resolution of conflict with families. BMJ. 2002 Dec 7;325(7376):1342-5.

[#36]  Pierson CM, Curtis JR, Patrick DL.  A good death: a qualitative study of patients with advanced AIDS. AIDS Care. 2002 Oct;14(5):587-98.

[#35]  Curtis JR, Engelberg RA, Wenrich MD, Nielsen EL, Shannon SE, Treece PD, Tonelli MR, Patrick DL, Robins LS, McGrath BB, Rubenfeld GD.  Studying communication about end-of-life care during the ICU family conference: development of a framework. J Crit Care. 2002;17:147-160.

[#34]  Curtis JR, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I.  A measure of the quality of dying and death: initial validation using after-death interviews with family members. J Pain Symptom Manage. 2002 Jul; 24(1):17-31.

[#33]  Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Patients’ perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS. Chest. 2002 Jul; 122(1):356-62.

[#32]  Back AL, Curtis JR.  Communicating bad news. West J Med. 2002 May;176(3):177-80.

[#31]  Byock I, Norris K, Curtis JR, Patrick DL.  Improving end-of-life experience and care in the community: a conceptual framework. J Pain Symptom Manage. 2001 Sep; 22(3):759-72.

[#30]  Patrick DL, Engelberg R, Curtis JR.  Evaluating the quality of dying and death. J Pain Symptom Manage. 2001; Sep 22(3):717-26.

[#29]  Back AL, Curtis JR.  When does primary care turn into palliative care? West J Med. 2001 Sep;175(3):150-1.

[#28]  Wenrich MD, Curtis JR, Shannon SE, Carline JD, Ambrozy DM, Ramsey PG.  Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Arch Intern Med. 2001; Mar 26;161(6):868-74.

[#27]  Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG.  Understanding physicians’ skills at providing end-of-life care: perspectives of patients, families, and health care workers. J Gen Intern Med. 2001; 16:41-9.

[#26]  Curtis JR, Patrick DL, Shannon SE, Treece PD, Engelberg RA, Rubenfeld GD.  The family conference as a focus to improve communication about end-of-life care in the ICU: opportunities for improvement. Crit Care Med. 2001; 29:N26-33.

[#25]  Rubenfeld GR, Curtis JR.  Palliative respiratory care. Respir Care. 2000; 45:1318-9.

[#24]  Curtis JR.  Communicating with patients and their families about advance care planning and end-of-life care. Respir Care. 2000, 45:1385-1394.

[#23]  Diehr P, Patrick DL, Burke GL, Williamson J, Bild DE.  Patterns of self-rated health in older adults before and after sentinel health events. J Am Geriatr Soc. 2001 Jan;49(1):36-44.

[#22]  Curtis JR, Patrick DL, Caldwell E, Collier AC.  Why don’t patients with AIDS and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians. Arch Intern Med. 2000; 160:1597-1601.

[#21]  Curtis JR, Patrick DL, Caldwell E, Collier AC.  The attitudes of patients with advanced AIDS towards use of the medical futility rationale in decisions to forego mechanical ventilation. Arch Intern Med. 2000; 160:1690-6.

[#20]  Patrick DL, Kinne S, Engelberg RA, Pearlman RA.  Functional status and perceived quality of life in adults with and without chronic conditions. J Clin Epidemiol. 2000 Aug;53(8):779-85.

[#19]  Curtis JR, Patrick DL, Caldwell E, Greenlee H, Collier AC.  The quality of patient-clinician communication about end-of-life care: a study of patients with AIDS and their primary care clinicians. AIDS. 1999; 13:1123-31.

[#18]  Stewart AL, Teno J, Patrick DL, Lynn J.  The concept of quality of life of dying persons in the context of health care. J Pain Symptom Manage. 1999 Feb;17(2):93-108.

[#17]  Curtis JR, Bennett CL, Horner RD, Rubenfeld GD, DeHovitz JA, Weinstein RA.  Variations in ICU utilization for patients with HIV-related pneumocystis carinii pneumonia: importance of hospital characteristics and geographic location. Crit Care Med. 1998; 26:668-75.

[#16]  Curtis JR.  The “patient-centered” outcomes of critical care: what are they and how should they be used? New Horizons. 1998; 6:26-32.

[#15]  Curtis JR, Patrick DL.  Barriers to communication about end-of-life care in AIDS patients. J Gen Intern Med. 1997; 12:736-41.

[#14]  Curtis JR, Rubenfeld GD.  Aggressive medical care at the end of life: does capitated reimbursement encourage the right care for the wrong reason? JAMA. 1997, 278:1025-6.

[#13]  Patrick DL, Pearlman RA, Starks HE, Cain KC, Cole WG, Uhlmann RF.  Validation of preferences for life-sustaining treatment: implications for advance care planning. Ann Intern Med. 1997 Oct 1;127(7):509-17.

[#12]  Committee on Care at the End of Life, Field MJ, Cassel CK (eds) (1997)  Approaching Death: Improving Care at the End of Life. Institute of Medicine. National Academy Press, Washington, D.C. [Donald Patrick was a member of this committee and authored the chapter on quality of life.]

[#11]  Badia X, Diaz-Prieto A, Rue M, Patrick DL.  Measuring health and health state preferences among critically ill patients. Intensive Care Med. 1996 Dec;22(12):1379-84.

[#10]  Pearlman RA, Cole WG, Patrick DL, Starks HE, Cain KC.  Advance care planning: eliciting patient preferences for life-sustaining treatment. Patient Educ Couns. 1995 Sep;26(1-3):353-61.

[#9]  Curtis JR, Park DR, Krone MR, Pearlman RA.  Use of the medical futility rationale in do-not-attempt-resuscitation orders. JAMA. 1995 Jan 11;273(2):124-8.

[#8]  Patrick DL, Starks HE, Cain KC, Pearlman RA, Uhlmann RF.  Measuring preferences for health states worse than death. Med Decis Making. 1994 Jan-Mar;14(1):9-18.

[#7]  Danis M, Garrett J, Harris R, Patrick DL.  Stability of choices about life-sustaining treatments. Ann Intern Med. 1994 Apr 1;120(7):567-73.

[#6]  Pearlman RA, Cain KC, Patrick DL, Appelbaum-Maizel M, Starks HE, Jecker NS, Uhlmann RF.  Insights pertaining to patient assessments of states worse than death. J Clin Ethics. 1993 Spring;4(1):33-41.

[#5]  Danis M, Southerland LI, Garrett JM, Smith JL, Hielema F, Pickard CG, Egner DM, Patrick DL.  A prospective study of advance directives for life-sustaining care. N Engl J Med. 1991 Mar 28;324(13):882-8.

[#4]  Patrick DL, Danis M.  Patients’ and families’ preferences for medical intensive care. JAMA. 1989 Jan 13;261(2):242-3.

[#3]  Danis M, Gerrity MS, Southerland LI, Patrick DL.  A comparison of patient, family, and physician assessments of the value of medical intensive care. Crit Care Med. 1988 Jun;16(6):594-600.

[#2]  Danis M, Patrick DL, Southerland LI, Green ML.  Patients’ and families’ preferences for medical intensive care. JAMA. 1988 Aug 12;260(6):797-802.

[#1]  Patrick DL, Danis ML, Southerland LI., Hong G.  Quality of life following intensive care. J Gen Intern Med. 1988 May-Jun;3(3):218-23.