Quality of Communication (QOC)
The QOC is an instrument for assessing the quality of patient-doctor communication. Please note that the first version of the instrument is presented here; the next version of this instrument is currently under development. Spanish and Vietnamese translations of this instrument are also available from the researchers.
Reference: Engelberg RA, Downey L, Curtis JR. Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care. J Palliat Med. 2006 Oct;9(5):1086-98. (PDF, 113 KB)
Quality of Dying and Death (QODD)
The QODD is an instrument for assessing the quality of dying and death.
The first version of this instrument is designed to be interviewer-administered to a significant other of a patient who died in an out-patient or hospice setting. Instructions are included below. A Spanish translation of this instrument is also available from the researchers.
The second version of this instrument is designed for self-administration by a significant other (family member and/or friend) of a patient who died in hospital or ICU settings. A Spanish translation of this instrument is also available from the researchers.
The third version of this instrument is designed for self-administration by a healthcare professional who cared for a patient who died in a hospital or ICU setting. A Spanish translation of this instrument is also available from the researchers.
References:
Patrick DL, Engelberg R, Curtis JR. Evaluating the quality of dying and death. J Pain Symptom Manage. 2001; Sep 22(3):717-26. (PDF, 221 KB)
Patrick DL, Curtis JR, Engelberg RA, Nielsen EL, McCown EB. Measuring and improving the quality of dying and death. Ann Intern Med. 2003 Sep2; 139 (5 pt 2): 410-5. (PDF, 101 KB)
Downey L, Engelberg RA, Curtis JR, Lafferty WE, Patrick DL. Shared priorities for the end-of-life period. J Pain Symptom Manage. 2009 Feb;37(2):175-88. Epub 2008 Aug 22. (PDF, 201 KB)
Downey L, Curtis JR, Lafferty WE, Herting JR, Engelberg RA. The quality of dying and death questionnaire (QODD): empirical domains and theoretical perspectives. J Pain Symptom Manage. 2010 Jan;39(1):9-22. Epub 2009 Sep 25. (PDF, 208 KB)
Quality of End-of-Life Care (QEOLC)
coming soon
End-of-Life Communication: Barriers and Facilitators
coming soon
Assessments of Palliative Care
These instruments were developed by the Robert Wood Johnson Foundation’s Critical Care End-of-Life Peer Work Group
References:
Clarke EB, Luce JM, Curtis JR, Levy M, Nelson J, Solomon MZ, for the Robert Wood Johnson Foundation Critical Care End-of-Life Peer Workgroup Members. A content analysis of forms, guidelines, and other materials documenting end-of-life care in intensive care units. J Crit Care. 2004; 19:108-17. (PDF, 92 KB)
Ho LA, Engelberg RA, Curtis JR, Nelson J, Luce J, Ray DE, Levy MM. Comparing clinician ratings of the quality of palliative care in the intensive care unit. Crit Care Med. 2011 May;39(5):975-83. Epub 2011 Jan 28. (PDF, 561 KB)
Additional Nurse and Social Worker Instruments