Treatment Guidelines
Basic Nutrition Care Plan
- Evaluate medical, social and nutrition history.
- Evaluate current nutrition and health status of child, including
- Diet/Physiological
- serum phenylalanine levels
- growth and growth rate
- intake: phenylalanine, energy, protein, vitamins and minerals
- identify formula intake (amount of powder prescribed vs. amount of powder consumed; amount of water added)
- collect information about timing of intake: food and formula
- iron status (hemoglobin and hematocrit)
- Cognitive development (per Psychometric Testing Guidelines)
- Developmental aspects of child in relation to food and environment
- Parenting concerns and skills
- Incidence of minor infections
- Diet/Physiological
- Define any physical, developmental, environmental or cognitive concerns.
- Develop 6 month plan for younger child and 1 year plan for older child. Include:
- Physical growth
- Phenylalanine prescription
- Energy needs
- Formula prescription
- Timing of formula and food intake
- Cognitive development
- Home environment
- Education plan related to PKU
- Define roles of team members in monitoring the concerns for the child’s health care. Discuss the plan with team members as needed.
- Outline and begin implementation of method for addressing concerns.