Treatment Guidelines: Infants / New patients


New Patient Guideline
Guidelines for initial treatment for an infant with newly diagnosed PKU.

Infant (0-6 months) Treatment Guideline
Treatment guidelines for infants younger than 6 months of age, who have not started eating solid foods.

Infant (6-12 months) Treatment Guideline
Treatment guidelines for infants between 6 and 12 months of age, who are starting solid foods.

Monitoring Guidelines for Mild Phenylketonuria
Treatment and monitoring guidelines for infants and children with mild phenylketonuria, ages 0-5 years.



acrobat reader logo Checklist for Families New to PKU Clinic
An information sheet/checklist to guide the initial clinic visits of a family with a newly diagnosed infant

A notebook developed by the Cristine M.Trahms Program for Phenylketonuria to help families in the management of PKU

acrobat reader logo A Babysitter's Guide to PKU
Guidelines and helpful hints for babysitting a child with PKU

acrobat reader logo Finger Foods Are Fun
Guidelines for assisting in the development of self-feeding skills and familiarization with some of the mainstays of the PKU diet

acrobat reader logo Look-Alike Foods: A solution or a Pandora's box?
Questions to consider when deciding on an appropriate food strategy for your child

acrobat reader logo Monitoring Blood Phenylalanine Levels at Home
A guide for collecting Guthrie filter paper blood samples at home

acrobat reader logo New Parents' Guide to PKU
A booklet to help familiarize new parents with PKU and its treatment

PKU Self-Management Timeline
A guideline of suggested tasks for children to adopt as they progress from infancy to adulthood

Case Studies
[content currently under development]