Tag Archives: enteral nutrition
29(5) A Focus on Family-Centered Care from the Parent’s Perspective
The term “family-centered care” (FCC) was coined in the 1980’s to describe a philosophy of care for children with special health care needs and their families. It was a radical paradigm shift from the previous philosophies of “systemcentered care” in … Continue reading →
Posted in General Topics Related to CSHCN
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Tagged ABA, autism, CSHCN, enteral nutrition, family centered care, feeding, prematurity, resources, school, team, team members, transition, tube feeding
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29(4) Weaning from tube feedings: many different pathways Part 2B – Case Study Illustrations
These detailed and comprehensive case studies complement Part 1 of this topic published in November/December 2013. Due to the depth of information shared within the case studies which contributed to many pages we have decided to publish the case studies … Continue reading →
Posted in Nutrition-related Issues
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Tagged assessment, behavior, calories, constipation, CSHCN, education, energy, enteral nutrition, failure to thrive, family centered care, growth, hunger, intervention, nutrition management, oral-motor, resources, team members, transition, tube feeding, weaning
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29(3) Weaning from tube feedings: many different pathways Part 2A – Case Study Illustrations
This article is Part 2 of the series. Part 1 was published in November/December 2013. It can be accessed by those who have a current subscription to the Nutrition Focus newsletter (https://depts.washington.edu/nutrfoc). Part 1 describes several models of treatment for … Continue reading →
Posted in General Topics Related to CSHCN, Nutrition-related Issues
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Tagged assessment, behavior, calories, CSHCN, energy, enteral nutrition, family centered care, feeding, growth, intervention, nutrition management, oral-motor, team members, transition, tube feeding
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28(6) Weaning from tube feedings: many different pathways Part I
Developing the ability to eat by mouth and grow at an appropriate rate is usually viewed as a simple part of infancy and childhood. When a baby is born, the parents expect this process will unfold smoothly for both parent … Continue reading →
Posted in General Topics Related to CSHCN
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Tagged enteral nutrition, feeding, growth, nutrition management, oral-motor, team members, transition, tube feeding, weaning
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28(3) Nutrition Management of Cystic Fibrosis
This issue of Nutrition Focus discusses the genetic disease, cystic fibrosis. An overview of the disease will be presented along with nutrition implications, assessment, and intervention. The current evidence-based guidelines for nutrition-related management of infants and adults with cystic fibrosis … Continue reading →
Posted in Specific Conditions
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Tagged assessment, calories, cystic fibrosis, energy, enteral nutrition, feeding, GI problems, growth, intervention, laboratory, nutrition management, pancreatic enzymes, parenteral nutrition, pulmonary
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28(2) Feeding the Child with Very Low Energy Needs
Neurologic impairments, whether associated with a congenital disorder or due to a traumatic event, can influence the nutritional requirements of children with special health care needs. In some cases the nutrition issues are present due to medical complications and severe disabilities, including seizures, gastrointestinal disturbances … Continue reading →
Posted in Nutrition-related Issues
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Tagged assessment, calories, cerebral palsy, CSHCN, down syndrome, dri, energy, enteral nutrition, feeding, fluid, growth, intervention, nutrition management
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27(6) Emergency Preparedness – Helping Families and Their Children with Special Nutrition Needs
A number of recent natural disasters have brought the importance of emergency preparedness to the public’s attention. As a result, many organizations have issued preparedness recommendations to assist individuals and families in becoming better prepared for an emergency. Despite a … Continue reading →
Posted in General Topics Related to CSHCN, Nutrition-related Issues
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Tagged CSHCN, education, emergency preparedness, enteral nutrition, family centered care, handout, nutrition management, resources, school, team members, tube feeding
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20(3) Passing the Baton: Nutrition and Transition to Adulthood for Youth with Special Health Care Needs Using Enteral Nutrition
This issue of NUTRITION FOCUS explores issues related to transition from pediatric to adult care, for children with special health care needs who use enteral nutrition. Subscription required to view the full newsletter
Posted in General Topics Related to CSHCN, Nutrition-related Issues, Uncategorized
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Tagged CSHCN, enteral nutrition, family centered care, resources, team members, transition, tube feeding
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