Health Promotion Research Center

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Older Asian American Pacific Islander couple hugging

Project Dates: June 1, 2020 – March 31, 2025

Older adults with dementia and their family often have to make decisions about more supportive care. However, the voices and preferences of older adults with dementia are often not included in these decisions. The goals of the Decision-Making in Alzheimer’s Research (DMAR) team and partners are to keep older adults with dementia involved in decision-making, better understand their decision-making processes, and create a novel tool to identify preferences related to transitions in supportive care.

Achieving Our Goals

A senior African American couple taking a walk. The man is sitting in a wheelchair being pushed by his wife. They are talking and smiling.

We’ll achieve our goals through the following activities: 

Conduct interviews with a diverse group of older adults who have varying degrees of dementia, their caregivers, and dementia care providers to gain a better understanding of decision-making related to transitions in care. 

Develop and pilot a tool (based on our interviews) to assess preferences of older adults with dementia. 

Follow care preferences of older adults with dementia and their caregivers over a two-year period to:

  • Identify differences in preferences between older adults with dementia and their caregivers. 
  • Assess changes in preferences over time. 

Join the Study

We are seeking older adults (55+ years) with memory loss + their informal caregiver (involved family/friend) to test a choice tool designed to better understand preferences related to transitions in care.

We are actively enrolling pairs of participants to complete 6 choice tasks which will be administered primarily via Zoom three times over 12 months. 

Each participant will receive a $25 gift card for each completed session.

If you are interested in learning more about this study, please provide your contact information here to be contacted by a team member.

You can also directly contact Astoria Ho, DMAR Research Coordinator, via email at dmar-study@uw.edu, or by phone at 206-543-3071 

We look forward to connecting with you!

News & Updates

February 2023 DMAR Community Advisory Board Meeting

The project team will hold its biannual DMAR Community Advisory Board Meeting on February 16, 2023. At these meetings, the team will share an overview of the project and study progress before discussing initial findings and major themes from interviews with people with dementia and their caregivers — professional and unpaid. Thank you to our Community Advisory Board for engaging in discussion with us and providing insights and feedback.

Sharing the Challenges and Opportunities Learned

We are excited to share a publication authored by DMAR team members in the Journal of American Geriatrics Society. The paper discusses challenges and strategies for recruiting older adults with dementia and Alzheimer’s into research studies in the context of Covid-19. Issues related to recruiting older adults from racial and ethnic minority groups are also addressed.

Learn More: Read the Publication

More on the UW Health Promotion Research Blog

Contact Us

Questions? Please contact Astoria Ho, Research Coordinator, at astoriah@uw.edu or 206-543-3071 or Sarah Domai, Research Assistant, at sdomai@uw.edu.

The Decision-Making in Alzheimer’s Research (DMAR) project is made possible thanks to $4 million in funding (grant number R01-AG066957) from the National Institute on Aging.