Author Archives: nutrfoc

28(6) Weaning from tube feedings: many different pathways Part I

Posted on November 1, 2013 by nutrfoc

Developing the ability to eat by mouth and grow at an appropriate rate is usually viewed as a simple part of infancy and childhood. When a baby is born, the parents expect this process will unfold smoothly for both parent … Continue reading →

Posted in General Topics Related to CSHCN | Tagged enteral nutrition, feeding, growth, nutrition management, oral-motor, team members, transition, tube feeding, weaning | Comments Off

28(5) Nutrition Issues in Children with Myelomeningocele (Spina Bifida)

Posted on September 1, 2013 by nutrfoc

Myelomeningocele, or spina bifida, is the most common neural tube defect (NTD). NTDs are caused by abnormal fetal development of the neural tube when the opening in the spinal cord fails to close by the 28th day after fertilization of … Continue reading →

Posted in Specific Conditions | Tagged assessment, bone health, calories, constipation, energy, feeding, intervention, laxatives, medications, neural tube defects, overweight/obesity, short stature, spina bifida | Comments Off

28(4) Phenylketonuria (PKU) and Hyperphenylalaninemia (HPA) – A Review

Posted on June 1, 2013 by nutrfoc

Phenylketonuria (PKU) and hyperphenylalaninemia (HPA) are metabolic disorders that affect an enzyme required for the conversion of phenylalanine to tyrosine, leading to a build-up of the amino acid phenylalanine (Phe) in the blood. Increased blood levels of Phe are associated … Continue reading →

Posted in Specific Conditions | Tagged assessment, down syndrome, education, family centered care, genetics, metabolic disorders, nutrition management, pku, team members, transition | Comments Off

28(3) Nutrition Management of Cystic Fibrosis

Posted on May 1, 2013 by nutrfoc

This issue of Nutrition Focus discusses the genetic disease, cystic fibrosis. An overview of the disease will be presented along with nutrition implications, assessment, and intervention. The current evidence-based guidelines for nutrition-related management of infants and adults with cystic fibrosis … Continue reading →

Posted in Specific Conditions | Tagged assessment, calories, cystic fibrosis, energy, enteral nutrition, feeding, GI problems, growth, intervention, laboratory, nutrition management, pancreatic enzymes, parenteral nutrition, pulmonary | Comments Off

28(2) Feeding the Child with Very Low Energy Needs

Posted on March 1, 2013 by nutrfoc

Neurologic impairments, whether associated with a congenital disorder or due to a traumatic event, can influence the nutritional requirements of children with special health care needs. In some cases the nutrition issues are present due to medical complications and severe disabilities, including seizures, gastrointestinal disturbances … Continue reading →

Posted in Nutrition-related Issues | Tagged assessment, calories, cerebral palsy, CSHCN, down syndrome, dri, energy, enteral nutrition, feeding, fluid, growth, intervention, nutrition management | Comments Off

27(6) Emergency Preparedness – Helping Families and Their Children with Special Nutrition Needs

Posted on November 1, 2012 by nutrfoc

A number of recent natural disasters have brought the importance of emergency preparedness to the public’s attention. As a result, many organizations have issued preparedness recommendations to assist individuals and families in becoming better prepared for an emergency. Despite a … Continue reading →

Posted in General Topics Related to CSHCN, Nutrition-related Issues | Tagged CSHCN, education, emergency preparedness, enteral nutrition, family centered care, handout, nutrition management, resources, school, team members, tube feeding | Comments Off

27(5) The Picky Eater

Posted on September 1, 2012 by nutrfoc

Children with special health care needs seen for a nutrition evaluation are often described as picky eaters. This is both a vague and variable description, but one commonly used and a challenge to treat. The purpose of this article is … Continue reading →

Posted in General Topics Related to CSHCN, Nutrition-related Issues | Tagged assessment, behavior, CSHCN, development, education, family centered care, feeding, growth, handout, intervention, nutrition management, oral-motor, picky, resources, sensory issues, team members | Comments Off

27(4) Update – Attention Deficit/Hyperactivity Disorder and Nutrition Issues

Posted on July 1, 2012 by nutrfoc

Attention Deficit/Hyperactivity Disorder (ADHD) is one of the more common neurobehavioral chronic disorders of childhood. ADHD is defined by academic or behavioral problems and symptoms of inattention, hyperactivity, or impulsivity. These symptoms must be inappropriate for the child’s developmental level, … Continue reading →

Posted in Nutrition-related Issues, Specific Conditions | Tagged adhd, assessment, attention, attention deficit/hyperactivity disorder, behavior, calories, CSHCN, development, growth, growth charts, medication interactions, medications, nutrition management, resources, school, team members | Comments Off

Author Archives: nutrfoc

28(5) Nutrition Issues in Children with Myelomeningocele (Spina Bifida)

28(4) Phenylketonuria (PKU) and Hyperphenylalaninemia (HPA) – A Review

28(3) Nutrition Management of Cystic Fibrosis

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