Tag Archives: family centered care

29(4) Weaning from tube feedings: many different pathways Part 2B – Case Study Illustrations

These detailed and comprehensive case studies complement Part 1 of this topic published in November/December 2013. Due to the depth of information shared within the case studies which contributed to many pages we have decided to publish the case studies … Continue reading

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29(3) Weaning from tube feedings: many different pathways Part 2A – Case Study Illustrations

This article is Part 2 of the series. Part 1 was published in November/December 2013. It can be accessed by those who have a current subscription to the Nutrition Focus newsletter (https://depts.washington.edu/nutrfoc). Part 1 describes several models of treatment for … Continue reading

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29(2) Nutrition Issues in Children with Asthma

Asthma is a chronic inflammatory disorder of the airways that can cause wheezing, shortness of breath, chest tightness, and coughing. The inflammatory responses associated with asthma can cause airway narrowing and excessive secretions. Over time, these responses result in injury … Continue reading

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28(4) Phenylketonuria (PKU) and Hyperphenylalaninemia (HPA) – A Review

Phenylketonuria (PKU) and hyperphenylalaninemia (HPA) are metabolic disorders that affect an enzyme required for the conversion of phenylalanine to tyrosine, leading to a build-up of the amino acid phenylalanine (Phe) in the blood. Increased blood levels of Phe are associated … Continue reading

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27(6) Emergency Preparedness – Helping Families and Their Children with Special Nutrition Needs

A number of recent natural disasters have brought the importance of emergency preparedness to the public’s attention. As a result, many organizations have issued preparedness recommendations to assist individuals and families in becoming better prepared for an emergency. Despite a … Continue reading

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27(5) The Picky Eater

Children with special health care needs seen for a nutrition evaluation are often described as picky eaters. This is both a vague and variable description, but one commonly used and a challenge to treat. The purpose of this article is … Continue reading

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26(6) ASSESSMENT OF GROWTH: Part 1 Equipment, Technique and Growth Charts

Anthropometry is the measurement of body size, weight and proportion. In infants and children growth data, regularly obtained by accurate measurements, can be an indicator of health status and/or an effective screening tool for referral to nutrition services provided by … Continue reading

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26(5) FROM MILK TO TABLE FOODS: A Parent’s Guide To Introducing Food Textures

Learning to eat a variety of foods is something that is often taken for granted. As with most things, this process can take longer for babies and children with Down syndrome due to low muscle tone, muscle coordination problems, sensory … Continue reading

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26(1) Nutrition Issues Facing Children with Special Health Care Needs in Early Intervention Programs and at School

Sound nutrition practices are necessary for the growth and development of all infants and children. Physical complications and emotional stresses of a disability or chronic illness may put a child at risk for nutrition related disorders. When a diet or … Continue reading

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24(2) The Art of Home Visiting

Providing home-based services for the child with special health care needs presents unique challenges and opportunities for the pediatric registered dietitian (RD). From making the initial contact with parents and care providers, to scheduling follow-up visits,home visiting is an experience … Continue reading

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