Local & Online Resources

This curated list links you to useful information for persons living with memory loss and their care partners, practical tips, support groups, and dementia-friendly community events. The information covers Alzheimer's, Parkinson's, frontotemporal degeneration (FTD) diseases, Lewy Body Dementia, and other dementia-causing conditions.

 

Support for persons living with memory loss

  • Living with Memory Loss Handbook, by the UW Memory and Brain Wellness Center. Our handbook, Living With Memory Loss: A Basic Guide, has been developed over the past year with guidance from people living with memory loss and their care partners and including personal contributions from our clinic team and other community partners. Download the full version, separate chapters, and content in multiple languages.

  • Early Stage Memory Loss programs, including support groups and educational seminars, provided by the Alzheimer’s Association. 206.529.3868

  • Alzheimer’s Association online forum for persons with memory loss

  • Dementia Alliance International, a network by and for persons living with memory loss

  • 24-hour helpline, 1.800.272.3900, provided by the Alzheimer’s Association

Support for care partners

  • Support for Caregivers - Tips from other families traveling the caregiver path and information on being supportive, and how caregivers can take care of themselves while caring for a loved one (Chapter 8 of the UW MBWC 'Living with Memory Loss' handbook)

  • Caregiver support groups for Alzheimer’s  disease, lewy body dementia, and frontotemporal dementia, provided by the Alzheimer’s Association at 'We Can Help'. Call: 206.363.5500

  • Alzheimer’s Association 24-hour helpline, 1.800.272.3900, provides support and information from Master's level social worker

  • Online tools for caregivers – legal/financial planning, care options, safety, communication – provided by the Alzheimer’s Association

  • Online caregiver forum through the Alzheimer’s Association helps you connect and learn from other caregivers

  • Dementia Road Map for family and friends, produced by our partners in the Washington State Dementia Action Collaborative, provides a basic overview of what to expect, and what can help, at every stage of the journey

  • King County Family Caregiver Support Network provides a free consultation and referrals to services which may include things like support groups or counseling, training on specific caregiving topics or concerns, and respite care if you need a break

  • Snohomish County Family Caregiver Resources provides a free consultation and referrals to services which may include things like support groups or counseling, training on specific caregiving topics or concerns, and respite care if you need a break

  • Washington State Area Agencies on Aging can provide information about caregiver resources in your county

Education for care partners

  • Health Resources & Services Administration (HRSA) of the HHS offers Training Curriculum: Alzheimer’s Disease and Related Dementias: free online educational modules on several dementia topics, including ones targeted for caregivers.

  • The Savvy Caregiver In Indian Country Trainer’s Manual: This resource from the National Indian Council on Aging is designed for all American Indian and Alaskan Native people caring for an elder with memory loss and thinking problems, referred to as dementia. The main theme of the Savvy Caregiver in Indian Country Trainer’s Manual is to teach caregivers to know the stage of dementia corresponding to their loved one’s functioning. Knowing how to determine the stage allows the caregiver to use activates and tasks that fit the elder’s changing abilities. This results in more hours of “contented involvement” for the elder and much less upset. Also, through this training, caregivers have a better quality of life and are not as easily stressed because the elder is involved in daily life in ways that fit their changing abilities.

Getting Here

Directions to the UW Memory and Brain Center's Clinic at Harborview Medical Center.
 

Transportation Assistance

Dementia-Friendly Community Events

Washington State has a growing number of community-based arts, fitness, social and volunteer opportunities for persons with memory loss and their families.

  • Puget Sound Region: Home to the Momentia movement, Seattle area dementia-friendly programs include walking groups at the zoo, volunteer programs at the food bank, gallery tours at the Frye Art Museum, painting in the Japanese Garden, drum circles at Southeast Seattle Senior Center, and more. Learn more and view an online community calendar on the Momentia Seattle website. The Memory & Brain Wellness Center is part of a team of community members and organizations that steward and promote this resource.

  • Snohomish County: The SnoMentia Facebook page promotes dementia-friendly programs modeled after Seattle's Momentia movement - including music, theater and film programs at Edmonds Center for the Arts, and several Alzheimer's Cafes.

  • Whatcom County: The Momentia Bellingham Facebook page promotes weekly lunch gatherings at Haggen and other special events.

  • Washington State: Find dementia-related programs and events on this community calendar maintained by the Alzheimer’s Association.

  • Alzheimer’s Cafes are informal social gatherings for people with memory loss and their loved ones, that take place monthly in a relaxed community space like a coffee shop, restaurant or library. If there’s not yet an Alzheimer’s Café in your neighborhood or city, come for a visit, then start your own! This introduction and “how-to” guide can help you launch one in your community.

  • Yoga for People with Parkinson's
    UW Medicine, Northwest Hospital, Seattle, WA
    Mondays & Fridays, 9:30am -11:00am | Wednesdays 12:30pm - 2:00pm
    Cost: $5 / Contact: Peter Lynch, 206.719.8007 or thagrdnr@yahoo.com or Pete Beidler at 206.420.4268 (Yoga for PD in greater Pacific Northwest regions)

  • Garden Discovery Walks — Summer/Fall 2018 We partner with Seattle Parks and Recreation and Seattle P-Patch to provide monthly nature experiences for people living with memory loss, and their family and friends. Explore nature and savor the season with monthly walks through Seattle public gardens, followed by a creative, nature-inspired activity. Light refreshments provided. Rotating Locations. Free. Space-limited; To register, contact Cayce Cheairs at cayce.cheairs@seattle.gov.

 

Useful Information Sources (by Condition)

Alzheimer's Disease Information

 

Lewy Body Dementia Information

 

Parkinson's Disease Information

 

Frontotemporal Disorders (behavioral variant FTD, primary progressive aphasia) Information

 

Other Causes of Dementia

 

Mild Cognitive Impairment (MCI)

 

A letter from our friends at The Gathering Place, Early Stage Memory Loss Enrichment Program, Greenwood Senior Center, Seattle, WA