Our Mission
- Enhance the quality of life of patients and families affected by HD by providing the highest level of education, compassionate evaluation and supportive interdisciplinary care.
- Collaborate with health care providers, caregivers, and staff in facilities providing care for individuals with HD (such as adult family homes, assisted living and skilled nursing facilities).
- Provide patients and families with up to date information about clinical trials and research.
Our Center of Excellence
Our multidisciplinary team is led by neurologists (neurogeneticist and movement disorder specialists) and includes a social worker, nurse, genetic counselors, clinical coordinator, research coordinator, patient navigator, and consulting psychiatrist.
2026 Events
Education Day Symposium
NEW DATE
*Saturday May 30th, 2026*
*Due safety and logistical concerns of the recently scheduled national No Kings Protest on March 28, 2026, we have rescheduled our event*
To Register Click Here
Location:
UW Tacoma Campus – Parking Included in Registration
1918 Pacific Avenue
William W. Philip Hall
Tacoma, WA 98042
9:00am-9:45am – Registration – donuts & coffee provided
9:45am-10:00am – Welcome and Recognitions
Suman Jayadev, MD – UWMC Huntington’s Disease Center of Excellence Medical Director
10:00am-10:45am – HD Research – Get the latest updates on current HD research and trials!
Rachel Harding, Ph.D. – University of Toronto, HDBuzz
10:45am-11:30am – Mental Health & HD – Get an inside look at HD mental health
Michael Schrift, DO, MA, FANPA
11:30pm-12:30 pm – Lunch & Learn provided – Learn about HD Advocacy with Chris Becker
12:30 pm-1:25 pm – Family Planning with IVF – Get the latest on family planning and IVF in light of HD. Touching on genetic testing and IVF.
Pacific Northwest Fertility – MD, FACOG
1:30 pm-3:00pm Ask the Experts Panel – Individuals living with HD, families and caregivers can face challenges with symptom support and management.
Please bring your questions for our panel of Experts!
HDYO Camp
Now Accepting Applications until March 15th
Click here to register or learn more
We are incredibly excited to host our 7th North American HDYO Camp!
Camp offers young people the chance to meet others impacted by HD to learn about HD through educational workshops and share experiences with plenty of fun participating in the many on-site activities like swimming, rock climbing, hiking, archery and much more.
Why Camp Matters:
In 2024, one camper recalled, “Camp was phenomenal, there is truly nothing like it. The understanding and love that everyone has for each other there is amazing. It was extremely beneficial because I never give myself the chance to feel my emotions, but camp allows me that safe and warm space to do so.”
Another participant reflected, “This was genuinely the most emotional but eye-opening experience for me. This trip has truly changed my perspective on a lot of things, but especially on life. I woke up early Wednesday morning, August 14, and sat on the rocks and watched the sunrise, and I realized something. Despite HD, despite chronic illness and mental illness, despite everything, I felt happy. I felt happy to be alive, which is something I never thought I could say. I hope, for all of you, affected by HD or not, that you find some group of people who understand you, and can support you throughout life’s hardships. It genuinely makes such a difference. I have made friends with people who have genuinely impacted my life during this trip, and I hope I can do the same for them. It was genuinely life changing. I’m so proud of the people I have met and the difference they have made in my life. I have a community I feel like I belong to, my family.”
General Details
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Dates: August 10-14, 2026
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Location: Camp St. Charlest, Maryland, US
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Who is Eligible
- 16-25 years old
- Living in Canada, Puerto Rico, or the US
- Young people impacted by HD
REGISTRATION LINK HERE
KEY HIGHLIGHTS:
Educational workshops and breakout sessions led by experts in the field
Networking opportunities with others impacted by HD
Inspirational keynote speakers sharing their unique perspectives
Updates on the latest research and advancements in Huntington’s disease
Don’t miss this opportunity to be part of an empowering and informative event that strengthens the HD community and fosters hope.
HDSA is now accepting scholarship applications to help individuals and families attend the 41st Annual HDSA Convention in Phoenix, AZ (June 24–28, 2026). Scholarships may include support for travel reimbursement, hotel accommodations, and Convention registration (including the Gala), depending on the scholarship category and eligibility.
All applications must be submitted by midnight (ET) on Sunday, March 8, 2026. Applicants will be notified of decisions by March 20, 2026. Please note: application information is confidential and reviewed only by HDSA scholarship committees.
Click here for complete details and eligibility criteria.
Questions? Contact Convention@hdsa.org.
2025 Events
Financial Education Series
Started by the UW HDSA COE in collaboration with WSECU, please join us for our first online event
Register HERE – December 17, 2025 Event
