Patient / Caregiver Resources

What is HD?

Living with HD

Events

HDSA Center of Excellence at UW Medical Center

Our Mission

  • Enhance the quality of life of patients and families affected by HD by providing the highest level of education, compassionate evaluation and supportive interdisciplinary care.
  • Collaborate with health care providers, caregivers, and staff in facilities providing care for individuals with HD (such as adult family homes, assisted living and skilled nursing facilities).
  • Provide patients and families with up to date information about clinical trials and research.

Our Center of Excellence

Our multidisciplinary team is led by neurologists (neurogeneticist and movement disorder specialists) and includes a social worker, nurse, genetic counselors, clinical coordinator, research coordinator, and consulting psychiatrist.

2025 Events 

2025 Education Day – Washington State

Spokane TEAM HOPE Walk

Saturday, October 4, 2025

Register Here

CHECK-IN: 9:00 AM | WALK BEGINS: 10:00 AM

Orchard Park
20298 E Indiana Ave.
Liberty Lake, WA, 99019

Thank you for standing with us to show how strong theHDSA COMMUNITY is when we CARE and fight for a CURE together!

Questions? Please contact: Ashley Healey ashleyhealey0@gmail.com

Financial Education Series

Started by the UW HDSA COE in collaboration with WSECU, please join us for our first online event

REGISTER HERE

2026 Events

Save the Date!

Saturday March 28th, 2026

2026 Education Day Symposium

 

 

 

Thanks to the generous support of the Friedman family we have been able to spearhead important HD advocacy initiatives across the state of Washington, including the launch of this website.  With their help we aim to bring both awareness of and resources for families impacted by HD in the Pacific Northwest.