Patient / Caregiver Resources

What is HD?

Living with HD

Events

HDSA Center of Excellence at UW Medical Center

Our Mission

  • Enhance the quality of life of patients and families affected by HD by providing the highest level of education, compassionate evaluation and supportive interdisciplinary care.
  • Collaborate with health care providers, caregivers, and staff in facilities providing care for individuals with HD (such as adult family homes, assisted living and skilled nursing facilities).
  • Provide patients and families with up to date information about clinical trials and research.

Our Center of Excellence

Our multidisciplinary team is led by neurologists (neurogeneticist and movement disorder specialists) and includes a social worker, nurse, genetic counselors, clinical coordinator, research coordinator, and consulting psychiatrist.

2025 Events 

2025 Education Day – Washington State

Click HERE to register for this event 

​Saturday, May 17, 2025

Check-In: 9:00 AM  |  Event Start: 9:45 AM

UW Tacoma William W Philip Hall
1918 Pacific Avenue
Tacoma, WA, 98042

9:00am-9:45am       Registration and Coffee

9:45am-10:00am     Welcome and Recognitions

Suman Jayadev, MD, Medical Director – UWMC Huntington’s Disease Center of Excellence

10:00am-10:45am   End of Life Care

End of Life Options in Huntington’s Disease in Washington State

Rebecca Hudson, Client Services Manager
End of Life Washington

10:45am-11:30am   HD Research, and Clinical Trials

Get the latest updates on current HD research and trials!

Daniel D. Child, MD, PHD UWMC

11:30pm-12:30 pm  Lunch provided – learn about
Enroll-HD and WSECU Education

12:30 pm-1:25 pm   HD Advocacy

Get the latest reasons for being an HD advocate! Learn about HDSA’s patient-centered core impact set.

Chris Becker, HDSA Advocacy

1:30 pm-3:00pm   Ask the Experts Panel

Individuals living with HD, families and caregivers can face challenges with symptom support and management. Bring your questions for our panel of Experts.

 

Suman Jayadev, MD-UWMC HD COE
Jennifer Vetrovs, RN-UWMC HD COE
Lauren Talman, MD-OHSU COE
Pinky Agarwaal, MD–Evergreen Neurosciences Institute
Mikael (Miki) Stovarsky, MS, LCGC-UWMC HD COE
Phaleen Hanson, MSW, LICSW-UWMC HD COE
Zhiqi (Jessie) Zheng, MSW, LICSW, SUDP-HDSA

Questions? Please Contact:
Debra Del Castillo
debradel@uw.edu

HDSA Annual Convention Scholarship Application 2025

Click here for the scholarship application

The Huntington’s Disease Society of America is pleased to announce it is now accepting applications for scholarships to attend the 40th Annual HDSA Convention in Indianapolis, IN.

The intent of this scholarship program is to help families and individuals who have never been to an HDSA Convention attend the Society’s 2025 Annual Convention.

Team Hope Walk – Spokane

Saturday, October 4, 2025

Registration Opens – 9:00 AM
Walk Begins – 9:30 AM Orchard Park
20298 E Indiana Ave.
Liberty Lake, WA, 99019

 Questions? Please contact: Ashley Healey ashleyhealey0@gmail.com

If you do not have an account with HDSA please click here to create one

If you are having issues logging in, please email us at teamhope@hdsa.org

Thanks to the generous support of the Friedman family we have been able to spearhead important HD advocacy initiatives across the state of Washington, including the launch of this website.  With their help we aim to bring both awareness of and resources for families impacted by HD in the Pacific Northwest.