Current Events

 

 

Join us this May for the first HDSA WA Chapter Wine & Dine

Pearl and Stone Wine Company will host this great event in North Bend on May 5th. 

This beautiful venue has a limited capacity so you’ll want to get your tickets before they sell out!

 

Learn more at washington.hdsa.org/wineanddine.

Get my tickets now!

 

HDSA 39th Annual Convention

FIND MORE INFORMATION HERE


 

Past Events

 

The HSG network includes over thousands of members from among the world’s best and most dedicated HD professionals – clinical investigators & coordinators, neurologists, psychiatrists, nurses, therapists, dietitians, social workers, and genetic counselors who want to make a difference in the quality of life of individuals with HD and their families.

HSG 2023, the Annual Meeting of the Huntington Study Group is an in-person event in Phoenix, Arizona on November 2-4, 2023 at the Sheraton Grand at Wild Horse Pass.

Find out more information about the HSG and their work with Huntingtons Disease athttps://huntingtonstudygroup.org/


 


Huntington’s Disease Symposium – In partnership with Selkirk Neurology and Oregon Health & Sciences University

MAY 6, 2023 
9:00 am – 2:30 pm

Please join us as we gather, in-person, for our annual Huntington’s Disease Symposium! All of us at the UW Center of Excellence are excited to see you again!

Location:
UW Tacoma Campus
1918 Pacific Avenue – William W. Philip Hall
Tacoma, WA 98042

Program of Events:

9:00 am-9:45 am          Registration and Coffee

9:45 am-9:50 am:         Welcome and Recognitions – Suman Jayadev, MD, Medical Director – UWMC Huntington’s Disease Center of Excellence

9:50 am-10:45am         Physical Therapy and HD – Lauren Talman, MD

10:20am-10:45am        HD Advocacy – Get the latest reasons for being a HD advocate!
EJ Garner, HDSA Volunteer

10:45am-11:45am         HD Research, and Clinical Trials – Get the latest updates on current HD research and trials!
Nacho Munoz-Sanjuan, PHD -Ignacio (Nacho) is a neuroscientist and CEO of Cajal Neuroscience in Seattle. Nacho started Factor-H to help Latin American families suffering from HD

11:45am-12:00pm:       Lunch (provided) – Learn about Enroll-HD.  

12:30pm-1:30pm          Ask the Experts Panel – Individuals living with HD, families and caregivers can face challenges with symptom support and management.
Bring your questions for our panel of Experts.
Amie Hillier, MD-OHSU Neurology Clinic
Suman Jayadev, MD-UWMC HD COE
Jason Aldred, MD – Selkirk Neurology
Brenda Vicars, RN-UWMC HD COE
Mikael (Miki) Stovarsky, MS, LCGC-UWMC HD COE

1:30pm-2:30pm           The Challenge of Cognitive Changes
Jimmy Pollard – CHDI Foundation

Enjoy the anniversary cake to celebrate the 10th year anniversary for Enroll-HD!

This event is funded by the Huntington’s Disease Society of America with support from Genentech, Sage Therapeutics, uniQure and Neurocrine Biosciences.


“Meet the Doc” with Dr. Jason Aldred.

AUGUST 27th, 2022

Dr. Aldred and his team at Selkirk Neurology (Spokane, WA) are partnered with the UW Center of Excellence. Dr. Alred presented regarding “Cognitive Changes in HD: Update and Research”.

UWMC Huntington Disease Center of Excellence is pleased to offer “An interactive presentation on Living with HD and Exercise”. Join us and our Oregon Health Science University HD Partners:
Lauren Talman, MD and Angelina Ciavarella, PT, DPT, NCS

Exercise is an empowering and important tool for individuals in every stage of Huntington’s Disease. We will be discussing the physical, cognitive and behavioral changes which may affect gait and balance in HD and how these symptoms may affect one’s ability or willingness to participate in physical activity. More importantly, we will provide tips and tricks on overcoming these barriers along with concrete examples of exercises and safety recommendations.

The University of Washington Medical Center Huntington’s Disease Center of Excellence is pleased to announce an educational offering for Adult Family Homes, Assisted Living Facilities and Skilled Nursing Facility staff on “Understanding Challenging Behaviors in Caring for Individuals with Huntington Disease”.

Presenters include:
Suman Jayadev, MD
Thomas Bird, MD
Marie Davis, MD
Brenda Vicars, RN
Susan Reynolds, MSW


 

36th Annual HDSA Convention in Spokane, Washington

June 10-12, 2021

Save the date!  For more information visit HDSA’s Annual Convention page.


 

2020 UW and OHSU’s Virtual Huntington Disease Symposium

October 10, 2020

We know how valuable it is for those living with HD and their caregivers to come together in person to gain strength from shared experiences. The current COVID-19 pandemic necessitates a new approach to many aspects of life—particularly those that involve gathering together in large groups. We’ve spent the last several months putting together an outstanding LIVE virtual event and look forward to bringing it directly to your living room.

This annual event is brought to you by the University of Washington HDSA Center of Excellence in partnership with our Oregon Health Sciences University Center of Excellence Partner Site.