Support groups can offer vital emotional support along the continuum of HD, valuable advice about community-based resources, as well as guidance from other members about many of HD’s most challenging situations. Support groups can meet monthly or quarterly depending upon the number of participants and wishes of the group. Support groups can be established for everyone in the HD community – caregivers, those living with HD, those living at risk, youth at risk, etc.
In-person and online support Groups are offered by HDSA chapters, affiliates, regions and Centers of Excellence. Support groups can be led by a professional or by a peer (other HD family member or friend). Every support group leader is provided training by HDSA and assigned a mentor.
To learn more:
Please explore our page on Counseling Resources to learn more about finding a counselor as well as the free telehealth counseling options available through HDSA.