Juvenile Huntington Disease (JHD) is a less common, early-onset form of Huntington’s disease that begins in childhood or adolescence.
JHD is often defined by the onset of symptoms before age 20, which can occur when the CAG repeat expansion is larger than 60 repeats. Fewer than ten percent of individuals with HD develop symptoms before age of 20.
Check out HDSA’s “Here’s the Deal with Parenting a Child with Juvenile Huntington’s Disease” video:
For more information about JHD:
- Dr. Bird’s Nest – Blog: July 2020 – What is Juvenile HD?
- HD Buzz – Kids sometimes get Huntington’s disease too
- HDSA – Juvenile HD
- HOPES (Huntington’s Outreach Project for Education, at Stanford) – Juvenile Huntington’s Disease
- HDSA Family Guide Series: Juvenile Onset HD (PDF – 13 pages )
- HDSA – The Juvenile HD Handbook A Guide for Families and Caregivers (PDF – 97 pages )
- Juvenile HD and the School Experience: Education and the Child Affected by Juvenile Onset HD (PDF – 140 pages)