Skip to content
UW Medicine
HDSA Center of Excellence
  • Contact Us
  • About Us
    • Contact Us
    • Map & Directions
    • Our UW Team
    • Spokane Partner Site
  • What is HD?
    • About Huntington’s Disease
    • Dr. Bird’s Nest – A Physician’s Perspective
    • Juvenile Huntington’s Disease
  • Genetics
    • Genetics 101
    • Genetic Counseling & Testing
      • Presymptomatic Testing
      • Genetic Testing and Insurance Issues
      • Impact of Test Results
    • Family Planning
  • Living with HD
    • Communicating with Children
    • Crisis Interventions
    • Driving Concerns
    • Interacting with Law Enforcement
    • Understanding Challenging Behaviors
  • Resources
    • Advance Care Planning
      • Advance Directives
      • Physician Orders for Life Sustaining Treatment (POLST)
    • Applying for Disability
    • Caregiving
    • Current Events
      • 2020 Virtual Huntington’s Disease Symposium
    • Medicare and Medicaid
      • Medicare
      • Medicaid
    • Social Support
      • Local Support Groups
      • HDSA Online Support Groups
      • Counseling Resources
    • Suicide Prevention
  • Research
    • Clinical Trials and Research
    • UW Publications
  • Dr. Bird’s Nest – Blog
  • Make a Gift  

HSDA Center of Excellence at UW Medical Center

We have had the privilege of caring for Huntington’s Disease patients and their families for over 60 years and are proud to be recognized as an HDSA Level 1 Center of Excellence.


Our UW Team »

HDSA Center of Excellence at UW Medical Center

Patient / Caregiver Resources

What is HD?

Living with HD

Events

HDSA Center of Excellence at UW Medical Center

Upcoming Events

The WA Chapter Celebration of Hope is a chance to celebrate the progress we have made in the HD community and the advancements in treatments to come. Join us as we host a family friendly event full of fun and heart!

 

 

The HSG network includes over thousands of members from among the world’s best and most dedicated HD professionals – clinical investigators & coordinators, neurologists, psychiatrists, nurses, therapists, dietitians, social workers, and genetic counselors who want to make a difference in the quality of life of individuals with HD and their families.

HSG 2023, the Annual Meeting of the Huntington Study Group is an in-person event in Phoenix, Arizona on November 2-4, 2023 at the Sheraton Grand at Wild Horse Pass.

Find out more information about the HSG and their work with Huntingtons Disease at https://huntingtonstudygroup.org/

 

Find more information here!

Our Center of Excellence

Our multidisciplinary team is led by neurologists (neurogeneticist and movement disorder specialists) and includes a social worker, nurse, genetic counselors, clinical coordinator, research coordinator, and consulting psychiatrist.

Our Mission

  • Enhance the quality of life of patients and families affected by HD by providing the highest level of education, compassionate evaluation and supportive interdisciplinary care.
  • Collaborate with health care providers, caregivers, and staff in facilities providing care for individuals with HD (such as adult family homes, assisted living and skilled nursing facilities).
  • Provide patients and families with up to date information about clinical trials and research.

Thanks to the generous support of the Friedman family we have been able to spearhead important HD advocacy initiatives across the state of Washington, including the launch of this website.  With their help we aim to bring both awareness of and resources for families impacted by HD in the Pacific Northwest.

This month we join HDSA in honoring the life and legacy of the renowned music icon Woody Guthrie, who passed away from Huntington's Disease in 1967 at the age of 55. His beloved wife, Marjorie Guthrie, founded the Committee to Combat Huntington's Disease in his memory, which is now the Huntington's Disease Society of America. Let's take the time today to honor Woody Guthrie and learn more about HDSA and its mission to fight Huntington's Disease. #LetsTalkAboutHD #HDSAFamily #WoodyGuthrie #HuntingtonsDisease #HDSA
https://www.youtube.com/watch?v=P0xZd3aCMv8

Contact Us

Clinic Scheduling
Debbie Olson, Program Support Supervisor
206-598-3983 | olsondl@uw.edu

Social Worker
Phaleen Hanson, MSW
206-597-4352 | bailepm@uw.edu

Genetic Counselor
Miki Stovarsky, MS, LCGC
206-598-8758 | mikael12@uw.edu

Registered Nurse
Brenda Vicars, RN
206-598-8753 | bvicars@uw.edu

Clinical Research Manager
Amy Good, PhD, CCRC
206-543-3647 | amygood@uw.edu

Top Resources

Events
Genetic Counseling & Testing
Map and Directions
Social Support
Suicide Prevention
Symposium

Last Updated: 10/13/2023

Learn more »
© 2023 HDSA Center of Excellence | UW Medicine
  • Online Privacy Statement
  • Policies & Notices
  • Copyright & Disclaimer
  • Website Terms & Conditions of Use