2024 WA Celebration of Hope
Click here to buy tickets and find more information
The WA Chapter Celebration of Hope is a chance to celebrate the progress we have made in the HD community and the advancements in treatments to come. Join us as we host a family friendly event full of fun and heart!
There are 3 ways to support:
1. ADMISSION: Includes food, 1 beer or soft drink, entry into the Flat Stick mini golf tournament
2. PREMIUM ADMISSION: Includes food, 2 beers or soft drinks, entry into the Flat Stick mini golf tournament, plus 5 raffle tickets
3. DONATE: your support means the world to our HD families!
SCROLL DOWN FOR TICKET PURCHASES or TO MAKE A TAX-DEDUCTIBLE DONATION!
Flatstick was inspired by an idea to create a casual beer focused pub that featured a unique and challenging miniature golf course. They’re passionate about craft beer and supporting the WA community.
2024 Team Hope Walk Seattle
click here to register or donate!
Team Hope is HDSA’s largest national grassroots fundraising event. Thousands of families, friends, co-workers, neighbors and communities walk together each year to support HDSA’s fight to improve the lives of people affected by HD and their families. From forming a team, to sponsoring an event, to volunteering, you too can help make a difference in so many lives. Join Team Hope for HD, and help us provide help for today, hope for tomorrow!
Past Events
The HSG network includes over thousands of members from among the world’s best and most dedicated HD professionals – clinical investigators & coordinators, neurologists, psychiatrists, nurses, therapists, dietitians, social workers, and genetic counselors who want to make a difference in the quality of life of individuals with HD and their families.
HSG 2023, the Annual Meeting of the Huntington Study Group is an in-person event in Phoenix, Arizona on November 2-4, 2023 at the Sheraton Grand at Wild Horse Pass.
Find out more information about the HSG and their work with Huntingtons Disease athttps://huntingtonstudygroup.org/
Huntington’s Disease Symposium – In partnership with Selkirk Neurology and Oregon Health & Sciences University
MAY 6, 2023
9:00 am – 2:30 pm
Please join us as we gather, in-person, for our annual Huntington’s Disease Symposium! All of us at the UW Center of Excellence are excited to see you again!
Location:
UW Tacoma Campus
1918 Pacific Avenue – William W. Philip Hall
Tacoma, WA 98042
Program of Events:
9:00 am-9:45 am Registration and Coffee
9:45 am-9:50 am: Welcome and Recognitions – Suman Jayadev, MD, Medical Director – UWMC Huntington’s Disease Center of Excellence
9:50 am-10:45am Physical Therapy and HD – Lauren Talman, MD
10:20am-10:45am HD Advocacy – Get the latest reasons for being a HD advocate!
EJ Garner, HDSA Volunteer
10:45am-11:45am HD Research, and Clinical Trials – Get the latest updates on current HD research and trials!
Nacho Munoz-Sanjuan, PHD -Ignacio (Nacho) is a neuroscientist and CEO of Cajal Neuroscience in Seattle. Nacho started Factor-H to help Latin American families suffering from HD
11:45am-12:00pm: Lunch (provided) – Learn about Enroll-HD.
12:30pm-1:30pm Ask the Experts Panel – Individuals living with HD, families and caregivers can face challenges with symptom support and management.
Bring your questions for our panel of Experts.
Amie Hillier, MD-OHSU Neurology Clinic
Suman Jayadev, MD-UWMC HD COE
Jason Aldred, MD – Selkirk Neurology
Brenda Vicars, RN-UWMC HD COE
Mikael (Miki) Stovarsky, MS, LCGC-UWMC HD COE
1:30pm-2:30pm The Challenge of Cognitive Changes
Jimmy Pollard – CHDI Foundation
Enjoy the anniversary cake to celebrate the 10th year anniversary for Enroll-HD!
This event is funded by the Huntington’s Disease Society of America with support from Genentech, Sage Therapeutics, uniQure and Neurocrine Biosciences.
“Meet the Doc” with Dr. Jason Aldred.
AUGUST 27th, 2022
Dr. Aldred and his team at Selkirk Neurology (Spokane, WA) are partnered with the UW Center of Excellence. Dr. Alred presented regarding “Cognitive Changes in HD: Update and Research”.
UWMC Huntington Disease Center of Excellence is pleased to offer “An interactive presentation on Living with HD and Exercise”. Join us and our Oregon Health Science University HD Partners:
Lauren Talman, MD and Angelina Ciavarella, PT, DPT, NCS
Exercise is an empowering and important tool for individuals in every stage of Huntington’s Disease. We will be discussing the physical, cognitive and behavioral changes which may affect gait and balance in HD and how these symptoms may affect one’s ability or willingness to participate in physical activity. More importantly, we will provide tips and tricks on overcoming these barriers along with concrete examples of exercises and safety recommendations.
The University of Washington Medical Center Huntington’s Disease Center of Excellence is pleased to announce an educational offering for Adult Family Homes, Assisted Living Facilities and Skilled Nursing Facility staff on “Understanding Challenging Behaviors in Caring for Individuals with Huntington Disease”.
Presenters include:
Suman Jayadev, MD
Thomas Bird, MD
Marie Davis, MD
Brenda Vicars, RN
Susan Reynolds, MSW
36th Annual HDSA Convention in Spokane, Washington
June 10-12, 2021
Save the date! For more information visit HDSA’s Annual Convention page.
2020 UW and OHSU’s Virtual Huntington Disease Symposium
October 10, 2020
We know how valuable it is for those living with HD and their caregivers to come together in person to gain strength from shared experiences. The current COVID-19 pandemic necessitates a new approach to many aspects of life—particularly those that involve gathering together in large groups. We’ve spent the last several months putting together an outstanding LIVE virtual event and look forward to bringing it directly to your living room.
This annual event is brought to you by the University of Washington HDSA Center of Excellence in partnership with our Oregon Health Sciences University Center of Excellence Partner Site.