Caring for a loved one with HD can be both physically and emotionally demanding. The combination of loss, grief, prolonged stress and emotional turmoil, along with the physical demands of caregiving, can place caregivers at risk for burnout and significant health problems.

At the University of Washington HDSA Center of Excellence we are committed to educate and support caregivers in providing care for individuals with HD.

The following links are meant to provide practical information for those who are caring for someone with HD.

• A Caregiver Guide for HD Families – HDSA (PDF – 124 pages)
• Caregiving 101: On Being a Caregiver – Family Caregiver Alliance
• Taking Care of You: Self-Care for Family Caregivers – Family Caregiver Alliance
• The Role of a Caregiver – Huntington’s Disease Foundation