Speaker: Jonathan Jackson, PhD
Assistant Professor of Neurology at Harvard Medical School
Executive Director of the Community Access, Recruitment and Engagement (CARE) Research Center at MGH
Title: Quantified Principles of Health Equity in Clinical Research
Speaker bio: Jonathan Jackson, PhD, is the executive director of the Community Access, Recruitment, and Engagement (CARE) Research Center at Massachusetts General Hospital and is an Assistant Professor of Neurology at Harvard Medical School. CARE investigates the impact of diversity and inclusion on the quality of human subjects research and leverages deep community entrenchment to build trust and overcome barriers to clinical trial participation. Jonathan’s research focuses on inequities in clinical settings that affect underserved populations, and he has received generous funding for this work from the Michael J Fox Foundation for Parkinson’s Research, Massachusetts General Hospital, and the National Institutes of Health, including a prestigious NIH Pioneer Award to advance this work. Dr. Jackson, who received his doctoral degree in Psychological and Brain Sciences in 2014, also conducts research as a cognitive neuroscientist investigating the early detection of Alzheimer’s disease, particularly in the absence of overt memory problems. He has become a well-known representative to underserved communities and dozens of affiliated organizations, especially regarding participation in clinical research. Dr. Jackson serves in an advisory capacity for several organizations focused on equity in clinical research, and has written guidance for local, statewide, national, and federal organizations on research access, engagement, and recruitment.
Lecture summary: In recent years, it has become clear that clinical research participation is more accessible to some populations relative to others. The proposed lecture will provide the audience with an overview of inequities and barriers for clinical trial recruitment in neurology. The presentation will describe current research in recruitment and inclusion science, including a testable framework for future research, as well as what investigators and study teams can do to minimize barriers to research recruitment.
1) Reframe the history of recruitment science and connection to diversity,
2) Discuss early data on quantifying engagement and recruitment to research,
3) Provide a few suggestions to bolster recruitment