Resources for Caregivers and Persons with Dementia

This curated list links you to useful information for persons living with memory loss and their care partners, such as practical tips, support groups, transporation options, and dementia-friendly community events.

 

Support for persons living with memory loss

  • Living with Memory Loss Handbook, by the UW Memory and Brain Wellness Center. Our handbook, Living With Memory Loss: A Basic Guide, has been developed over the past year with guidance from people living with memory loss and their care partners and including personal contributions from our clinic team and other community partners. Download the full version, separate chapters, and content in multiple languages.

  • Early Stage Memory Loss programs, including support groups and educational seminars, provided by the Alzheimer’s Association. 206.529.3868

  • Alzheimer’s Association online forum for persons with memory loss

  • Dementia Alliance International, a network by and for persons living with memory loss

  • 24-hour helpline, 1.800.272.3900, provided by the Alzheimer’s Association

Support for Alzheimer's care partners

  • NEW! memorylossinfowa.org a resource for the local public offering information and resources on memory loss and Alzheimer's and dementia, including detailed sections on driving, long-terms support and services, caregiving, medical and safety, issues, and legal/financial. This website portal is a resource of Washington State’s Community Living Connections, part of a national collaborative effort of the U.S. Department of Health and Human Services, the Veterans Administration and the Centers for Medicare & Medicaid Services designed to help individuals of all ages, disabilities and income levels, their caregivers, legal representatives and families get the right home and community-based supports and services at the right time, in the right place.

  • Mayor's Council on African American Elders - Learn about Memory Sunday, Grandparent's Day, and the Legacy of Love African American Caregivers Forum.

  • The National Brain Health Center for African Americans - Resources for brain health and caregiving. The mission of The National Brain Health Center for African Americans (NBHCAA) is to raise awareness of the issues of cognitive health among African Americans by working through networks of faith-based institutions. The Brain Health Center serves as an information hub on the human brain that must be shared throughout all networks that reach and touch approximately 40 million African Americans living in the United States. 

  • Support for Caregivers - Tips from other families traveling the caregiver path and information on being supportive, and how caregivers can take care of themselves while caring for a loved one (Chapter 8 of the UW MBWC 'Living with Memory Loss' handbook)

  • Washington State Caregiver Resources from the Aging and Long-Term Support Administration

  • King County Family Caregiver Support Network provides a free consultation and referrals to services which may include things like support groups or counseling, training on specific caregiving topics or concerns, and respite care if you need a break.

  • Snohomish County Family Caregiver Resources provides a free consultation and referrals to services which may include things like support groups or counseling, training on specific caregiving topics or concerns, and respite care if you need a break.

  • Alzheimer’s Association 24-hour helpline, 1.800.272.3900, provides support and information from Master's level social worker

    • Online tools for caregivers – legal/financial planning, care options, safety, communication – provided by the Alzheimer’s Association

    • Online caregiver forum through the Alzheimer’s Association helps you connect and learn from other caregivers

  • Dementia Road Map for family and friends, produced by our partners in the Washington State Dementia Action Collaborative, provides a basic overview of what to expect, and what can help, at every stage of the journey

Support for FTD care partners

Education for care partners

  • Health Resources & Services Administration (HRSA) of the HHS offers Training Curriculum: Alzheimer’s Disease and Related Dementias: free online educational modules on several dementia topics, including ones targeted for caregivers.

  • UW Indigenous Aging Resources, a new section on the affiliated UW Alzheimer's Disease Research Center website, is meant to provide resources and education about Alzheimer’s disease and mild cognitive impairment to American Indian/Alaska Native communities in the Pacific Northwest. The website pages, a project of the ORE Core, contain culturally appropriate information for AI/AN individuals and caregivers. The site showcases the tailored brochures, outreach posters, and provider training slide show presentations for AI/AN clinic providers, produced in collaboration with WSU Partnerships for Native Health. 

  • COMPASS Learning Opportunities by the Banner Alzheimer’s Foundation: These online classes provide essential information needed by family members, friends or professional caregivers after a new diagnosis of Alzheimer’s disease/related dementia is made and as the disease progresses.

Getting Here

Directions to the UW Memory and Brain Center's Clinic at Harborview Medical Center.
 

Transportation Options

Staying socially engaged, cognitively stimulated, and physically active are three key recommendations for supporting brain health and overall well-being. If you don’t drive, however, getting out in the community can feel like a challenge. Fortunately, there are some alternative transportation options available in many areas.

As with any new habit, getting the hang of alternative travel takes time. It’s great to start developing new strategies for getting around and building those routines into your procedural memory. Whether you want to plan ahead, or you’ve been looking for options for a while, here are some tips for you or your loved one with dementia:

Alternative Transportation Options by Kailan Bergstrom, a Masters of Social Work Practicum Student at the MBWC Clinic.

Links

Dementia-Friendly Community Events

Washington State has a growing number of community-based arts, fitness, social and volunteer opportunities for persons with memory loss and their families. For more information about dementia-friendly communities, please visit our new website page devoted to this topic.

A letter from our friends at The Gathering Place, Early Stage Memory Loss Enrichment Program, Greenwood Senior Center, Seattle, WA