Frontotemporal Dementia (FTD)

Frontotemporal disorders are forms of dementia caused by a family of brain diseases known as frontotemporal lobar degeneration (FTLD), also known as frontotemporal dementia (FTD) or Pick's disease. These disorders result from damage to neurons (nerve cells) in the brain's frontal and temporal lobes. Over time, these changes impair thinking, language, and behavior. Symptoms can include uncharacteristic behaviors, problems regulating emotions, speech difficulties, and problems with walking and other basic movements. FTD predisposes an individual to physical complications such as pneumonia, infection, or injury from a fall. Average life expectancy is 7 to 13 years after the start of symptoms. Frontotemporal dementia is the most common dementia for people younger than 60. 

 

What are the Different Types of FTD?

Research has revealed different forms of frontotemporal dementia, based on the pattern of brain atrophy and the first symptoms to emerge.

 

What Medications are Helpful for FTD?

Today, there are no treatments available to slow or stop the progression of the disease. However, there are important steps that you can take to preserve and maximize the quality of life. Learn about the growing number of interventions that can help with managing FTD symptoms [theAFTD.org].

 

What Causes FTD?

In about a third of all FTD cases, the disease is inherited. Genetic counseling and testing are available for individuals with family histories of frontotemporal degeneration. There are no known risk factors for any frontotemporal degeneration except for a family history or a similar disorder.

Read about FTD and Genetics [theAFTD.org]

 

How do I Coordinate FTD Care?

It is important for you and your care partner to identify a team of experts who can help with coordinating care  and with the legal, financial, and emotional challenges brought on by this disease. If you are managing the health care needs of a loved one with FTD, the following information can help guide you:

  • Creating Your Care Team is a guide from the AFTD for setting up care and navigating the challenging decisions following an FTD diagnosis.
     
  • The Memory Navigator Consultation Services: The Memory Navigator service at the Memory Hub offers personalized guidance through free 30-minute appointments with a care consultant. Get support with dementia or caregiving topics, including FTD information and referrals to community resources. Discuss what you're looking for, and discover what may be available in your area. Appointments are available in person and via Zoom or phone.

Resources