Explore these resources from the UW Memory and Brain Wellness Center and collaborator organizations at our Memory Hub community center. This page also links to local organizations recommended by our clinic team and social workers.
Resources at the MBWC
from the UW Memory and Brain Wellness Center and our Collaborators
Looking for information or support for the memory loss journey? At the Memory Hub, an Alzheimer’s Association care consultant acts as “Memory Navigator,” offering appointments two days per week during open hours. Discuss the kinds of memory loss and caregiving resources you’re looking for, and discover what may be available in your community to help you thrive.
Our handbook, Living With Memory Loss: A Basic Guide, has been developed over the past year with guidance from people living with memory loss and their care partners and including personal contributions from our clinic team and other community partners.
Translated versions of key sections:
Explore these local options for support, education, and engagement programs for caregivers, offered in person and/or virtually at the Memory Hub, a dementia-friendly community center run by the UW Memory and Brain Wellness Center.
Dementia Friends in Washington State -The MBWC is proud to lead the Dementia Friends program in Washington State on behalf of the Dementia Action Collaborative. Dementia Friends helps communities across the world understand what dementia is and how it affects people. You become a Dementia Friend after you attend an in-person or virtual Dementia Friends Information Session. The schedule is listed on the webpage.
- Dimensions Magazine: Our twice-yearly Dimensions magazine connect readers with the latest in Alzheimer’s and related disorders research, care, and dementia-friendly community initiatives at the UW Memory and Brain Wellness Center.
- The Community Newsletter from the MBWC's NIA-funded research center, the ADRC. This newsletter is available in English and Spanish. Find all issues here.
- Social Media - Facebook accounts
Compiled resources from our partners at the Alzheimer’s Association and MBWC to help our caregiving community prepare to be “on-the-go” with their loved one and feel that they are not alone.
Local Organizations
Recommended by MBWC providers
The Alzheimer’s Association offers information, resources, and and exclusive educational opportunities for residents of WA, funded by Aging & Long Term Care.
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Alzheimer’s Association - Spokane Office (Serving Eastern WA)
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For more information call: 509-456-0456
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Website: www.alzwa.org | Email: InquiryWa@alz.org
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Alzheimer’s Association - Lynnwood and Tukwila Offices (Serving Western WA)
- For more information call: 206-363-5500
- Website: www.alzwa.org | Email: InquiryWa@alz.org
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Memory Navigator Consultations offered by the Alzheimer’s Association at the Memory Hub (free).
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24 Hour Helpline: The Alzheimer’s Association 24/7 Helpline (800.272.3900) is a free service offering support for people living with dementia, caregivers, families and the public. Connect with a live person who can provide information, local resources, crisis assistance and emotional support.
Dementia Support Northwest has worked to assemble a comprehensive set of supports for their neighbors and community members living with dementia, as well as those providing their care.
WA State CLC is part of a national collaborative effort of the U.S. Department of Health and Human Services, the Veterans Administration and the Centers for Medicare & Medicaid Services designed to help individuals of all ages, disabilities and income levels, their caregivers, legal representatives and families get home and community-based supports and services.
Find Your Local Community Living Connections.
- Senior Information and Referral
- Financial and Health Coverage Assistance
- Wellness Classes
- Transportation Resources
- Dementia Education
- Caregiver Support Network
Resources Tailored for Specific Conditions
Has your loved one been diagnosed with Alzheimer's or another dementia before the age 65? Or, has a loved one been diagnosed with frontotemporal dementia (FTD), Lewy Body dementia (LBD), or primary progressive aphasia? Explore current information and resources tailored for your distinct condition of interest.
- What is Younger/Early-Onset Alzheimers? - Alzheimer's Association
- Younger-Onset Dementia Informational Videos - View these presentations by MBWC providers and experts for Younger-Onset 101 talks and more.
- Shared Outdoor Adventures for Resilience - Do you live with younger onset Alzheimer's or other dementias? Connect with others and explore the great outdoors with SOAR (Shared Outdoor Adventures for Resilience)! Enjoy monthly hikes in natural areas in the Seattle area, with options for other special outdoor adventures. Designed for people diagnosed with Alzheimer's or another dementia before age 65, alongside a family member or friend.
- What is FTD? - Alzheimer's Association
- Navigating FTD - Our partner, the Association for Frontemporal Degeneration (AFTD), maintains a wide array of informaton and resources for people living with FTD.
- Northwest Region FTD resources and support groups at the Association for Frontotemporal Degeneration (AFTD)
- Younger-Onset Dementia Videos - View these presentations by MBWC providers and experts for FTD 101 and more.
- Shared Outdoor Adventures for Resilience - Do you live with younger onset Alzheimer's or other dementias? Connect with others and explore the great outdoors with SOAR (Shared Outdoor Adventures for Resilience)! Enjoy monthly hikes in natural areas in the Seattle area, with options for other special outdoor adventures.
Research Opportunities
- Research Opportunities at the University of Washington- Visit our Guide to Clinical Trials and Research Studies and scroll down to 'Frontotemporal Dementia' section. Available studies change over time. Do you want our help in identifying which studies might be a good fit for you? Please call 206-616-3973.
- ALL-FTD: ALLFTD is a comprehensive study targeting most varieties of neurodegenerative diseases that cause frontotemporal dementia (FTD). The overall goal of ALLFTD is to prepare for treatment trials by characterizing sporadic and familial cases of FTD and identifying clinical measures and biomarkers for following patients in clinical trials. Eligible populations: frontotemporal dementia (FTD) and individuals with family history of FTD.
The Memory and Brain Wellness Center is a Lewy Body Dementia Association Center of Excellence. View these helpful resources for people living with LBD and their families
- 10 Things You Should Know about LBD - The Lewy Body Dementia Association
- Lewy Body Line: Those living with Lewy body dementia, care partners, and others can connect to the licensed professionals with LBDA Support Services through the LBDA Lewy Line or email.
- Caregiver Resources: A portal to a variety of caregiving support resources, such as caregiving publications, care briefs, LBD stories, information for families, and diagnostic checklist.
- Overview of Lewy Body Dementia - Mayo Clinic
Research Opportunities
Research Opportunities at the University of Washington- Visit our Guide to Clinical Trials and Research Studies and scroll down to 'Lewy Body Dementia' section. Available studies change over time. Do you want our help in identifying which studies might be a good fit for you? Please call 206-616-3973.
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Primary Progressive Aphasia/ Speech Language Resources - Support Groups, Clinical Care, Understanding PPA
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PPA (Primary Progressive Aphasia) Together Group Do you or a loved one live with primary progressive aphasia (PPA/PPAOS)? Come explore a group just for you! We meet monthly, on Wednesday afternoons. A free event. Offered in partnership by UW Department of Speech and Hearing Sciences, UW Memory and Brain Wellness Center, UW Alzheimer's Disease Research Center.
Education
Project ECHO Dementia is a learning model in which front-line care providers from around WA State meet in a web-based virtual conference room with an interdisciplinary panel of experts in memory loss and dementia, offered by the UW Memory and Brain Wellness Center and hosted at the Memory Hub. A brief 15-minute didactic is followed by an hour of case-based learning where everyone at the table is both a teacher and a learner. The Project ECHO® Dementia program makes available recordings/slides from presentations and sessions.
While Project ECHO Dementia is aimed towards care providers, the team has heard feedback that interested caregivers find the recordings and resources valuable sources of in-depth information on a variety of topics related to brain health and dementia.
Have you or your loved one been diagnosed with mild cognitive impairment or dementia? Join us for this introductory class. Get your questions answered by an expert panel including peer mentors who share strategies for living well with memory loss, and a medical provider from the UW Memory & Brain Wellness Center. Learn more about the resources in our handbook, Living With Memory Loss, and some helpful websites. You'll leave feeling encouraged and more confident for the road ahead.
Dementia Training for Family Caregivers is an online course designed to be taken at your own pace, through reading and watching videos. This no-cost course includes five, hour-long modules. You also meet weekly with a facilitator who provides individualized coaching. The course follows the Evidence-Based STAR-Full Life curriculum developed for use by Full Life Care.
The UW MBWC offers quarterly events which provide an opportunity for people and their families touched by specific types of dementia to connect, learn and share resources.
En Español
Explore los recursos locales para familias y personas que viven con pérdida de memoria. Estos incluyen grupos de apoyo locales, líneas de ayuda, recursos de información y consejos prácticos de personas reales que viven con pérdida de memoria y sus familias y cuidadores.