Living with Memory Loss

Where Do I Start on this Journey with Memory Loss or Dementia?

 

The clinic team at the UW Memory Brain Wellness Center offers resources to help people experiencing memory loss, and their families, to navigate challenges and find opportunities to harness inner strengths and enhance well-being in any stage of dementia. Here, you’ll find our handbook, Living with Memory Loss: A Basic Guide, and a curated list of links to useful information, practical tips, support groups, and dementia-friendly community events. The information covers Alzheimer's, Parkinson's, frontotemporal degeneration (FTD) diseases, and other dementia-causing conditions.

For up-to-date information on currently offered programs, support groups, and events, hop over to our Programs & Events page.

HANDBOOK

Our handbook, Living With Memory Loss: A Basic Guide, has been developed over the past year with guidance from people living with memory loss and their care partners and including personal contributions from our clinic team and other community partners. Download the full version, or separate chapters, below!

Living with Memory Loss: A Basic Guide (Full Version)

 

Table of Contents & Welcome Letter

Chapter 1: The Memory Loss Journey. A brief introduction.

Chapter 2: My Diagnosis. What is going on, and what does it mean for my life?

Chapter 3: My Next Steps. How do I process this news, and who do I tell?

Chapter 4: My Medical Care. What treatments are there for memory loss?

Chapter 5: My Daily Life. What can I do to be as healthy as possible?

Chapter 6: My Relationships and Activities. How can I stay connected with the people and things I love?

Chapter 7: My Strengths. How can I used my talents and skills to make a difference?

Chapter 8: Support for Care Partners. What should my family and friends know?

Chapter 9: My Community. What resources will be helpful on this journey?

Chapter 10: My Plans for the Future. What plans can I make now that will help later on?

Chapter 11: Stepping Forward"Living in the possible."

Chapter 12: Appendix (Full Version)

 

 

Links to Local and Online Resources

Let us hear from you! This quarter, the MBWC is conducting a survey to help guide development of programs and resources for people with younger onset dementia. If you or a loved one have been diagnosed before age 65, we welcome your input! This online survey is anonymous and takes about 10-15 minutes to complete. To fill out the survey, click here. Thank you for your feedback!  

Dementia-Friendly Community Events

  • The Momentia calendar lists community-based arts, fitness, social and volunteer opportunities designed for persons living with memory loss and their families. Programs include the ‘Fridays at the Farm’ Gardening Group, Out & About walking group, the Frye Art Museum’s arts engagement events, a song circle, book group, and more.

  • Alzheimer’s Cafes take place monthly in local coffee shops and cafes throughout the Puget Sound region. These informal gatherings are a chance for persons living with memory loss and their families to connect with others having a similar experience, while enjoying a cup of coffee in a relaxed community space. If there’s not an Alzheimer’s Café in your neighborhood or city, come for a visit, then start your own! 

  • Yoga for People with Parkinson's
    UW Medicine, Northwest Hospital, Seattle, WA
    Mondays & Fridays, 9:30am -11:00am | Wednesdays 12:30pm - 2:00pm
    Cost: $5 / Contact: Peter Lynch, 206.719.8007 or thagrdnr@yahoo.com or Pete Beidler at 206.420.4268 (Yoga for PD in greater Pacific Northwest regions)

  • Garden Discovery Walks —We partner with Seattle Parks and Recreation and Seattle P-Patch to provide monthly nature experiences for people living with memory loss, and their family and friends. Explore nature and savor the season with monthly walks through Seattle public gardens, followed by a creative, nature-inspired activity. Light refreshments provided. Rotating Locations of UW Center For Urban Horticulture (Fri 3/3), Magnuson Park (Sat 4/8), Seattle Children's Playgarden, Rainier Beach Urban Farm and Wetlands, Bradner Garden Park, and others. View Flyer for details.

 

Alzheimer's Disease

 

Lewy Body Dementia

 

Parkinson's Disease

 

Frontotemporal Disorders (behavioral variant FTD, primary progressive aphasia)

 

Other Causes of Dementia

 

Mild Cognitive Impairment (MCI)

 

Support for persons living with memory loss

 

Support for care partners

  • Caregiver support groups for Alzheimer’s  disease, lewy body dementia, and frontotemporal dementia, provided by the Alzheimer’s Association at 'We Can Help'. Call: 206.363.5500

  • King County Family Caregiver Support Network

  • Snohomish County Family Caregiver Resources

  • Online caregiver forum through the Alzheimer’s Association.

  • Alzheimer’s Association 24-hour helpline, 1.800.272.3900

  • Online tools for caregivers – legal/financial   planning, care options, safety, communication – provided by the Alzheimer’s Association.

Getting Here

Directions to the UW Memory and Brain Center's Clinic at Harborview Medical Center:
 

Transportation Assistance

  • King County Metro

  • Community Transit in Snohomish County

  • Kitsap Transit

  • Hyde Shuttle

  • Taxi, Uber, Lyft

  • Cabulance service providers

  • Ride share programs through churches and senior centers

A letter from our friends at The Gathering Place, Early Stage Memory Loss Enrichment Program, Greenwood Senior Center, Seattle, WA