Becky Bendixen is a Tribal Program Specialist at the Northwest Regional Council and the co-creator of the health intervention program Wisdom Warriors. She generously shares the story driving her passion to improve the health and wellbeing of Elders and of Native communities more broadly. It is one of heartbreak, healing, and the power of connecting to Unangam traditional culture and dance.
The new website provides patients and families with resources, genetics 101, links to clinical trials, events, and HD research - and a blog called "Dr. Bird's Nest." The HDSA Center of Excellence at the UW Medical Center is led by the MBWC's Dr. Suman Jayadev, MD and Dr. Thomas Bird, MD.
A new study out of the ALLFTD consortium suggests that a life full of light exercise and hobbies may slow disease progression, even for those who inherited gene mutations that cause frontotemporal dementia.